Online forum

Our online forum is a vibrant community of ADSHG members offering mutual support and help. It is a key membership benefit of the ADSHG, providing subscribing members with the opportunity to share experiences, ask questions, make new friends and discuss the practicalities of living with Addison's.

Enter the online members-only forum

If you are unable to access the forum please try these 4 steps:

1. Try signing into our forum using our quick access forum sign in link.

2. Check that you are a current member with an up to date subscription. You need to be a member to access our member forum. See below for information about how to become a member.

3. Check if your password is correct. If you have lost your password, use our online forum password reset service.

4. Contact [email protected] to check we have the correct email address for you.

If you are still unable to access the forum, please contact [email protected] and our membership team will help you to access your forum account.

Become a member

We are the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland. We aim to support our members to manage their condition and to promote better medical understanding of Addison's, working in co-operation with leading adrenal specialists.

By joining as a member, you get access to a range of additional resources and support for your condition. You'll also be joining a vibrant, supportive, engaged community of people affected by Addison's. Together, we're stronger.

Become a member

Latest

Adrenal Causes Together COVID-19 Survey

Complete the Adrenal Causes Together (ACT) survey to help determine the impact of COVID-19 on people with all forms of adrenal insufficiency from around the world.
How adrenal insufficiency affected my pregnancy

Rachel tells us the story of her pregnancy from fertility treatment to welcoming her son into the world - all whilst managing her adrenal insufficiency.
Behind the News: Hydrocortisone as a Covid-19 Treatment - 03/09/2020

In recent days, UK news networks have been sharing a story about new studies hailing Hydrocortisone as a Covid-19 treatment. We asked our medics to review the research and the emerging stories so that we can give you a balanced perspective while also updating you on any impacts to the drug supplies we depend on.
Lous wacky games

I am an Addisons warrior

Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
New Video: Managing medication and COVID-19 - 29/03/2020

In our latest video, ADSHG Trustee and Professor of Endocrinology explains how to manage your medication should you get ill in the coming weeks.
Behind the News: Hydrocortisone as a Covid-19 Treatment - 03/09/2020

In recent days, UK news networks have been sharing a story about new studies hailing Hydrocortisone as a Covid-19 treatment. We asked our medics to review the research and the emerging stories so that we can give you a balanced perspective while also updating you on any impacts to the drug supplies we depend on.
Research Update - Professor Arlt's Perspective - 17/03/2020

In 2017, Weibke Arlt, a member of our Clinical Advisory Panel, published research about Addison's and natural killer cells. In recent weeks, it's gone viral in light of the COVID-19 outbreak. We asked her to give her perspectives on what that means for us. She kindly tweeted her responses yesterday.
Easing lockdown: How are you feeling? - 10/5/2020

It's important to remember you're not alone in experiencing a range of emotions after adapting to lockdown life.
EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19 - 21/04/2020

In response to the unprecedented COVID-19 pandemic, the European Journal of Endocrinology (EJE) editoral board has commissioned a new guidance series for the management of endocrine conditions during COVID-19. Included within this is clinical guidance for the management of Addison's disease and adrenal insufficiency. Here we take a look at this vital new guidance, so you can get a clearer view of what this means for you or your loved ones.
ADSHG Socials: Hosts share personal stories and injection practise in weekend watch party 17/05/2020

ADSHG Socials: Hosts share personal stories and injection practise in weekend watch party
Getting a flu vaccination this winter

Getting flu is a thoroughly miserable experience. However, if you are steroid-dependent, the consequences can be very serious, with around a quarter of adrenal crises requiring hospital admission resulting from flu-like illnesses (ADSHG member survey 2013). Fortunately, flu can be prevented – and surely, prevention is better than cure?
COVID-19: Clinical Management guidance: Adrenal Insufficiency

For Healthcare Professionals: Suggested management and hydrocortisone stress dose cover in patients with Adrenal insufficiency and suspected or confirmed COVID-19 infection.
What Is Addison's Disease?

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more