Get clinical and research updates, read member stories and find out how you can get involved and support us.
After two life-threatening adrenal crises, including one during a dream family holiday to Disneyland Paris, eleven-year-old Sophie is sharing her story to help other families get answers sooner. Here she talks about her diagnosis, life with Addison's, and being interviewed for the BBC to spread awareness.
24 September 2026
A guide to explain what Act-O-Vial® is, how it differs from standard emergency injections, and how prescribing and supply via the unlicensed medicine route works in practice.
1 September 2026
The ADSHG Patient Safety Event Form allows people with adrenal insufficiency to anonymously share healthcare experiences where they felt at risk of harm. By identifying common themes and trends, we can focus our awareness campaigns and patient safety work where it is needed most.
23 August 2026
The ADSHG has awarded £20,000 to Dynamic Therapeutics to support UKCA certification of U-RHYTHM, an innovative wearable device that measures hormone levels, including cortisol, over 24 hours. This funding brings the technology a step closer to clinical use, helping improve personalised care for people with adrenal insufficiency
11 August 2026
Medication supply issues can be worrying for people living with Addison's disease and adrenal insufficiency, but most prescription problems can be resolved quickly with the right support and information. This guide explains why shortages happen, what steps to take if your medication is unavailable, and how to stay safe while maintaining essential treatment.
29 July 2026
The ADSHG has long supported a thriving community of members in the Republic of Ireland, helping people affected by Addison's disease and adrenal insufficiency connect, learn and share experiences. This page introduces the newly established Addison's & Adrenal Support Ireland charity and explains how support for the Irish adrenal insufficiency community is evolving.
29 July 2026
Finnley shares his journey from a life-threatening adrenal crisis in the United States to rebuilding his strength and pursuing his dream of playing football again after being diagnosed with Addison's disease. His story highlights the challenges of adapting to life with adrenal insufficiency, the importance of family support, and the determination needed to keep moving forward
29 July 2026
What started with Keeley's diagnosis of Addison's disease has grown into an inspiring fundraising journey involving four generations of her family. Through marathons, walks, school projects and community events, they have raised awareness and vital funds to support people living with adrenal insufficiency and Addison's disease.
21 July 2026
Catch up on the key highlights from the ADSHG 2026 AGM, including updates on the charity's work, progress on major advocacy and awareness campaigns, and the latest adrenal insufficiency research. Members can also watch on-demand recordings featuring the AGM presentations and the AC-RESCUE research update.
8 July 2026
Young people with adrenal insufficiency and their families are invited to help shape new UK-wide resources on sick day and emergency management. Led by Edge Hill University and the British Society for Paediatric Endocrinology and Diabetes (BSPED), this project aims to create practical guidance that better meets the needs of children, young people and parents.
5 July 2026