Events | Addison's Disease Self-Help Group

Devon and Exeter Hospital Meeting: Thursday March 19th 2020

Rhianne and Michael l would like to welcome fellow members to a Hospital Meeting where an Endocrine Specialist Nurse, Rhianne, will be on hand. Read more

Latest

Women in Science Day: ADSHG's research awards available

We're marking Women In Science day by highlighting our latest ADSHG Research Awards for 2020, and celebrating the work of one of our previous recipients Helen Loo.

In memory of Clare

A dear friend passed away from Addison’s disease, All of her symptoms went un-noticed and were mis diagnosed so we are raising awareness of this disease in the hope that it doesn’t happen again.

Cambridge Social Meeting: Sunday March 1st

Sue would like to invite Members to a social at the The Old Ticket Office.

About the Addison's Disease Self Help Group

This leaflet, About the Addisons Disease Self Help Group outlines the scope of the Addison's Disease Self Help Group. This leaflet is designed to help people with Addison's, their carers, medics and other interested parties to undertand our work and how we can support those with Addison's and Adrenal Insufficiency.

Getting a flu vaccination this winter

Getting flu is a thoroughly miserable experience. However, if you are steroid-dependent, the consequences can be very serious, with around a quarter of adrenal crises requiring hospital admission resulting from flu-like illnesses (ADSHG member survey 2013). Fortunately, flu can be prevented – and surely, prevention is better than cure?

What Is Addison's Disease?

Adrenal Crisis Can Kill

Jacks 5K run for Addisons Disease

Jacks godmothers 10yr old son has Addison’s disease, he was diagnosed when he was 8 and went into adrenal crisis.

Living With Addison's Disease

Our new, ground-breaking, Top 75 best-selling book which marries evidence-based clinical best practice with the practical day-to-day hints & tips for living well with Addison's Disease.

An update on our websites

We launched our new website, addisonsdisease.org.uk earlier this year. Since then you’ve been sharing your thoughts and ideas about how we can improve it.

Newly diagnosed? We are here to help.

Are you newly diagnosed with Addison's Disease or adrenal insufficiency? We are here to help.

Information for patients

We provide a range of advice &information to people affected by Addison's Disease. Check out our resources here.

Newly Diagnosed - Sick Day Rules

People with adrenal insufficiency are particularly vulnerable to adrenal crisis being triggered by seemingly "minor" ailments, including vomiting, diarrhoea, colds & flu. It's important to recognise the early symptoms of a bug or cold and adjust your steroid replacement medication accordingly.

Great North Run for Addisons Disease

In 2015 my son was diagnosed with CAH