Preparing an emergency kit is something every person with Addison's or Adrenal Insufficiency should do once they have a diagnosis. Kits are sometimes provided ready-made by medics and can also be purchased online. Here we help you create your own emergency kit in seven steps. Read more
On Saturday 29th February, Rare Disease Day, we held another tweet chat this time answering questions on parents and carers. Read more
Getting flu is a thoroughly miserable experience. However, if you are steroid-dependent, the consequences can be very serious, with around a quarter of adrenal crises requiring hospital admission resulting from flu-like illnesses (ADSHG member survey 2013). Fortunately, flu can be prevented – and surely, prevention is better than cure? Read more
On Tuesday 2nd October, we held another tweet chat this time answering questions on sport and exercise for those with steroid dependency. Read more
We keep you updated with inspiring stories on our ADSHG blog.
"There's a lot of bad news and worries in the world right now, so hopefully it's ok to share a positive story here... I was admitted to hospital yesterday afternoon." Valued member, volunteer and fundraiser for the ADSHG, Jennifer, shares with us her experiences of going into hospital for treatment during the COVID-19 crisis. Read more
In 2017, Weibke Arlt, a member of our Clinical Advisory Panel, published research about Addison's and natural killer cells. In recent weeks, it's gone viral in light of the COVID-19 outbreak. We asked her to give her perspectives on what that means for us. She kindly tweeted her responses yesterday. Read more
An update on changes to the forum Read more
Pippa explains what made her most recent emergency hospital admission, with gastroenteritis, a more smooth and successful inpatient experience. Read more
The weather was kind. The sun shone. And our 20 amazing #TeamAddisons runners pounded around Central London in aid of Addison's Disease. Read more
Marie-Helene was unwell throughout her pregnancy, but her symptoms were dismissed as a normal part of pregnancy until she was close to death. Read more
Jan shares with us her inspirational story of her assistance dog Rhea, trained to recognise low cortisol levels. Read more