The Addison's Disease Self-Help Group was founded in 1984 by Deana Kenward on her dining room table, following her diagnosis of Addison's Disease. Over the following years, the organisation has grown to almost 2,000 members, an internationally recognised patient support & advocacy group with a flourishing, engaged adrenal insufficiency community.

In 2012, Deana Kenward was awarded a MBE (Member of  the Order of the British Empire) in recognition of her outstanding contribution to the charity and its community and her example to others.

In 2018, the charity appointed its first professional Chief Executive, having previously been run entirely by volunteers. In 2019, with the assent of the Charity Commission the charity became a Charitable Incorporated Organisation (UK registered nonprofit).

Get Involved

Throughout the past 35 years, we have been powered by volunteers. We continue to hold high the principles of mutual self-help, active patient engagement and hands-on volunteering.