Skip over main navigation
  • Log in
  • Basket: (0 items)
Addison's Disease Self-Help Group
Emergency Help Join Us COVID-19
Menu
  • About Addison's Disease
    • Novel Coronavirus (COVID-19)
      • Novel Coronavirus (COVID-19) Guidance
      • Vaccines and Adrenal Insufficiency
    • What is Addison's Disease?
    • Newly diagnosed?
    • Living With Addison's Disease
    • Information for patients
    • Children and Young Adults
    • Information for employers
    • Downloadable publications
    • Research
      • Research Grants
      • 2020 Research Awards
      • Research Application
    • A-Z of Addison's Resources
  • Medics
    • COVID-19: Clinical Management guidance: Adrenal Insufficiency
    • Information for Paramedics and A&E
      • Emergency Treatment Information
      • ADSHG Paramedic Training in Adrenal Crisis Management
      • JRCALC 2017 guidelines on adrenal crisis
    • Information for clinicians
  • Membership latest
    • Renew your Membership
    • ADSHG Member Online News Feed
    • Magazine
      • Magazine - Winter 2020
      • Magazine - Summer 2020
      • Magazine - Winter 2019
      • All Magazines
    • Online forums (members-only)
    • Member's Social Meetings
    • Events
  • About us
    • Contact us
    • What we do
    • Our team
    • Our history
    • Addison's Ireland
    • Our clinical advisors
    • Useful links to other organisations
    • Privacy Policy
  • Get involved
    • Fundraising
      • Fundraising for the ADSHG
      • Fundraising ideas
      • Set up a fundraising page
      • Support one of our fundraisers
    • Become a member
    • Volunteering
    • Research
      • Research Grants
      • 2020 Research Awards
      • Research Application
    • Leave a legacy
  • News
    • News Homepage
    • Blog Homepage
    • Magazine
    • ADSHG on Facebook
    • ADSHG on Twitter
    • ADSHG on Instagram
    • ADSHG Press Releases
    • Events
  • Shop
    • Shop
    • Shop terms & conditions
  • Donate
    • Support one of our fundraisers
    • Donate to the ADSHG
    • Donate while you shop
  • Forum
  • Admin
    • Log in
  • Basket: (0 items)
  1. About us
  2. Our clinical advisors

Our Clinical Advisors

The Addison's Clinical Advisory Panel (CAP) is a group of endocrinologists with an interest in adrenal medicine. They advise the ADSHG on its clinical guidelines, write medical commentaries and review our publications for us. They are led by Professor John Wass of the Churchill Hospital, Oxford.

The members of our Clinical Advisory Panel include:

Professor Wiebke Arlt, DSc CCST MD.

Wiebke Arlt is the William Withering Chair of Medicine and founding Director of the Institute of Metabolism and Systems Research at the University of Birmingham, where she leads a large research group working on adrenal disorders and the role of steroids in health and disease. She is Honorary Consultant Endocrinologist at the Queen Elizabeth Hospital Birmingham, specialising on patients with adrenal and gonadal disorders, including Addison’s disease and congenital adrenal hyperplasia. Wiebke has written many original research and review articles on the management of adrenal insufficiency and has contributed to several guidelines, including the 2016 Endocrine Society USA clinical practice guideline on diagnosis and treatment of primary adrenal insufficiency and the 2016 Society for Endocrinology Endocrine Emergency Guidance on Adrenal Crisis. As Chair of the Society for Endocrinology Clinical Committee she has spearheaded the development of a new steroid emergency card to be released by the Department of Health and Social Care UK. She joined the ADSHG's clinical advisory panel in 2004.

Professor Will Drake.

Image of Professor William Drake

Professor Drake trained at the University of Oxford and the Royal London Hospital Medical College. After junior medical jobs in London and in Cape Town, South Africa, he returned to UK to specialise in Endocrinology at St Bartholomew's Hospital. Following a 12 month medicine and endocrinology fellowship in Vancouver, Canada, he returned to the UK and is now Consultant Physician/Professor of Clinical Endocrinology at St Bartholomew's Hospital. You can view Prof Drake's NHS profile here.

Dr Steve Kell, OBE, BmedSci, BM, BS, MRCGP.

Steve has been a GP for 20 years and is a Managing Partner at Larwood Health Partnership in Worksop. He was awarded an OBE in 2014, for services to primary care. “I have also been a GP commissioner, serving as Bassetlaw CCG Chair and Co-Chair of NHS Clinical Commissioners. I have recently been a Non-Executive Director at Primary Health Properties PLC, and I am a member of the Governing Body of Primary Care Commissioning CIC. I was diagnosed with Addison’s Disease in 2017. I continue to work as a full-time GP and I look forward to working with the board of ADSHG for the benefit of all members and patients.“ 

Professor Simon Pearce, MD FRCP.

Simon Pearce is a Professor of Endocrinology at Newcastle University and an Honorary Consultant Physician at the Royal Victoria Infirmary, Newcastle. He joined the Addison's Clinical Advisory Panel in 2005 and has collaborated with the ADSHG on several research projects. He trained in endocrinology at Hammersmith, London; in Boston, USA and latterly in Newcastle. Since 1993, he has being doing research into the molecular and genetic causes of endocrine conditions, with a particular interest in autoimmune disorders. Simon is the co-author of "Living with Addison's Disease – A Guide For People With Addison's, Supporters and Professionals", which won commended at the 2019 British Medical Association (BMA) Patient Information Awards.

Stuart Pinkerton.

Stuart has a family member who was diagnosed with Addison’s in 2010 and joined ADSHG at that time. He found the ADSHG invaluable for advice and support, especially in the first years. He has been a Dental Surgeon for 35 years working in Scotland and in Australia before settling in Oxford. Since 1990, he has run a successful Dental Practice in Oxfordshire.

For 10 years he was involved in his son’s football team being manager and treasurer. He was also ran their website. One of his most important tasks was to raise sponsorship which proved successful in keeping the yearly subscriptions affordable for the boys and their families. For a couple of seasons the team supported the Oxford Children’s Hospital by having their logo on their shirts.

Dr Georgina Russell B.Sc., B.M.,B.Ch.(Wales), M.R.C.P.(RCP), PhD.

Dr Georgina Russell

Consultant endocrinologist at NBT and a senior clinical research fellow at the University of Bristol. At the University, Dr Russell is a personal tutor, examiner and lecturer on the MSc Neuroscience course. She also co-supervises 2 pHD students and am a professional mentor on the MB ChB program. She has devised a novel pulsatile form of glucocorticoid delivery. She is currently working with colleagues on new pathways to improve the diagnostic and monitoring pathways of patients as well as examining the effects of glucocorticoid based therapeutics in patients and identifying strategies to decrease side effect burden.

Dr Helen Simpson, FRCP, PhD.

Dr Simpson has a broad clinical experience within endocrinology, with particular interest in late effects, young adult/transition endocrinology, neuroendocrine tumours and inherited endocrine tumour syndromes, Turner Syndrome, DSD and pituitary disease. She is currently focusing on late effects and transition services, and patient safety, in particular for adrenal insufficiency. Dr Simpson is an active member of the Society for Endocrinology and Editor of The Endocrinologist. She is also a member of the RCP Patient Safety Committee and part of the National Medicine Safety Joint Working Group. She is a key member of the working group, with RCP, SfE and NHSE&I on the development of the NHS Steroid Emergency Card, medical guidance on the prevention and emergency management of adrenal insufficiency, as well as the accompanying National Patient Safety Alert. 

Lisa Shepherd, RN (Adult), MSc, BSc (Hons), Dip H.E, NMP.

Lisa has worked in endocrinology since 1999, and currently is lead Advanced Nurse Practitioner at HSG, now part of University Hospitals Birmingham NHS Foundation Trust.

Within this role she case load manages patients with endocrine disorders, running nurse led clinics and supporting Consultant and other multidisciplinary clinics. This includes diagnosis and performing dynamic function tests, treatment, management and education of patients with long term, highly complex needs. Her area of interest is adrenal insufficiency and the support and management ofpatients with this condition. Her research has looked at the knowledge and experience of patients with Addison ’s disease and this work is being further developed during her PhD. She is also an active member of the Society for Endocrinology (SfE) Nurse Committee since 2007, including Chair, and an executive board member of the Federation of International Nurses in Endocrinology (F.I.N.E.). She is a member of the ADSHG and is passionate about improving the care of patients with Addison’s disease, working with patients their relatives and healthcare professionals to achieve this.

Dr Francesca Swords.

Dr Swords trained at Oxford and Barts before being appointed consultant physician and endocrinologist at the Norfolk and Norwich University Hospitals NHS Foundation Trust and Honorary Senior Lecturer at Norwich Medical School, University of East Anglia in 2008. She was appointed Clinical Director for diabetes and endocrinology in Norwich in 2011. In 2015 she was appointed Associate Medical Director and in 2016 became Chief of Medicine and Emergency Services for this hospital. Her main research interests are in adrenal pathology and radiotherapy and her major clinical interests are in endocrine neoplasia: pituitary, adrenal and thyroid tumours. In 2009 Dr Swords developed the online resource Endobible. More recently, she has played a key role in clinical safety, working with the East of England ambulance service to introduce address alerts for patients with Addison’s disease, and on the specialist endocrinology clinical reference group for NHS England. She joined the ADSHG's clinical advisory panel in 2016.

Professor John Wass, MA, MD, FRCP.

ADSHG Clinical Panel | Professor John Wass

Professor of Endocrinology, Oxford University

Head of the Department of Endocrinology at the Oxford Centre for Diabetes, Endocrinology and Metabolism, Churchill Hospital Oxford, until 2012. Research interests: pituitary tumours, acromegaly, adrenal disease, angiogenesis in endocrinology, genetics of osteoporosis, thyroid disease. Chair RCP Group on Weight and Health. Spokesperson on Obesity Royal College of Physicians Published over 410 articles, edited different textbooks; Oxford Textbook of Endocrinology (3 editions), Clinical Endocrine Oncology (2 editions), Oxford Handbook of Endocrinology (4 editions). President European Federation of Endocrine Societies from 2001-2003. Chairman Society for Endocrinology 2006-2009. President American Pituitary Society. Lifetime Achievement Award, Pituitary Society (America) 2017. Academic Vice President Royal College of Physicians 2012-2015. Presented acclaimed documentary ‘The Fantastical World of Hormones’ on BBC4, 2016. Current Getting It Right First Time Endocrine Lead, NHS England, visiting and inspecting all endocrine departments in the UK (127) and doing a national report.

Sam Westall.

Sam Westall is a specialist registrar in diabetes and endocrinology in North West England and is a clinical research fellow at St Helens and Knowsley Teaching Hospitals NHS Trust. He is currently enrolled in a research PhD at Edge Hill University, undertaking research into the psychological wellbeing of people with diabetes. He is a strong advocate for improving patient safety and wellbeing and has recently worked with the North West Ambulance Service to help enhance pre-hospital care of adrenal crisis.

 

Published: 15th March, 2019

Updated: 9th March, 2021

Author: Anonymised User

Share this page
  • Email
  • Facebook
  • Twitter

Latest

  • Preparing your own Emergency Kit for Addison's or Adrenal Insufficiency - 16/04/2021

    Preparing your own Emergency Kit for Addison's or Adrenal Insufficiency - 16/04/2021

    Preparing an emergency kit is something every person with Addison's or Adrenal Insufficiency should do once they have a diagnosis. Kits are sometimes provided ready-made by medics and can also be purchased online. Here we help you create your own emergency kit in seven steps.

  • Useful links to other organisations

    This section provides electronic links to the websites of other organisations in the UK and around the world that provide support and information to people with Addison's and adrenal insufficiency. As many people with Addison's also live with other autoimmune conditions too, we have included some links to relevant patient groups for these conditions.

  • Novel Coronavirus (COVID-19) - 16/04/2021

    Novel Coronavirus (COVID-19) - 16/04/2021

    Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.

  • Becca’s positive pants 10 mile walk

    Becca’s positive pants 10 mile walk

    To show how far I’ve come since my diagnosis nearly 3 years ago... from not being able to stand in the shower let alone walk 10 miles.

Most read

  • Updated NHS Steroid Card Released

    Updated NHS Steroid Card Released

    Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!

  • New Video: Managing medication and COVID-19 - 29/03/2020

    New Video: Managing medication and COVID-19 - 29/03/2020

    In our latest video, ADSHG Trustee and Professor of Endocrinology explains how to manage your medication should you get ill in the coming weeks.

  • Behind the News: Hydrocortisone as a Covid-19 Treatment - 09/12/2020

    Behind the News: Hydrocortisone as a Covid-19 Treatment - 09/12/2020

    In recent days, UK news networks have been sharing a story about new studies hailing Hydrocortisone as a Covid-19 treatment. We asked our medics to review the research and the emerging stories so that we can give you a balanced perspective while also updating you on any impacts to the drug supplies we depend on.

  • ADSHG in The Guardian - Rare Diseases edition!

    ADSHG in The Guardian - Rare Diseases edition!

    We are delighted that our article "Think Addison's disease - save a life", is featured in today's Guardian newspaper Rare Diseases supplement!

  • Receiving the COVID-19 Vaccine - Personal Stories

    Receiving the COVID-19 Vaccine - Personal Stories

    The COVID-19 vaccination campaign has kicked off - but what does it feel like to receive the COVID-19 vaccine? People with Addison's and adrenal insufficiency share their experiences of receiving the vaccine.

  • New UK Rare Diseases Framework launched

    New UK Rare Diseases Framework launched

    On 9 January 2021, the Department of Health and Social Care published the UK Rare Diseases Framework. But what does this policy mean for those with Addison’s disease, adrenal insufficiency and the rare disease community as a whole?

  • Research Update - Professor Arlt's Perspective - 17/03/2020

    Research Update - Professor Arlt's Perspective - 17/03/2020

    In 2017, Weibke Arlt, a member of our Clinical Advisory Panel, published research about Addison's and natural killer cells. In recent weeks, it's gone viral in light of the COVID-19 outbreak. We asked her to give her perspectives on what that means for us. She kindly tweeted her responses yesterday.

  • Coronavirus Vaccines and Adrenal Insufficiency

    Coronavirus Vaccines and Adrenal Insufficiency

    Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.

  • Easing lockdown: How are you feeling? - 10/5/2020

    Easing lockdown: How are you feeling? - 10/5/2020

    It's important to remember you're not alone in experiencing a range of emotions after adapting to lockdown life.

  • [Superceded] EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19 - 21/04/2020

    [Superceded] EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19 - 21/04/2020

    the European Journal of Endocrinology (EJE) editoral board has commissioned a new guidance series for the management of endocrine conditions during COVID-19. Included within this is clinical guidance for the management of Addison's disease and adrenal insufficiency. Here we take a look at this vital new guidance, so you can get a clearer view of what this means for you or your loved ones.

Tag cloud

AGM Conference Ireland sidebar
Research Grants

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more

Published: 22nd February, 2019

Updated: 19th February, 2021

Author:

Find us

Our Registered Office 
Starling House
1600 Bristol Parkway North
Bristol
BS34 8YU

Links

  • Contact us
  • Media Centre
  • Sitemap
  • Accessibility
  • Shop terms & Conditions
  • Privacy policy
  • Our policies

Follow us

  • Search
  • Facebook
  • Twitter
  • Youtube
  • Instagram
  • LinkedIn

Genetic Alliance logo Rare Disease logo

Copyright © Addison's Disease Self-Help Group Registered as Charity number 1179825

The information contained within this website is not intended to provide clinical diagnosis and/or personalised medical advice. It should not be treated as such. Always seek the advice of your doctor or a health care professional before starting any new treatment for your underlying condition. While we have taken every care to compile accurate information to reflect the current state of knowledge, we cannot guarantee its correctness and completeness. The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.