Our Policies

Our policy documents, available to download.

Data and Privacy Policy	Our privacy & data protection policy from 31st October 2020
Acceptable Usage Policy	Our acceptable usage policy from 1st June 2019
Equal Opportunities Policy	Our equal opportunities policy
Safeguarding policy	Our safeguarding & vulnerable adults policy
Anti-Harassment Policy	Our anti-harassment / anti-bullying policy
Forum House Rules	Our Forum House rules for forum users from 10 December 2020
Charity Expenses Policy	Our charity expenses policy
Volunteer Online Services Policy	Our volunteer online services & email policy

These policies are owned and administered by the charity's Board of Trustees. Contact us further details or clarification.

Latest

New UK Rare Diseases Framework launched

On 9 January 2021, the Department of Health and Social Care published the UK Rare Diseases Framework. But what does this policy mean for those with Addison’s disease, adrenal insufficiency and the rare disease community as a whole?
Research Application

The ADSHG receives regular approaches from researchers who are seeking our assistance with recruiting participants for their scientific projects, from online questionnaires to to requests to assist with long-term clinical trials. Find out more.
Vaccines and Adrenal Insufficiency

Vaccines and Adrenal Insufficiency - if you have Addison's Disease or another form of adrenal insufficiency, which vaccines should you have? Is it safe to be vaccinated? What do you need to know before you go for a jab?
Novel Coronavirus (COVID-19) - 19/01/2021

Our medics have been keeping an eye on the emerging situation. This page is up to date but we will continue updating it regularly as we find out more information from the government.

Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
New Video: Managing medication and COVID-19 - 29/03/2020

In our latest video, ADSHG Trustee and Professor of Endocrinology explains how to manage your medication should you get ill in the coming weeks.
Behind the News: Hydrocortisone as a Covid-19 Treatment - 09/12/2020

In recent days, UK news networks have been sharing a story about new studies hailing Hydrocortisone as a Covid-19 treatment. We asked our medics to review the research and the emerging stories so that we can give you a balanced perspective while also updating you on any impacts to the drug supplies we depend on.
New UK Rare Diseases Framework launched

On 9 January 2021, the Department of Health and Social Care published the UK Rare Diseases Framework. But what does this policy mean for those with Addison’s disease, adrenal insufficiency and the rare disease community as a whole?
Research Update - Professor Arlt's Perspective - 17/03/2020

In 2017, Weibke Arlt, a member of our Clinical Advisory Panel, published research about Addison's and natural killer cells. In recent weeks, it's gone viral in light of the COVID-19 outbreak. We asked her to give her perspectives on what that means for us. She kindly tweeted her responses yesterday.
Easing lockdown: How are you feeling? - 10/5/2020

It's important to remember you're not alone in experiencing a range of emotions after adapting to lockdown life.
[Superceded} EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19 - 21/04/2020

the European Journal of Endocrinology (EJE) editoral board has commissioned a new guidance series for the management of endocrine conditions during COVID-19. Included within this is clinical guidance for the management of Addison's disease and adrenal insufficiency. Here we take a look at this vital new guidance, so you can get a clearer view of what this means for you or your loved ones.
ADSHG Socials: Hosts share personal stories and injection practise in weekend watch party

ADSHG Socials: Hosts share personal stories and injection practise in weekend watch party
Getting a flu vaccination this winter

Getting flu is a thoroughly miserable experience. However, if you are steroid-dependent, the consequences can be very serious, with around a quarter of adrenal crises requiring hospital admission resulting from flu-like illnesses (ADSHG member survey 2013). Fortunately, flu can be prevented – and surely, prevention is better than cure?
COVID-19: Clinical Management guidance: Adrenal Insufficiency

For Healthcare Professionals: Suggested management and hydrocortisone stress dose cover in patients with Adrenal insufficiency and suspected or confirmed COVID-19 infection.

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more