Our Policies

Our policy documents, available to download.

Privacy & Data Protection Policy	Our privacy & data protection policy from 1st June 2019
Acceptable Usage Policy	Our acceptable usage policy from 1st June 2019
Privacy & Data Protection Policy	Our privacy & data protection policy through to 31st May 2019
Equal Opportunities Policy	Our equal opportunities policy
Safeguarding Policy	Our safeguarding & vulnerable adults policy
Anti-Harassment Policy	Our anti-harassment / anti-bullying policy
Forum House Rules	Our online forum "house rules" through
Charity Expenses Policy	Our charity expenses policy
Volunteer Online Services Policy	Our volunteer online services & email policy

These policies are owned and administered by the charity's Board of Trustees. Contact us further details or clarification.

Latest

Jennifer's Story: Emergency Surgery during COVID-19

"There's a lot of bad news and worries in the world right now, so hopefully it's ok to share a positive story here... I was admitted to hospital yesterday afternoon." Valued member, volunteer and fundraiser for the ADSHG, Jennifer, shares with us her experiences of going into hospital for treatment during the COVID-19 crisis.
Novel Coronavirus (COVID-19) - 02/04/2020

Our medics have been keeping an eye on the emerging situation.
New Video: Managing medication and COVID-19

In our latest video, ADSHG Trustee and Professor of Endocrinology explains how to manage your medication should you get ill in the coming weeks.
Preparing your own Emergency Kit for Addison's or Adrenal Insufficiency - 26/03/2020

Preparing an emergency kit is something every person with Addison's or Adrenal Insufficiency should do once they have a diagnosis. Kits are sometimes provided ready-made by medics and can also be purchased online. Here we help you create your own emergency kit in seven steps.

New NHS Steroid Card Released

The Society of Endocrinology, RCP and NHSE/NHSI have confirmed the early release of their new NHS Emergency Steroid Card.
New Video: Managing medication and COVID-19

In our latest video, ADSHG Trustee and Professor of Endocrinology explains how to manage your medication should you get ill in the coming weeks.
Novel Coronavirus (COVID-19) - 02/04/2020

Our medics have been keeping an eye on the emerging situation.
Research Update - Professor Arlt's Perspective - 17/03/2020

In 2017, Weibke Arlt, a member of our Clinical Advisory Panel, published research about Addison's and natural killer cells. In recent weeks, it's gone viral in light of the COVID-19 outbreak. We asked her to give her perspectives on what that means for us. She kindly tweeted her responses yesterday.
Getting a flu vaccination this winter - 13/11/2019

Getting flu is a thoroughly miserable experience. However, if you are steroid-dependent, the consequences can be very serious, with around a quarter of adrenal crises requiring hospital admission resulting from flu-like illnesses (ADSHG member survey 2013). Fortunately, flu can be prevented – and surely, prevention is better than cure?
What Is Addison's Disease?
Adrenal Crisis Can Kill
Living With Addison's Disease - 18/03/2019

Our new, ground-breaking, Top 75 best-selling book which marries evidence-based clinical best practice with the practical day-to-day hints & tips for living well with Addison's Disease.
Newly Diagnosed - Sick Day Rules

People with adrenal insufficiency are particularly vulnerable to adrenal crisis being triggered by seemingly "minor" ailments, including vomiting, diarrhoea, colds & flu. It's important to recognise the early symptoms of a bug or cold and adjust your steroid replacement medication accordingly.
Information for patients

We provide a range of advice &information to people affected by Addison's Disease. Check out our resources here.

Research

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more