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  1. About Addison's Disease
  2. Downloadable publications

Publications

We are grateful to the Society for Endocrinology for their generous funding this year's review work on selected ADSHG publications. https://www.endocrinology.org/

ADSHG Posters

ADSHG Posters

Help raise awareness of Addison's disease and adrenal insufficiency by sharing our posters. Read more

Published: 7th August, 2023

Updated: 12th October, 2023

Author: Chloe Mezzetti

RCGP Poster: Information for your GP

RCGP Poster: Information for your GP

Our RCGP poster is an A4 printout that can be used to let your GP know about the RCGP course on Addison's and adrenal insufficiency. Read more

Published: 23rd May, 2023

Updated: 14th June, 2023

Author: Chloe Mezzetti

Surgical Guidelines

Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel. Read more

Published: 5th July, 2022

Updated: 8th August, 2023

Author: Anonymised User

What is Addison's Leaflet?

What is Addison's Leaflet?

Our leaflet, 'What is Addison's', was developed for use in education settings by the ADSHG with support of our Clinical Advisory Panel (CAP), led by Professor John Wass. It provides an introduction to the condition, it's history, treatment and some of the people who've lived full and active lives while managing Addison's Disease. Read more

Published: 16th August, 2021

Author: Vick Smith

Steroid Emergency Cards

Steroid Emergency Cards

People who take steroid medications every day of their life will need to carry a steroid card which identifies to healthcare professionals that their medication cannot be stopped. Find out more about the cards available. Read more

Published: 9th May, 2021

Updated: 12th June, 2023

Author: Philippa Sharman

Diagnosis Infographics.

Diagnosis Infographics. "Think Addison's disease - save a life"

Download the CoMICs diagnosis of Addison's disease infographics and accompanying article "Think Addison's disease - save a life", as featured in the Guardian newspaper. Read more

Published: 9th May, 2021

Updated: 8th August, 2023

Author: Philippa Sharman

Fasting with Adrenal Insufficiency

Fasting with Adrenal Insufficiency

A patient leaflet for people living with adrenal insufficiency who are thinking about fasting for Ramadan. It gives tips on reducing the risks of becoming ill if you decide to fast, when it's advisable not to fast and offers alternatives to those who are considered too high risk for fasting. Read more

Published: 6th April, 2021

Updated: 15th August, 2023

Author: Vick Smith

How to give an emergency injection - leaflets for your kit

How to give an emergency injection - leaflets for your kit

Having the instructions for your injection kit helps you, or anyone coming to your aid, to inject you. We have a selection of guides your can print, fold and add to your kit. Be careful to choose instructions that match the type of medication that you have available. Read more

Published: 13th October, 2020

Updated: 11th May, 2023

Author: Vick Smith

Printable Hospital Stickers

Printable Hospital Stickers

The ADSHG drugs chart steroid alert stickers are intended for people with Addison's to take with them for day case and inpatient surgical procedures to alert nursing and medical staff to their steroid-dependence and their time-critical need for steroid medication when unwell. Read more

Published: 25th September, 2020

Updated: 13th December, 2021

Author: Vick Smith

Diagnosing Addison's Disease : A Guide For GPs

Diagnosing Addison's Disease : A Guide For GPs

Our leaflet, 'Diagnosing Addison's: a guide for GPs', has been developed for the ADSHG by our Clinical Advisory Panel (CAP), led by Professor John Wass. It outlines the role of the GP in the early detection of Addison's. Read more

Published: 16th July, 2020

Updated: 13th September, 2023

Author: Anonymised User

Personal Emergency Plan

Personal Emergency Plan

This Personal Medical Emergency Plan template is a useful way of summarising your personal medical needs in the event of an emergency, for friends, family or work colleagues. Read more

Published: 16th July, 2020

Author: Anonymised User

Posters for Health Professionals: Emergency Kits Available Here

Posters for Health Professionals: Emergency Kits Available Here

Posters for Health Professionals: Emergency Kits Available Here Read more

Published: 27th May, 2020

Author: Vick Smith

About the Addison's Disease Self Help Group

About the Addison's Disease Self Help Group

This leaflet, About the Addisons Disease Self Help Group outlines the scope of the Addison's Disease Self Help Group. This leaflet is designed to help people with Addison's, their carers, medics and other interested parties to undertand our work and how we can support those with Addison's and Adrenal Insufficiency. Read more

Published: 28th January, 2020

Author: Vick Smith

ADSHG adrenal crisis guidelines

ADSHG adrenal crisis guidelines

The ADSHG adrenal crisis guidelines give emergency medical treatment guidance for ambulance or hospital staff in the event of a person with Addison's experiencing an adrenal crisis. These guidelines should be signed by your GP or specialist, to verify your condition. Read more

Published: 16th September, 2019

Updated: 22nd June, 2022

Author: Vick Smith

Caring for the Irish patient: Information for GPs

Caring for the Irish patient: Information for GPs

The leaflet, 'Caring for the Irish patient with Addison's: information for GPs', has been developed for the ADSHG by the Addison's Ireland Clinical Advisory Panel (AICAP), led by Professor Christopher Thompson. It outlines the role of the GP in managing Addison’s disease at each stage in the patient lifecycle from diagnosis to old age, taking into account the health system in the Republic of Ireland.. Read more

Published: 16th September, 2019

Updated: 17th March, 2022

Author: Vick Smith

Nursing The Addison's Patient

Nursing The Addison's Patient

'Nursing the Addison's patient: notes for nurses' was written with hospital ward nursing staff in mind, for those times when anyone with Addison's becomes an inpatient. This might be for elective surgery or during the recovery from an adrenal crisis. Read more

Published: 19th March, 2019

Updated: 7th August, 2023

Author: Anonymised User

Caring for the Addison's Patient: for GPs

Caring for the Addison's Patient: for GPs

This guide outlines the role of the GP in managing Addison’s disease at each stage in the UK patient life cycle from diagnosis to old age. Read more

Published: 19th March, 2019

Updated: 16th May, 2023

Author: Anonymised User

Making the most of your appointments

Making the most of your appointments

Make the most of your appointments with our medical summary form and Consultation Reference Guide. Read more

Published: 19th March, 2019

Updated: 14th August, 2023

Author: Anonymised User

When An Employee Has Addison's

When An Employee Has Addison's

'When an employee has Addison's' leaflet was written to help those newly diagnosed – or changing jobs – to explain their condition to an employer. Read more

Published: 19th March, 2019

Updated: 25th October, 2023

Author: Anonymised User

Managing Your Addison's

Managing Your Addison's

This leaflet, Managing Addison's disease, has been developed by our Clinical Advisory Panel. It provides a summary of the key points everyone with Addison's needs to know to manage their health. NEW: Printer-friendly version. Read more

Published: 19th March, 2019

Updated: 28th January, 2020

Author: Anonymised User

When A Student Has Addison's : A Guide For Schools & Parents

When A Student Has Addison's : A Guide For Schools & Parents

Our booklet "When a student has Addison's: a guide for schools and parents" was written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment. Read more

Published: 19th March, 2019

Updated: 10th August, 2023

Author: Anonymised User

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Latest

  • Jennifer's fundraising for Addison's disease

    I'm raising money for the Addison's Disease Self Help Group so that they can continue to support people with Addison's and adrenal insufficiency. Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.

  • Behind the Research: U-RHYTHM

    Behind the Research: U-RHYTHM

    Dr Thomas Upton updates us on the development of U-RHYTHM, a wearable device to measure hormones, including cortisol levels, in the body over the full 24 hours, following the release of their clinical trial study,

  • Behind the Research: The PULSES trial  - Pulsatile Cortisol Infusion Pump

    Behind the Research: The PULSES trial - Pulsatile Cortisol Infusion Pump

    Dr Georgina Russell updates us on The PULSES trial, looking at the effect of pulsatile cortisol pump therapy on quality of life, mood, sleep, behavioural and cognitive processing and metabolism.

  • Getting the Flu Jab

    Getting the Flu Jab

    Say No to Flu! Book your flu jab today. There is no need to miss out, as it is free to people who are steroid-dependent (everyone with Addison's disease and adrenal insufficiency). Dr Prete, Consultant Endocrinologist, explains more about the importance of getting your flu jab when you are steroid-dependent.

Most read

  • Sick Day Rules

    Sick Day Rules

    Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.

  • What is Addison's Disease?

    What is Addison's Disease?

    Find out more about Addison's disease and adrenal insufficiency and and how they are treated.

  • Adrenal Crisis Can Kill

    Adrenal Crisis Can Kill

  • The Emergency Injection for the treatment of Adrenal Crisis

    The Emergency Injection for the treatment of Adrenal Crisis

    Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.

  • Coronavirus Vaccines and Adrenal Insufficiency

    Coronavirus Vaccines and Adrenal Insufficiency

    Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.

  • Why Salt?

    Why Salt?

    Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.

  • Novel Coronavirus (COVID-19) - 02/10/2023

    Novel Coronavirus (COVID-19) - 02/10/2023

    Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.

  • Updated NHS Steroid Card Released

    Updated NHS Steroid Card Released

    Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!

  • Addison's & Adrenal Insufficiency: Advice for Dentists

    Addison's & Adrenal Insufficiency: Advice for Dentists

    The ADSHG guidelines offer illustrative guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.

  • Surgical Guidelines

    Surgical Guidelines

    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

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Research Grants

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more

Published: 22nd May, 2023

Updated: 9th June, 2023

Author:

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The information contained within this website is not intended to provide clinical diagnosis and/or personalised medical advice. It should not be treated as such. Always seek the advice of your doctor or a health care professional before starting any new treatment for your underlying condition. While we have taken every care to compile accurate information to reflect the current state of knowledge, we cannot guarantee its correctness and completeness. The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.

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