Information for Healthcare Professionals

Our charity has developed a range of clinical guidance publications in collaboration with our Clinical Advisory Panel (CAP) to inform and advise healthcare professionals.

Out & About

Emergency Wallet Card

The emergency wallet card is credit card sized and contains advice, authored by the ADSHG Clinical Advisory Panel, on the treatment required to prevent an adrenal crisis in the event of serious injury or illness. It is available in printed form and is sent free to every member when they become a member. Additional cards can be bought in our shop.

Adrenal Crisis Care Letter

This simple adrenal crisis protocol gives emergency medical treatment guidance for paramedics or hospital staff in the event of a person with Addison's suffering an adrenal crisis. This letter should be signed by your doctor. This document is also available in eight foreign languages for those who live or travel abroad.

Primary Care

Reducing risk of acute adrenal crisis

How to avoid precipitating an acute adrenal crisis (Article by Professor Wass)

Diagnosing Addison's : A Guide For GPs

This leaflet, 'Diagnosing Addison's: a guide for GPs', has been developed for the ADSHG by our Clinical Advisory Panel, led by Professor John Wass. It outlines the role of the GP in the early detection of Addison's disease and covers information on symptoms and clinical signs, primary care investigations and referral.

Caring for The Addison's Patient : Information For GPs

This leaflet, 'Caring for the patient with Addison's: information for GPs', has been developed for the ADSHG by our Clinical Advisory Panel, led by Professor John Wass. It outlines the role of the GP in managing Addison’s disease at each stage in the UK patient life cycle from diagnosis to old age.

Paramedic Training Pack

Published in 2019, with contributions from the Addison's Clinical Advisory Panel and South East Coast Ambulance Trust, this presentation summarises the latest paramedic best practices and the JRCalc (2017) guidelines. It includes patient testimony and case studies and is suitable for use in a teaching setting. It was produced for paramedics & first responders who want to gain a better understanding of Addison's Disease and emergency management protocols. To receive a copy, please contact us.

Tertiary Care

Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of medics and healthcare professionals (including dentists) and have been developed for the ADSHG by our Clinical Advisory Panel. They explain what level of extra medication and monitoring patients with Addison's disease will need in the event of most types of minor or major surgery or dental work.

Nursing The Addison's Patient : Notes for Nurses

'Nursing the Addison's patient: notes for nurses' was written with hospital ward nursing staff in mind, for those times when anyone with Addison's becomes an inpatient. This might be for elective surgery or during the recovery from an adrenal crisis.

Dental Care

Addison's Disease: Advice for Dentists

Latest

Addison's Disease: Advice for Dentists

The ADSHG surgical guidelines offer illustrative guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.
ADSHG adrenal crisis guidelines

The ADSHG adrenal crisis guidelines give emergency medical treatment guidance for ambulance or hospital staff in the event of a person with Addison's experiencing an adrenal crisis. These guidelines should be signed by your GP or specialist, to verify your condition.
Caring for the Irish patient: Information for GPs

The leaflet, 'Caring for the Irish patient with Addison's: information for GPs', has been developed for the ADSHG by the Addison's Ireland Clinical Advisory Panel (AICAP), led by Professor Christopher Thompson. It outlines the role of the GP in managing Addison’s disease at each stage in the patient lifecycle from diagnosis to old age, taking into account the health system in the Republic of Ireland..
Addison's Ireland

Addison's Ireland is the Irish branch of the Addison’s Disease Self-Help Group (ADSHG) with approximately 104 members from around the country both north and south. It organises regular meetings in Dublin and around the country and works to raise awareness of Addison's in Ireland.

Become a member

Membership is open to anyone with Addison's (or other forms of adrenal insufficiency that result in steroid dependence). Family members, friends or anyone with an interest adrenal medicine are also welcome. We are funded primarily through membership subscriptions, donations and fundraising activities.

Adrenal Crisis Can Kill
What Is Addison's Disease?
Jacks 5K run for Addisons Disease

Jacks godmothers 10yr old son has Addison’s disease, he was diagnosed when he was 8 and went into adrenal crisis.
Adrenal crisis letters

These emergency guidelines give medical treatment guidance for paramedics or hospital staff in the event of adrenal crisis. This guidance is relevant for those with steroid-dependence from any cause.
Living With Addison's Disease

Our new, ground-breaking, Top 75 best-selling book which marries evidence-based clinical best practice with the practical day-to-day hints & tips for living well with Addison's Disease.
An update on our websites

We launched our new website, addisonsdisease.org.uk earlier this year. Since then you’ve been sharing your thoughts and ideas about how we can improve it.
Become a member

Membership is open to anyone with Addison's (or other forms of adrenal insufficiency that result in steroid dependence). Family members, friends or anyone with an interest adrenal medicine are also welcome. We are funded primarily through membership subscriptions, donations and fundraising activities.
Information for patients

We provide a range of advice &information to people affected by Addison's Disease. Check out our resources here.
Great Scottish 10k Run - Places Available Now!

We're delighted to be participating in the Great Scottish 10k run in Glasgow on Sunday 29th September 2019. Places are available now for runners in support of ADSHG.
Great North Run for Addisons Disease

In 2015 my son was diagnosed with CAH

Research

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more