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After being diagnosed with Addison's disease following months of unexplained symptoms, Vinoj Suthakaran turned his experience into Temple to Castle, a powerful song about resilience, adaptation, and hope
5 January 2021
Liam shares his experience of living with both Crohn's disease and Addison's disease, following years of treatment with steroid medication and multiple major surgeries. His story highlights the challenges of diagnosis, recovery and learning to manage two complex long-term conditions.
10 December 2020
Read Jenn’s inspiring story of living with secondary adrenal insufficiency after being diagnosed with Sheehan’s Syndrome and experiencing repeated adrenal crises. Discover how Joy, her cortisol medical detection dog, has helped restore her confidence, independence and day-to-day safety.
30 November 2020
Diagnosed with Addison's disease after an adrenal crisis, Thanooshan began his law degree less than a year later. He shares how learning to balance his health, studies and wellbeing helped him succeed at university.
17 September 2020
2 August 2020
Discover how Julia Anthony and SOLUtion Medical are working to transform adrenal crisis care through the development of an innovative auto-injector for emergency hydrocortisone treatment. Funded by the Addison's Disease Self-Help Group (ADSHG), this pioneering research aims to make life-saving injections simpler, faster and easier to use for people living with adrenal insufficiency.
29 July 2020
Explore the ADSHG's #ShareYourKit campaign and see how people with Addison’s disease and adrenal insufficiency store and carry their emergency hydrocortisone injection kits. Get inspiration, practical tips and advice to help you stay prepared for an adrenal crisis.
4 June 2020
From her diagnosis, the letter to the TV Times that began the charity, to receiving her MBE for years of dedicated service, we chart the journey of the founder of the Addison's Disease Self-Help Group.
29 April 2020
Jennifer shares her hospital admission and emergency surgery story during COVID-19, including how her Addison’s disease was safely managed throughout treatment. Learn what helped her feel prepared and reassured during a challenging time.
2 April 2020
Women in Science Day provides an opportunity to recognise the researchers, nurses, clinicians and innovators who continue to improve the lives of people living with Addison's disease and adrenal insufficiency. At the Addison's Disease Self-Help Group, we're proud to support research that advances patient care, safety and understanding of these rare conditions.
11 February 2020