Are you newly diagnosed with Addison's Disease or adrenal insufficiency? We are here to help.

Become a member

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland. We aim to support our members to manage their condition and to promote better medical understanding of Addison's, working in co-operation with leading adrenal specialists.

By joining as a member, you get access to a range of additional resources and support for your condition. You'll also be joining a vibrant, supportive, engaged community of people affected by Addison's. Together, we're stronger.

Become a member

Get Ready

Diagnosis can stir a range of emotions from relief to fear. It's important to learn as much as you can about the condition - this knowledge may save your life.

Newly Diagnosed? Get Ready!

Adrenal crisis can kill - be prepared

Around 8% of people with Addison's Disease experience an adrenal crisis each year; some people more frequently than others. It's vitally important you learn the signs of an impending crisis and what to do in this medical emergency.

Newly Diagnosed - What Is Adrenal Crisis

Emergency Advice

Understand the "sick day rules"

People with adrenal insufficiency are particularly vulnerable to adrenal crisis being triggered by seemingly "minor" ailments, including vomiting, diarrhoea, colds & flu. It's important to recognise the early symptoms of a bug or cold and adjust your steroid replacement medication accordingly.

Newly Diagnosed - Sick Day Rules

Know how to work with your doctor & paramedics

As Addison’s is a rare condition, your GP may never have treated a patient with this before. The ambulance services in United Kingdom & Ireland are continually improving their support of people with Addison's, thanks to the lobbying and advocacy of our charity and its volunteers over recent years. 

Newly Diagnosed - Work With Your Doctor

Newly Diagnosed - Register with your Local Ambulance Service

Be kind to yourself

These articles provide practical advice for people with Addison's Disease, particularly in the weeks following diagnosis.