When A Student Has Addison's : A Guide For Schools & Parents

Our booklet "When a student has Addison's: a guide for schools and parents" was written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment.

The booklet covers the following information:

What is Addison's
Day to day symptoms
Managing medication and fluids
Medical jewellery and other documentation
The Individual Healthcare Plan
Absences and support for education missed
Outside the classroom: school trips and sports
Exam arrangements
Transition to another school
Responding to sickness, injury and emergencies
Legislative guidance and further information
Suggested Individual Healthcare Plan template
Other essential contacts

Download Booklet

Latest

Addison's Disease: Advice for Dentists

The ADSHG surgical guidelines offer illustrative guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.
ADSHG adrenal crisis guidelines

The ADSHG adrenal crisis guidelines give emergency medical treatment guidance for ambulance or hospital staff in the event of a person with Addison's experiencing an adrenal crisis. These guidelines should be signed by your GP or specialist, to verify your condition.
Caring for the Irish patient: Information for GPs

The leaflet, 'Caring for the Irish patient with Addison's: information for GPs', has been developed for the ADSHG by the Addison's Ireland Clinical Advisory Panel (AICAP), led by Professor Christopher Thompson. It outlines the role of the GP in managing Addison’s disease at each stage in the patient lifecycle from diagnosis to old age, taking into account the health system in the Republic of Ireland..
Addison's Ireland

Addison's Ireland is the Irish branch of the Addison’s Disease Self-Help Group (ADSHG) with approximately 104 members from around the country both north and south. It organises regular meetings in Dublin and around the country and works to raise awareness of Addison's in Ireland.

ADSHG adrenal crisis guidelines

The ADSHG adrenal crisis guidelines give emergency medical treatment guidance for ambulance or hospital staff in the event of a person with Addison's experiencing an adrenal crisis. These guidelines should be signed by your GP or specialist, to verify your condition.
Caring for the Irish patient: Information for GPs

The leaflet, 'Caring for the Irish patient with Addison's: information for GPs', has been developed for the ADSHG by the Addison's Ireland Clinical Advisory Panel (AICAP), led by Professor Christopher Thompson. It outlines the role of the GP in managing Addison’s disease at each stage in the patient lifecycle from diagnosis to old age, taking into account the health system in the Republic of Ireland..
Magazine

Our bi-annual members' magazine is packed with news and information to live well with Addison's Disease.
Nursing The Addison's Patient

'Nursing the Addison's patient: notes for nurses' was written with hospital ward nursing staff in mind, for those times when anyone with Addison's becomes an inpatient. This might be for elective surgery or during the recovery from an adrenal crisis.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.
Caring for the Addison's Patient

This guide outlines the role of the GP in managing Addison’s disease at each stage in the UK patient life cycle from diagnosis to old age.
Diagnosing Addison's Disease : A Guide For GPs

Our leaflet, 'Diagnosing Addison's: a guide for GPs', has been developed for the ADSHG by our Clinical Advisory Panel (CAP), led by Professor John Wass. It outlines the role of the GP in the early detection of Addison's.
Medical Summary

The new medical summary form is an easy way to record the medications you are currently taking.
Personal Emergency Plan

This Personal Medical Emergency Plan template is a useful way of summarising your personal medical needs in the event of an emergency, for friends, family or work colleagues.
When An Employee Has Addison's

'When an employee has Addison's' leaflet was written to help those newly diagnosed – or changing jobs – to explain their condition to an employer.

Adrenal Crisis Can Kill
What Is Addison's Disease?
Jacks 5K run for Addisons Disease

Jacks godmothers 10yr old son has Addison’s disease, he was diagnosed when he was 8 and went into adrenal crisis.
Adrenal crisis letters

These emergency guidelines give medical treatment guidance for paramedics or hospital staff in the event of adrenal crisis. This guidance is relevant for those with steroid-dependence from any cause.
Living With Addison's Disease

Our new, ground-breaking, Top 75 best-selling book which marries evidence-based clinical best practice with the practical day-to-day hints & tips for living well with Addison's Disease.
An update on our websites

We launched our new website, addisonsdisease.org.uk earlier this year. Since then you’ve been sharing your thoughts and ideas about how we can improve it.
Become a member

Membership is open to anyone with Addison's (or other forms of adrenal insufficiency that result in steroid dependence). Family members, friends or anyone with an interest adrenal medicine are also welcome. We are funded primarily through membership subscriptions, donations and fundraising activities.
Information for patients

We provide a range of advice &information to people affected by Addison's Disease. Check out our resources here.
Great Scottish 10k Run - Places Available Now!

We're delighted to be participating in the Great Scottish 10k run in Glasgow on Sunday 29th September 2019. Places are available now for runners in support of ADSHG.
Great North Run for Addisons Disease

In 2015 my son was diagnosed with CAH

Research

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more