Supporting people affected by Addison's and adrenal insufficiency

Together, we're stronger!

The Addison’s Disease Self-Help Group, also known as the ADSHG, is a UK-based charity founded in 1984 when, pre-internet, finding out how to manage living with Addison’s disease, a rare endocrine condition, and connecting to others with the same diagnosis, was very challenging.

For over 4 decades since the charity informally began, we have worked to:

Our goals today are very similar to the charity’s original aims, and give everyone involved in the charity the focus and drive to meet the needs of our members and the wider Addison’s and adrenal insufficiency community.

We are a small team of employed staff managing Operations, Communications & Research and Fundraising, supported by a group of talented and enthusiastic trustees who volunteer their time, and a wider group of volunteers who assist with many other aspects of running the charity.  They help us to manage our enquiries, attend events and medical conferences, raise awareness in local hospitals, and help us to moderate and offer peer support and experience on our member forum.

We are also exceptionally fortunate to enjoy the support of a group of experienced healthcare professionals, specializing in the field of endocrinology, who come together on our Clinical Advisory Panel to ensure that the information and resources we develop as an organization, are accurate and up to date.