When A Student Has Addison's : A Guide For Schools & Parents

Our booklet "When a student has Addison's: a guide for schools and parents" was written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment.

The booklet covers the following information:

What is Addison's
Day to day symptoms
Managing medication and fluids
Medical jewellery and other documentation
The Individual Healthcare Plan
Absences and support for education missed
Outside the classroom: school trips and sports
Exam arrangements
Transition to another school
Responding to sickness, injury and emergencies
Legislative guidance and further information
Suggested Individual Healthcare Plan template
Other essential contacts

Download Booklet

Latest

Adrenal Insufficiency due to Autoimmune Polyglandular Syndrome (APS) type I and type II

For some, their Addison's diagnosis leads on from or to other autoimmune conditions. Those with Addison's together with underactive thyroid, dlabetes insipidus, hepatitis, pernicious anaemia, type 1 diabetes or vitiligo, might have a type of autoimmune polyglandular syndrome. Monitoring to track the onset of related conditions can help people reach earlier diagnosis and work towards a better quality of life.
Twitter Chat - Don’t Wait, Educate

Join our latest #AddisonsQA Twitter Chat on Addison's Disease Day for this year's theme 'Don’t wait, educate'. Our medical experts and others living with Addison's and adrenal insufficiency are ready to share their tips and answer questions.
Addison's Disease Day 2022

Join us on Sunday 29th May for Addison's Disease Day 2022! We're asking everyone around the world who is affected by Addison’s disease and adrenal insufficiency to join us in a day of raising awareness.
My fundraiser for the Addison's Disease Self Help Group

I'm raising money for the Addison's Disease Self Help Group so that they can continue to support people with Addison's and adrenal insufficiency. Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.

What is Addison's Leaflet?

Our leaflet, 'What is Addison's', was developed for use in education settings by the ADSHG with support of our Clinical Advisory Panel (CAP), led by Professor John Wass. It provides an introduction to the condition, it's history, treatment and some of the people who've lived full and active lives while managing Addison's Disease.
Steroid Emergency Cards

People who take steroid medications every day of their life will need to carry a steroid card which identifies to healthcare professionals that their medication cannot be stopped. Find out more about the cards available.
Diagnosis Infographics. "Think Addison's disease - save a life"

Download the CoMICs diagnosis of Addison's disease infographics and accompanying article "Think Addison's disease - save a life", as featured in the Guardian newspaper.
Fasting with Adrenal Insufficiency

A patient leaflet for people living with adrenal insufficiency who are thinking about fasting for Ramadan. It gives tips on reducing the risks of becoming ill if you decide to fast, when it's advisable not to fast and offers alternatives to those who are considered too high risk for fasting.
How to give an emergency injection - leaflets for your kit

Having the instructions for your injection kit helps you, or anyone coming to your aid, to inject you. We have a selection of guides your can print, fold and add to your kit. Be careful to choose instructions that match the type of medication that you have available.
Printable Hospital Stickers

The ADSHG drugs chart steroid alert stickers are intended for people with Addison's to take with them for day case and inpatient surgical procedures to alert nursing and medical staff to their steroid-dependence and their time-critical need for steroid medication when unwell.
Diagnosing Addison's Disease : A Guide For GPs

Our leaflet, 'Diagnosing Addison's: a guide for GPs', has been developed for the ADSHG by our Clinical Advisory Panel (CAP), led by Professor John Wass. It outlines the role of the GP in the early detection of Addison's.
Personal Emergency Plan

This Personal Medical Emergency Plan template is a useful way of summarising your personal medical needs in the event of an emergency, for friends, family or work colleagues.
Posters for Health Professionals: Emergency Kits Available Here

Posters for Health Professionals: Emergency Kits Available Here
About the Addison's Disease Self Help Group

This leaflet, About the Addisons Disease Self Help Group outlines the scope of the Addison's Disease Self Help Group. This leaflet is designed to help people with Addison's, their carers, medics and other interested parties to undertand our work and how we can support those with Addison's and Adrenal Insufficiency.

Sick Day Rules

Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
Novel Coronavirus (COVID-19) - 24/02/2021

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
Adrenal Crisis Can Kill
What is Addison's Disease?

Find out more about Addison's disease and adrenal insufficiency and and how they are treated.
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Receiving the COVID-19 Vaccine - Personal Stories

The COVID-19 vaccination campaign has kicked off - but what does it feel like to receive the COVID-19 vaccine? People with Addison's and adrenal insufficiency share their experiences of receiving the vaccine.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more