Get clinical and research updates, read member stories and find out how you can get involved and support us.
After being diagnosed with Addison's disease, Lynsey turned her experience of intense salt cravings into a vibrant and thought-provoking photoshoot. Discover the story behind her creative exploration of pickle addiction and raising awareness of Addison's disease.
24 June 2026
We're pleased to announce that selected ADSHG leaflets and publications can now be delivered to customers in EU countries, the USA and Canada. Find out which printed resources are available, delivery costs, and how to place an international order.
4 June 2026
The ADSHG is proud to award the 2026 Professor John Wass Research Grant to Dr Punith Kempegowda and Dr Amanda Ling from the University of Birmingham. Their RESCUE study aims to improve adrenal crisis management in UK hospitals through national surveillance, education and quality improvement initiatives
2 June 2026
The ADSHG is jointly funding an important UK research study exploring how people with adrenal insufficiency prevent, recognise and manage adrenal crisis. By sharing your experiences through a questionnaire or interview, you can help improve patient safety, emergency care and future support for the adrenal insufficiency community.
29 May 2026
Today is Addison's Disease Day 2026, and this year's theme, "Turn Awareness into Action", highlights how informed action can improve lives, strengthen our community and help save lives. Discover new resources, patient stories, research opportunities and practical tools designed to support everyone living with adrenal insufficiency, including Addison's disease.
29 May 2026
Emily Mann, a content creator from the Lake District, shares her experience of living with Addison's disease and using social media to raise awareness of this often invisible condition. Through her story, she highlights the realities of diagnosis, self-management and how sharing personal experiences can help others feel less alone.
29 May 2026
Knowing what to do in an emergency is an important part of living with Addison's disease, but making sure healthcare professionals know about your diagnosis when every minute counts can be just as vital. As both a paramedic and someone living with Addison's disease, Lottie brings a unique perspective on the practical steps people can take to improve their safety and preparedness.
29 May 2026
Efmody® (modified-release hydrocortisone) receives MHRA approval for adrenal insufficiency in the UK.
21 May 2026
The discontinuation of hydrocortisone sodium phosphate (liquid hydrocortisone) has caused significant concern, with many people worried about the impact on patient safety. The Addison's Disease Self-Help Group is working with patients, clinicians and partner organisations to highlight these concerns and push for solutions.
20 May 2026
Ciara and Margaret took part in the London Landmarks Half Marathon 2026 in memory of Margaret's niece, Maggie, who tragically passed away due to undiagnosed Addison's disease. Their inspiring fundraising journey helped raise awareness of adrenal insufficiency while honouring Maggie's memory and supporting the work of the ADSHG.
20 May 2026