Preparing an emergency kit is something every person with Addison's or Adrenal Insufficiency should do once they have a diagnosis. Kits are sometimes provided ready-made by medics and can also be purchased online. Here we help you create your own emergency kit in seven steps. Read more
On Saturday 29th February, Rare Disease Day, we held another tweet chat this time answering questions on parents and carers. Read more
Getting flu is a thoroughly miserable experience. However, if you are steroid-dependent, the consequences can be very serious, with around a quarter of adrenal crises requiring hospital admission resulting from flu-like illnesses (ADSHG member survey 2013). Fortunately, flu can be prevented – and surely, prevention is better than cure? Read more
On Tuesday 2nd October, we held another tweet chat this time answering questions on sport and exercise for those with steroid dependency. Read more
We keep you updated with inspiring stories on our ADSHG blog.
International Addison's Day: Catch up on the highlights. On 29th May 2020 people with Adrenal Insufficiency painted social media blue purple and green, making new friends, sharing experiences and important advice with medics, family, friends and followers. Read more
During International Addison's Day people with Addison's or Adrenal Insufficiency around the world shared pictures of their kits as part of our #ShareYourKit campaign. Read more
On International Addison's Day, 29th May, we met for a Twitter Chat on the theme of 'Being Prepared - Getting Ready For Emergencies'. Here are some of the highlights. Read more
This International Addison's Day, Springer Publishing are generously giving you exclusive access to 'Advanced Practice in Endocrinology Nursing' book chapters on Adrenal Insufficiency. Read more
ADSHG Socials: Hosts share personal stories and injection practise in weekend watch party Read more
It's important to remember you're not alone in experiencing a range of emotions after adapting to lockdown life. Read more
We have noticed lots of concern raised amongst our members about hospital admission during the times of COVID-19. We asked Dr Helen Simpson and Professor John Wass to give their perspectives on the questions we've seen asked by members recently. Read more
One of our longest standing volunteer Noel Hawks charts the story of the Addison's Disease Self Help Group's founder Deana Kenward, from her diagnosis to starting the group, to the time she retired from employment in 2009. Read more
Here is some helpful information from the ADSHG about being prepared if you fall ill enough to require hospital treatment. We hope you'll stay safe and well but we do recommend planning ahead. Read more
On 26 April, join the rest of the UK for the 2.6 Challenge and support Addison's disease! Many of our fundraising events have been cancelled due to the COVID-19 pandemic. But we're working harder than ever to support everyone who turns to us. This is where the 2.6 challenge comes in! From 2.6 to 26. It's your choice. Your challenge. And we need your support now more than ever. Read more
"There's a lot of bad news and worries in the world right now, so hopefully it's ok to share a positive story here... I was admitted to hospital yesterday afternoon." Valued member, volunteer and fundraiser for the ADSHG, Jennifer, shares with us her experiences of going into hospital for treatment during the COVID-19 crisis. Read more