Addison's Disease Self-Help Group

Behind the Research: U-RHYTHM

Researcher Dr Thomas Upton updates us the development of U-RHYTHM, a medical wearable device to measure hormones, including cortisol levels, in the body over the full 24 hours, as part of the ULTRADIAN study at Bristol. Read more
Lynsey's Story: Pickle Addiction Photoshoot

Lynsey who has Addison's used her skills as an interiors and still life stylist to create a colourful photoshoot to explore one of the symptoms Addison's: craving salt. Here she shares with us the story behind her pickle addiction photoshoot. Read more
Research Opportunity: Looking at Adrenal Crisis - The VIStAA Study

Do you have primary adrenal insufficiency - such as Addison’s disease or CAH? Please consider taking part in this research study looking at management of adrenal crisis, led by Lisa Shepherd, Endocrinology Advanced Nurse Practitioner/HEE/NIHR Clinical Doctoral Research Fellow at University Hospitals Birmingham NHS Foundation Trust and ADSHG Medical Trustee. Read more
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings. Read more

Supporting people affected by Adrenal Insufficiency
- together, we're stronger.

Addison's SOS - Sanctuary of Support

Addison's SOS - Sanctuary of Support for people with Adrenal Insufficiency Here when you feel lost, concerned, puzzled or poorly.

Information for Healthcare Professionals

Our charity has developed a range of clinical guidance publications in collaboration with our Clinical Advisory Panel (CAP) to inform and advise healthcare professionals.

Magazine

Our bi-annual members' magazine is packed with news and information to live well with Addison's Disease.

Our impact

1800	Members - join us!
32	Events each year - come along!
40	Fund raisers - have fun with us!

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Latest news

Joint letter to the Prime Minister regarding the lifting of virtually all infection control measures

ADSHG join National Voices and 56 healthcare charities in a joint letter to the Prime Minister, regarding the next phase of the COVID response, and the need to urgently address the needs of people who remain at high risk from the virus. Read more
Research Opportunity: Looking at Adrenal Crisis - The VIStAA Study

Do you have primary adrenal insufficiency - such as Addison’s disease or CAH? Please consider taking part in this research study looking at management of adrenal crisis, led by Lisa Shepherd, Endocrinology Advanced Nurse Practitioner/HEE/NIHR Clinical Doctoral Research Fellow at University Hospitals Birmingham NHS Foundation Trust and ADSHG Medical Trustee. Read more
Exclusive Access to 'Advanced Practice in Endocrinology Nursing' textbook

This Addison's Disease Day, publishers Springer are generously giving you exclusive access to the 'Advanced Practice in Endocrinology Nursing' and two of their chapters on adrenal insufficiency, by Sofia Llahana, Irene Mitchelhill, Phillip Yeoh and Marcus Quinkler. Read more

Latest events

ADSHG 2021 Online [email protected] inc Presentations and Medical Q&As - On demand

Once again, we took our Annual General Meeting (AGM) online whilst we allowed members to adjust to the changing pandemic roadmaps and implications. This members-only on-demand collection includes Q&As with our medic trustees and gives you a chance to hear updates from the ADSHG team on the last year and aims for the next. Read more
Start: 20^th July, 2021 at 12:45pm

End: 10^th June, 2022 at 4:30pm

Published: 20^th July, 2021

Updated: 23^rd July, 2021

Author:

Location: ADSHG Members Only Forum
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Virtual 2021 Virgin Money London Marathon

Please support our 2021 London Marathon #TeamAddisons runners: Andrew, Danielle, Hugo, Kelley, Vicki, Jen and Jo. These fantastic fundraisers are running to support our work to build a better future for those with Addison's and adrenal insufficiency. Read more
Start: 3^rd October, 2021 at 12:00am

End: 3^rd October, 2021 at 11:45pm

Published: 14^th March, 2021

Updated: 11^th September, 2021

Author:

Location: Online
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Great South Run 2021

Please support our 2021 Great Soun Run #TeamAddisons runners: Tim, Sarah, Jodi, Brooke and Alex. These fantastic fundraisers are running to support our work to build a better future for those with Addison's and adrenal insufficiency. Read more
Start: 17^th October, 2021 at 10:00am

End: 17^th October, 2021 at 12:00pm

Published: 29^th May, 2021

Updated: 15^th September, 2021

Author:

Location: Great South Run 2021, Southsea, Portsmouth, PO5 3AE
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Supporting people affected by Adrenal Insufficiency- together, we're stronger.

Our impact

1800

32

40

Make a donation

Supporting people affected by Adrenal Insufficiency
- together, we're stronger.