The Addison's Disease Self-Help Group was founded in 1984 by Deana Kenward on her dining room table, following her diagnosis of Addison's Disease. Over the following years, the organisation has grown to almost 2,000 members, an internationally recognised patient support & advocacy group with a flourishing, engaged adrenal insufficiency community.

Our History

It all began when Deana wanted to find out more about Addison’s following her diagnoisis. She went to the library and wrote to every magazine she could think of only to find out there was nothing. In the end, she wrote to Katie Boyle at the TV Times. They printed Deana's letter in the TV Times in July 1984.

The response to Deana’s letter was better than she could have hoped for, with many people responding saying they too lived with Addison’s Disease. Deana proceeded to answer each and every letter by hand, asking everyone if they would like to join a support group and thus the Addison's Disease Self Help Group was born!

In 2012, Deana Kenward was awarded a MBE (Member of  the Order of the British Empire) in recognition of her outstanding contribution to the charity and its community and her example to others.

In 2018, the charity appointed its first professional Chief Executive, having previously been run entirely by volunteers. In 2019, with the assent of the Charity Commission the charity became a Charitable Incorporated Organisation (UK registered nonprofit).

Get Involved

Throughout the past 35 years, we have been powered by volunteers. We continue to hold high the principles of mutual self-help, active patient engagement and hands-on volunteering.