Our Policies

Our policy documents, available to download.

Data and Privacy Policy	Our privacy & data protection policy from 31st October 2020
Acceptable Usage Policy	Our acceptable usage policy from 1st June 2019
Equal Opportunities Policy	Our equal opportunities policy
Safeguarding policy	Our safeguarding & vulnerable adults policy
Anti-Harassment Policy	Our anti-harassment / anti-bullying policy
Forum House Rules	Our Forum House rules for forum users from 22 March 2021
Forum Moderation Policy	Our Forum moderation policy from 22 March 2021
Charity Expenses Policy	Our charity expenses policy
Volunteer Online Services Policy	Our volunteer online services & email policy

These policies are owned and administered by the charity's Board of Trustees. Contact us further details or clarification.

Latest

Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
Novel Coronavirus (COVID-19) - 14/09/2021

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
Our Clinical Advisors

We work closely with our team of clinical advisors to provide safe, evidence-based healthcare advice to members. This eminent group of endocrinologists & medical researchers regularly advise and inform our publications, events and medical research.
Suzanne's Story: Participation in the ULTRADIAN study

Suzanne tells how she volunteered to participate in the ULTRADIAN study at Bristol and her experience of testing U-RHYTHM, a medical wearable device to measure hormone levels, such as cortisol, in the body over the full 24 hours.

Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
Receiving the COVID-19 Vaccine - Personal Stories

The COVID-19 vaccination campaign has kicked off - but what does it feel like to receive the COVID-19 vaccine? People with Addison's and adrenal insufficiency share their experiences of receiving the vaccine.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Novel Coronavirus (COVID-19) - 14/09/2021

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
Sick Day Rules

People with adrenal insufficiency are particularly vulnerable to adrenal crisis being triggered by seemingly "minor" ailments, including vomiting, diarrhoea, colds & flu. It's important to recognise the early symptoms of a bug or cold and adjust your steroid replacement medication accordingly.
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Adrenal Crisis Can Kill
What is Addison's Disease?

Find out more about Addisons's disease and adrenal insufficiency and and how they are treated.
Vaccines and Adrenal Insufficiency

Vaccines and Adrenal Insufficiency - if you have Addison's Disease or another form of adrenal insufficiency, which vaccines should you have? Is it safe to be vaccinated? What do you need to know before you go for a jab?

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more