Skip over main navigation
  • Log in
  • Basket: (0 items)
Addison's Disease Self-Help Group
Emergency Help Join Us COVID-19
Menu
  • About Addison's Disease
    • Novel Coronavirus (COVID-19)
      • Novel Coronavirus (COVID-19) Guidance
      • Vaccines and Adrenal Insufficiency
    • What is Addison's Disease?
    • Newly diagnosed?
    • Living With Addison's Disease
    • Information for patients
    • Children and Young Adults
    • Information for employers
    • Downloadable publications
    • Research
      • Research Grants
      • 2020 Research Awards
      • Research Application
    • A-Z of Addison's Resources
  • Medics
    • COVID-19: Clinical Management guidance: Adrenal Insufficiency
    • Information for Paramedics and A&E
      • Emergency Treatment Information
      • ADSHG Paramedic Training in Adrenal Crisis Management
      • JRCALC 2017 guidelines on adrenal crisis
    • Information for clinicians
  • Membership latest
    • Membership help
    • Renew your Membership
    • ADSHG Member Online News Feed
    • Magazine
      • Magazine - Summer 2022
      • Magazine - Winter 2021
      • Magazine - Summer 2021
      • All Magazines
    • Online forums (members-only)
    • Member's Social Meetings
    • Events
  • About us
    • Contact us
    • What we do
    • Our team
    • Meet our Founder, Deana
    • Our history
    • Addison's Ireland
    • Our clinical advisors
    • Useful links to other organisations
    • Our Annual Reports
    • Privacy Policy
  • Get involved
    • Fundraising
      • Fundraising for the ADSHG
      • Fundraising ideas
      • Set up a fundraising page
      • Support one of our fundraisers
    • Become a member
    • Volunteering
    • Research
      • Research Grants
      • 2020 Research Awards
      • Research Application
    • Leave a legacy
  • News
    • News Homepage
    • Blog Homepage
    • Magazine
    • ADSHG on Facebook
    • ADSHG on Twitter
    • ADSHG on Instagram
    • ADSHG Press Releases
    • Events
  • Shop
    • Shop
    • Shop terms & conditions
  • Donate
    • Support one of our fundraisers
    • Donate to the ADSHG
    • Donate while you shop
  • Forum
  • Admin
    • Log in
  • Basket: (0 items)
  • Addison's Ireland
  1. About us
  2. What we do

Addison's Ireland

Addison's Ireland is the Irish branch of the Addison’s Disease Self-Help Group (ADSHG) with approximately 104 members from around the country both north and south. It organises regular meetings in Dublin and around the country and works to raise awareness of Addison's in Ireland.

Joining Addison's Ireland 

Membership of Addison's Ireland is open to anyone in Northern or Southern Ireland with Addison's or other forms of adrenal insufficiency that result in steroid dependence. Family members, friends or anyone with an interest in adrenal medicine are also welcome! You can join as an e-member receiving your material electronically through the website or as a postal member.

Please join the ADSHG in the usual way and those based in the Northern or Southern Ireland, will automatically become a member of Addison's Ireland too. You can join at any time of year and will receive contact details for the Addison's Ireland Co-ordinator Rachel Bracken when you join the ADSHG. We look forward to welcoming you!

Prof. Sherlock of Beaumont speaking at the Ireland AGM 2019 discussing adrenal insufficiency research in Ireland and the work the Beaumont endocrine foundation.

Events and meetings in Ireland

Meetings for Addison's Ireland members are held each year, usually in autumn. Meetings are announced in the ADSHG members' magazine, on our website and in the online forum. Some ADSHG members from Northern Ireland have attended meetings in the past and are always most welcome!

Meetings range from causal socials to our formal AGM. At the AGM we are joined by adrenal specialists for "ask the endo" sessions, emergency hydrocortisone injection practise and talks on key issues affecting those with Addison's and adrenal insufficiency in Ireland. There is more information about our events on our website.

Shane Nicholl memorial event at St Peter's GAA, Warrenpoint, Co. Down.

ADSHG members with Eugene (Club Chairman), Mark Nicholl (Shane's dad) and Marty Clarke (Gaelic footballer) with the newly designed football jersey and cake.

Addison's Ireland Forum

The Addison's Ireland online forum is a confidential member-only forum which allows members to communicate with each other, share information and experiences, and get answers to questions relating to Addison’s disease. 

To access the online forum, you must be a member of the ADSHG. All current members of Addison's Ireland can access the online forum which as a specific forum topic area dedicated to Addison's Ireland, for discussion of any specific issues regarding the Irish health system.

Visit the Addison's Ireland Forum

Addison's Ireland publications

The publication 'Caring for the Irish patient with Addison's: information for GPs', has been developed with information about the healthcare system specific for people with Addison's in Ireland.

All the other publications from the ADSHG are also available to Addison's Ireland members and they are available for free download in the publications centre. Print copies of these publications (except those indicated) are sent as part of the postal member's joining pack. 

Addison's Ireland Research

There are many exciting things in the pipeline! We have deployed the Shane Nicholl fund to Professor Mark Sherlock of Beaumont Hospital, for his research in developing an adrenal database on the island of Ireland. Shane Nicholl was a 10-year old boy from Warrenpoint Co. Down who died tragically in 2016 from undiagnosed Adrenal Crisis.

We would love to see Adrenal Insufficiency being listed on the long-term illness scheme to have medications paid for. The ADSHG have previously raised parliamentary question to this effect but didn't have the hard data on the number of people affected. This research and the adrenal database made possible by the Shane Nicholl fund will help us with this and many other future initiatives. Whilst the immediate impact of COVID-19 has delayed efforts into this research due to the team being redeployed to respond to the pandemic, critical progress has been made. The charity remains committed to investing into Addison's disease and endocrine research. We will continue to provide updates in our regular magazine and emails. To find out more about ADSHG's other research work and grants awarded, please visit our research page.

HSE Living Well Programme

Living Well is a free group self-management programme. As living with a long-term health condition can be challenging, the Living Well programme supports you to develop the skills which will help you to live well with a long-term health condition(s). The Living Well programme has proven to be effective in helping people to manage their health conditions better.

Visit the HSE Living Well website to find out more.

We are absolutely brimming with ideas to improve the lives of those with Addison's all over Ireland, but we need your help. Please get in touch if you are interested in volunteering or donate to support our vital work. 

Published: 16th September, 2019

Updated: 24th May, 2022

Author: Vick Smith

Share this page
  • Email
  • Facebook
  • Twitter

Latest

  • Angel Steps

    Angel Steps

    I'm raising money for the Addison's Disease Self Help Group so that they can continue to support people with Addison's and adrenal insufficiency. Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.

  • London Landmarks Half Marathon 2023

    London Landmarks Half Marathon 2023

    The London Landmarks Half Marathon takes place on 2 April 2023 across central London. Whether this is your first running event, or you're a seasoned pro, put on your trainers for our charity, join #TeamAddisons and help make a difference to people's lives.

  • Surgical Guidelines

    Surgical Guidelines

    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

  • Our Team

    Our charity is governed by a team of volunteer trustees and run day-to-day by our Operations Manager, supported by our wonderful community of volunteers.

Most read

  • Sick Day Rules

    Sick Day Rules

    Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.

  • Coronavirus Vaccines and Adrenal Insufficiency

    Coronavirus Vaccines and Adrenal Insufficiency

    Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.

  • The Emergency Injection for the treatment of Adrenal Crisis

    The Emergency Injection for the treatment of Adrenal Crisis

    Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.

  • Novel Coronavirus (COVID-19) - 24/02/2021

    Novel Coronavirus (COVID-19) - 24/02/2021

    Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.

  • Adrenal Crisis Can Kill

    Adrenal Crisis Can Kill

  • What is Addison's Disease?

    What is Addison's Disease?

    Find out more about Addison's disease and adrenal insufficiency and and how they are treated.

  • Why Salt?

    Why Salt?

    Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.

  • Updated NHS Steroid Card Released

    Updated NHS Steroid Card Released

    Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!

  • Receiving the COVID-19 Vaccine - Personal Stories

    Receiving the COVID-19 Vaccine - Personal Stories

    The COVID-19 vaccination campaign has kicked off - but what does it feel like to receive the COVID-19 vaccine? People with Addison's and adrenal insufficiency share their experiences of receiving the vaccine.

  • Surgical Guidelines

    Surgical Guidelines

    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

Tag cloud

AGM Conference Ireland sidebar
Research Grants

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more

Published: 22nd February, 2019

Updated: 30th June, 2022

Author:

Find us

Our Registered Office 
Starling House
1600 Bristol Parkway North
Bristol
BS34 8YU

Links

  • Contact us
  • Media Centre
  • Sitemap
  • Accessibility
  • Shop terms & Conditions
  • Privacy policy
  • Our policies

Follow us

  • Search
  • Facebook
  • Twitter
  • Youtube
  • Instagram
  • LinkedIn

Genetic Alliance logo Rare Disease logoESE Affiliated

Copyright © Addison's Disease Self-Help Group Registered as Charity number 1179825

The information contained within this website is not intended to provide clinical diagnosis and/or personalised medical advice. It should not be treated as such. Always seek the advice of your doctor or a health care professional before starting any new treatment for your underlying condition. While we have taken every care to compile accurate information to reflect the current state of knowledge, we cannot guarantee its correctness and completeness. The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.

Manage Cookie Preferences