Who we are Our team Our Team Our charity is governed by a team of volunteer trustees in accordance with our constitution and run day-to-day by our Chief Executive, supported by our wonderful community of volunteers. Chief Executive Neil McClements joined the Addison’s Disease Self-Help Group in October 2018 as Chief Executive. He is a board member of Haemochromatosis UK and a trustee of the British Liver Trust. Neil is an advisor to NHS England and sits on the NHS Primary Care Digital Transformation Clinical Advisory Group. In 2018, Neil was winner of the inaugural national Patient Safety Learning Awards and was a finalist in the AbbVie Better Health Awards. He can be contacted via email : [email protected] Board of Trustees The charity has 8 trustees with a Chair, Vice-Chair, Treasurer & Deputy Treasurer roles. The trustees may be contacted by email at [email protected] Andrew Glass, OBE Chair of Board of Trustees Originally from Cheshire, Andrew Glass has spent most of his adult life living overseas. Andrew is currently Director of the British Council in Thailand and leads its work across South East Asia. He has also worked for the British Council in Spain, Italy, Slovenia, Germany, UK, Serbia and Kuwait. His first degree was in German and Politics and he followed this up with an MA in Teaching English and a Diploma in Management. Andrew was awarded an OBE in the March 2012 Honours, list for his work in cultural relations. He was diagnosed with Addison’s Disease in 2001 after a long period of illness. He first contributed to the group as a writer for the Newsletter where he shared his experiences of living with Addison’s Disease in far-flung places and became a trustee in 2014. He became Chair in June 2018 during his second term as a trustee. Andrew can be contacted via email : [email protected] Amanda Colman Vice-Chair of Board of Trustees Amanda specialises in governance and risk management in the technology arena and has several years of experience as a Trustee for a housing association in Surrey. She was diagnosed with Addison’s in 2017 and volunteered to become a Trustee of the ADSHG as she is passionate about the work the charity does for the Addison’s community, having personally benefited from its services. Amanda is a keen walker and amateur philosopher. Amanda can be contacted via email : [email protected] Paul McNamara Honorary Treasurer Paul is an Irish citizen living in London and has extensive business and board governance experience, having held a variety of senior roles in financial services in the UK and Ireland. He is currently Chief Executive of EValue Ltd. Paul is a qualified actuary and holds an MBA as a graduate of Cass Business School, where he remains a member of the MBA Advisory Board. His hobbies including dog walking, music and skiing. Stuart Pinkerton Deputy Honorary Treasurer Stuart has a family member who was diagnosed with Addison’s in 2010 and joined ADSHG at that time. He found the ADSHG invaluable for advice and support, especially in the first years. He has been a Dental Surgeon for 35 years working in Scotland and in Australia before settling in Oxford. Since 1990, he has run a successful Dental Practice in Oxfordshire. For 10 years he was involved in his son’s football team being manager and treasurer. He was also ran their website. One of his most important tasks was to raise sponsorship which proved successful in keeping the yearly subscriptions affordable for the boys and their families. For a couple of seasons the team supported the Oxford Children’s Hospital by having their logo on their shirts. Margaret Fox Trustee Margaret was diagnosed with Addison’s in 1997 after almost a year of feeling ill and losing weight. Soon after this, she was also diagnosed with diabetes. She became a member of ADSHG and feels strongly that the Group is an invaluable support to everyone with the condition. Having worked in local NHS hospital administration, she is now retired and organises our regular social meeting in Norwich on top of her responsibilities as a trustee of the Group. Professor Simon Pearce Clinical Advisory Panel Liason Prof Pearce is a senior consultant at the endocrine department at the Royal Victoria Infirmary, Newcastle, and a professor of endocrinology at Newcastle University’s Institute of Genetic Medicine. He has been a member of the ADSHG’s clinical advisory panel since 2005. Prof Pearce is also an active member of the Society for Endocrinology (UK), where he is the Chair of the Programme Committee, and has held board roles with the British and European Thyroid Associations. Phillip Yeoh Trustee & Nursing Advisor Phillip was born in Malaysia but moved to UK 30 years ago. He completed my nursing training in London. After 10 years stint at University College Hospitals, he became the endocrine research charge nurse at Bart’s Hospital endocrine department. He then moved to set up the Endocrine and Diabetes department at The London Clinic in 2001. He is also a member of the nurses working party of European Society for Endocrinology, a member of Society for Endocrinology and the Federation of International Nurses in Endocrinology. He has been involved with the ADSHG for several years. Rachel Bracken Trustee & Addison's Ireland Coordinator Rachel joined the ADSHG a few days after being diagnosed with Addisons in September 2011 and immediately felt tremendous support and formed great friendships with other members. She attended the Irish AGM in Spring 2012 and offered to help in any way possible. Together with another member, who worked in the Irish ambulance service and whose son was newly diagnosed with Addisons, I got an adrenal crisis ambulance protocol implemented throughout the Republic of Ireland by 2015. In early 2018 the previous Irish coordinator stepped down and Rachel gladly took up challenge and we have lots of exciting projects on the go! She really loves helping and giving something back to the charity that has helped her family so much. Our Charitable Constitution Our charity is a Charitable Incorporated Organisation (CIO) regulated by the Charity Commission. The charity is run in accordance with our constitution for the benefit of people affected by Addison's Disease in the United Kingdom & Republic of Ireland.