Getting Together - Our Members' Socials

Our charity supports a range of informal social meetings across the United Kingdom & Ireland. They are run by local group members and provide a chance to meet other people affected by adrenal insufficiency, provide encouragement, share experiences and laughter.

They take place in a diverse range of venues, from cafes, community halls, pubs or occasionally in private homes. Since COVID-19 we have moved some of our meetings online. All follow an open agenda, with the opportunity to meet and talk with others over tea, coffee and cake. Where possible, an endocrine nurse from a nearby hospital joins the meeting to lead injection practice and answer questions.

View our current social meeting listings

Where do we meet?

We have social meeting hosts in the following areas at the moment:

Cheshire
London
Norfolk
Northumberland
Nottinghamshire
Yorkshire

Check our social events page for upcoming meetings in the above areas. For insurance reasons, they are not open to the general public. If you're not already a member of our charity, it's quick & easy to join!

No meeting in your area?

Submit your county to our Social Meeting Wish List

Thinking of hosting a social?

We welcome members to create new social groups. They can be simple to get started, and we can provide help to get going. If interested in setting up a group please let us know by completing our Social Host interest online form. Please read our guide to running safe ADSHG social meetings to help you understand what we need our volunteer ADSHG Social Hosts to do.

Get in touch to become a Social Meeting Host

Whether you're newly diagnosed or have lived with the condition for years - please join our community and support our cause! You'll receive the latest expert advice, guidance and ADSHG news, whilst being part of our inspiring and supportive community. Become a member today!

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Latest

40th Anniversary Addison's Roadshow

Please join our Addison's Roadshow to celebrate 40 years of the ADSHG! Anyone affected by Addison's disease or adrenal insufficiency, and those that support them, can come along.
Ingrid's Story: Exercising with Addison's

Meet Ingrid who has recently taken up a new hobby, going to the gym. Here Ingrid hopes to inspire others to get exercising this New Year while also reminding us of the importance of managing your Addison’s too.
Shona’s Addison's Afternoon Tea Fundraiser

I'm raising money for the Addison's Disease Self-Help Group so that they can continue to support people with Addison's and adrenal insufficiency. Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.
Behind the Research: Implementation of perioperative guidelines & steroid emergency card

Congratulations Louise Breen on receiving the Annette Louise Seal Memorial Award! Louise shares more about her work as an Advanced Endocrine Nurse Practitioner & first Chair Elect of the Society for Endocrinology Nurse Committee

Sick Day Rules

Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.
Adrenal Crisis - Emergency Help

Adrenal crisis is a time-critical, life-threatening emergency and must be treated immediately. Read the guidance on treating a steroid-dependent patient in adrenal crisis.
What is Addison's Disease?

Find out more about Addison's disease and adrenal insufficiency and and how they are treated.
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
Novel Coronavirus (COVID-19) - 02/10/2023

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Addison's & Adrenal Insufficiency: Advice for Dentists

The ADSHG guidelines offer illustrative guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more