Dr Georgina Russell updates us on The PULSES trial, looking at the effect of pulsatile cortisol pump therapy on quality of life, mood, sleep, behavioural and cognitive processing and metabolism. Read more
Say No to Flu! Book your flu jab today. There is no need to miss out, as it is free to people who are steroid-dependent (everyone with Addison's disease and adrenal insufficiency). Dr Prete, Consultant Endocrinologist, explains more about the importance of getting your flu jab when you are steroid-dependent. Read more
Hannah shares with us her diagnosis story, how she manages her Addison's while living abroad and embracing her diagnosis with an Addison's tattoo. Read more
Zöe shares her experience of exhibiting her first show border, ‘Tea Break’, for the Gardener’s World Autumn Fair, inspired by her diagnosis of Addison's disease. Zöe shares how she raised awareness and fundraised at the fair, and went on to be awarded a silver medal for her beautiful border. Read more
We keep you updated with inspiring stories on our ADSHG blog.
Dr Thomas Upton updates us on the development of U-RHYTHM, a wearable device to measure hormones, including cortisol levels, in the body over the full 24 hours, following the release of their clinical trial study, Read more
On 24 June 2023, we attended the Scottish Paediatric Endocrine Group (SPEG) event at the Royal Hospital for Children and Young People, Edinburgh. Read more
Chris shares why she hosted a Dinner and Casino Night on behalf of the ADSHG and how the charity has helped her family since her son was diagnosed with Addison's. Thank you Chris and all who attended to support her in raising funds for emergency injection research. Read more
To raise awareness around hydrocortisone emergency injection kits, we ask you to #ShareYourKit! Hear how Dan stores and carries his kit as well as his top tips for managing Addison's. Read more
Associate Professor Ian Ross of the University of Cape Town is on a quest to alert healthcare professionals to signs of adrenal insufficiency following years working with people with HIV in Africa since the 1990’s. He’s seen many ways the condition and related treatments can impair adrenal function. Vick Smith from the ADSHG caught up with Professor Ross to explore his findings since our charity provided funding towards his research in 2017 Read more
To help raise awareness around hydrocortisone emergency injection kits, we ask you to #ShareYourKit. At the ADSHG we like to feature members of our amazing community, as they show us how they store and carry their kit, to help encourage us to keep our kits with us at all times and normalise this potentially scary situation. Read more
Actor Dan Stewart is passionate about raising awareness of Addison's since his own diagnosis. He shares with us his recent emergency hospital admission experience & his advice on how to be prepared for emergency situations. Read more
As part of Rare Disease Day 2023's focus on care coordination, we speak to Sherwin Criseno. He explains 'The 4E’ initiative, used to support people with Addison’s, adrenal insufficiency and clinicians, and the positive impact this has on those who live with rare diseases quality of life. Read more
Author Carol McKay is passionate about raising awareness of Addison's through her stories. In her latest novel 'White Spirit', the police detective at the heart of the tale also has Addison's disease. Read how Carol became inspired to include Addison's in her writing since her own diagnosis in 2010. Read more
The 1st December saw the launch of our ‘Addison’s Advent’ calendar on our Instagram page. For the first 12 days of December, we shared expert, trusted advice and information about Addison’s and Adrenal Insufficiency with our followers. What an incredible reaction we got! Read more
To raise awareness around hydrocortisone emergency injection kits, we ask you to #ShareYourKit! Hear how Hannah stores and carries her kit as well as her top tips for managing Addison's. Read more
Dr Gary Hammer was awarded first place for his adrenal gland image in the Endocrine Society’s inaugural Images Art Competition, celebrating the beauty of endocrinology. Here Dr Hammer shares more about 'Stress Deconvoluted', his career and the importance of advocacy and communication to him. Read more
Whether it's a concert, festival, club night or comedy gig - we all love getting out and about! However some venues have prevented people with Addison’s or adrenal insufficiency from taking their injection kits into venues with them. So what should you do to help avoid any issues? Read more
Hi everyone, I’m Chloe! I am a 24-year-old living with Addison’s. Before my diagnosis, I had never even heard of Addison’s. Since then, I have become more involved in the adrenal insufficiency community, begun working with the ADSHG and have met some amazing people along the way. Read more
We catch up with Endocrine Nurse Specialist, Joanne Brown at Stockport NHS Hospital, on the Addison's awareness stand she set-up for Addison’s Disease Day. Read more
British showjumper Anna Power is a star of the European show jumping circuit. She was diagnosed with Addison's disease in April 2011. Since diagnosis she continues to compete internationally and in November 2022 was part of the British showjumping team for the Nation's Cup in Vilamoura, Portugal. Read more
Giulia Bound is known by the public through her job as a sport presenter for BBC Radio Merseyside. Diagnosed in 2016, she now lives a full life with Addison’s. So what is her secret? Read more
Diagnosed with Addison’s aged 24, in the height of COVID-19, Sarah shares with us how she went from her darkest times to living her dream of performing sign language with singer Jo O'Meara (previously of pop group S Club 7) on stage. Read more
Ali is the author of: “Spinning through Fog (High Salt Content): Addison’s Disease and Hormonal Treatment”, one of 30 personal essays included in the book “So Hormonal”. Ali tells us more about his brilliant essay as well as his route to diagnosis and what he's learnt along the way. Read more
We catch up with Endocrine Nurse Specialist Becci Watling from the Royal Bournemouth Hospital, on the implementation of their digital steroid coding system, improving safety and experience for people admitted to hospital with adrenal insufficiency. Read more
Adam who was diagnosed with Addison's as a child, went on to play semi-professional football for 15 years and continues his love of exercise by coaching in his spare time. Adam shares with us his tips for training and exercising whilst managing his Addison's. Read more
We explain why there are now new brands of fludrocortisone available on the market and the impact of tablet splitting and scoring lines on the new brand Mylan. Read more
Becca, ADSHG Children and Young Adults volunteer, tells us why she took on her Positive Pants 10 Mile Walk. Becca helps us realise we’re not alone as she shares her thoughts, powering up the voice of young people living with a rare disease. Read on for her tips and advice for others wanting to take on a challenge post diagnosis (from Lucozade to bacon rolls!) Read more
Suzanne tells how she volunteered to participate in the ULTRADIAN study at Bristol and her experience of testing U-RHYTHM, a medical wearable device to measure hormone levels, such as cortisol, in the body over the full 24 hours. Read more
Researcher Dr Thomas Upton updates us on the development of U-RHYTHM, a medical wearable device to measure hormones, including cortisol levels, in the body over the full 24 hours, as part of the ULTRADIAN study at Bristol. Read more
Lynsey who has Addison's used her skills as an interiors and still life stylist to create a colorful photoshoot to explore one of the symptoms Addison's: craving salt. Here she shares with us the story behind her pickle addiction photoshoot. Read more
Preparing an emergency kit is something every person with Addison's or Adrenal Insufficiency should do once they have a diagnosis. Kits are sometimes provided ready-made by medics and can also be purchased online. Here we help you create your own emergency kit in seven steps. Read more
To mark Addison’s Disease Day 2021, we speak with Professor John Wass, the Professor of Endocrinology at Oxford University and chair of the Addison's Clinical Advisory Panel. Read more
Meet Adam - the AI Warrior. After diagnosis, Adam created his character The AI Warrior to give people an idea of his daily needs and to spread awareness. His aim is for his character to be added to Fortnite and reach the Addison's community, creating a team of strong rare disease warriors. Read on for Adam's story. Read more
Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings. Read more
Associação Brasileira Addisoniana (ABA) report on the success of making emergency injection kits available in Brazil during the pandemic, with the support of the ACT Panel Read on to learn how you can support their vital new campaign “No more waiting, hydrocortisone and synthetic ACTH NOW”. #HidrocortisonaJÁ, #VoltaACTH #AbaddisonBrasil Read more