Our Policies

Our policy documents, available to download.

Privacy & Data Protection Policy	Our privacy & data protection policy from 1st June 2019
Acceptable Usage Policy	Our acceptable usage policy from 1st June 2019
Privacy & Data Protection Policy	Our privacy & data protection policy through to 31st May 2019
Equal Opportunities Policy	Our equal opportunities policy
Safeguarding Policy	Our safeguarding & vulnerable adults policy
Anti-Harassment Policy	Our anti-harassment / anti-bullying policy
Forum House Rules	Our online forum "house rules" through
Charity Expenses Policy	Our charity expenses policy
Volunteer Online Services Policy	Our volunteer online services & email policy

These policies are owned and administered by the charity's Board of Trustees. Contact us further details or clarification.

Latest

Novel Coronavirus (COVID-19) - 24/06/2020

Our medics have been keeping an eye on the emerging situation.
One Tone’s Fundraiser in memory of Nik Hale in aid of Addison’s Disease

A well loved, good friend of mine sadly died of Addison’s Disease last year and he owned Revival Clothes shop in Banbury and the new owners wanted to do a fundraiser in his memory that was unfortunately cancelled due to Covid 19.
ADSHG Online AGM and Health Professional Q&A - 20th June 2020

We're taking our 2020 AGM online whilst large gatherings are not taking place at the moment. This members-only event includes a Q&A with Dr Helen Simpson and GP Stephen Kell where they will answer member questions sent in advance.
International Addison's Day: Catch up on the highlights

International Addison's Day: Catch up on the highlights. On 29th May 2020 people with Adrenal Insufficiency painted social media blue purple and green, making new friends, sharing experiences and important advice with medics, family, friends and followers.

New NHS Steroid Card Released

The Society of Endocrinology, RCP and NHSE/NHSI have confirmed the early release of their new NHS Emergency Steroid Card.
New Video: Managing medication and COVID-19

In our latest video, ADSHG Trustee and Professor of Endocrinology explains how to manage your medication should you get ill in the coming weeks.
Research Update - Professor Arlt's Perspective - 17/03/2020

In 2017, Weibke Arlt, a member of our Clinical Advisory Panel, published research about Addison's and natural killer cells. In recent weeks, it's gone viral in light of the COVID-19 outbreak. We asked her to give her perspectives on what that means for us. She kindly tweeted her responses yesterday.
Easing lockdown: How are you feeling? - 10/5/2020

It's important to remember you're not alone in experiencing a range of emotions after adapting to lockdown life.
EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19 - 21/04/2020

In response to the unprecedented COVID-19 pandemic, the European Journal of Endocrinology (EJE) editoral board has commissioned a new guidance series for the management of endocrine conditions during COVID-19. Included within this is clinical guidance for the management of Addison's disease and adrenal insufficiency. Here we take a look at this vital new guidance, so you can get a clearer view of what this means for you or your loved ones.
ADSHG Socials: Hosts share personal stories and injection practise in weekend watch party 17/05/2020

ADSHG Socials: Hosts share personal stories and injection practise in weekend watch party
Novel Coronavirus (COVID-19) - 24/06/2020

Our medics have been keeping an eye on the emerging situation.
COVID-19: Clinical Management guidance: Adrenal Insufficiency

For Healthcare Professionals: Suggested management and hydrocortisone stress dose cover in patients with Adrenal insufficiency and suspected or confirmed COVID-19 infection.
Getting a flu vaccination this winter - 13/11/2019

Getting flu is a thoroughly miserable experience. However, if you are steroid-dependent, the consequences can be very serious, with around a quarter of adrenal crises requiring hospital admission resulting from flu-like illnesses (ADSHG member survey 2013). Fortunately, flu can be prevented – and surely, prevention is better than cure?
What Is Addison's Disease?

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more