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Who we are

Find out more about the ADSHG:

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Published: 22nd February, 2019

Updated: 12th April, 2022

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Latest

  • Jennifer's fundraising for Addison's disease

    I'm raising money for the Addison's Disease Self Help Group so that they can continue to support people with Addison's and adrenal insufficiency. Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.

  • Behind the Research: U-RHYTHM

    Behind the Research: U-RHYTHM

    Dr Thomas Upton updates us on the development of U-RHYTHM, a wearable device to measure hormones, including cortisol levels, in the body over the full 24 hours, following the release of their clinical trial study,

  • Behind the Research: The PULSES trial  - Pulsatile Cortisol Infusion Pump

    Behind the Research: The PULSES trial - Pulsatile Cortisol Infusion Pump

    Dr Georgina Russell updates us on The PULSES trial, looking at the effect of pulsatile cortisol pump therapy on quality of life, mood, sleep, behavioural and cognitive processing and metabolism.

  • Getting the Flu Jab

    Getting the Flu Jab

    Say No to Flu! Book your flu jab today. There is no need to miss out, as it is free to people who are steroid-dependent (everyone with Addison's disease and adrenal insufficiency). Dr Prete, Consultant Endocrinologist, explains more about the importance of getting your flu jab when you are steroid-dependent.

Most read

  • Sick Day Rules

    Sick Day Rules

    Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.

  • What is Addison's Disease?

    What is Addison's Disease?

    Find out more about Addison's disease and adrenal insufficiency and and how they are treated.

  • Adrenal Crisis Can Kill

    Adrenal Crisis Can Kill

  • The Emergency Injection for the treatment of Adrenal Crisis

    The Emergency Injection for the treatment of Adrenal Crisis

    Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.

  • Coronavirus Vaccines and Adrenal Insufficiency

    Coronavirus Vaccines and Adrenal Insufficiency

    Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.

  • Why Salt?

    Why Salt?

    Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.

  • Novel Coronavirus (COVID-19) - 02/10/2023

    Novel Coronavirus (COVID-19) - 02/10/2023

    Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.

  • Updated NHS Steroid Card Released

    Updated NHS Steroid Card Released

    Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!

  • Addison's & Adrenal Insufficiency: Advice for Dentists

    Addison's & Adrenal Insufficiency: Advice for Dentists

    The ADSHG guidelines offer illustrative guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.

  • Surgical Guidelines

    Surgical Guidelines

    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

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Research Grants

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more

Published: 22nd May, 2023

Updated: 9th June, 2023

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The information contained within this website is not intended to provide clinical diagnosis and/or personalised medical advice. It should not be treated as such. Always seek the advice of your doctor or a health care professional before starting any new treatment for your underlying condition. While we have taken every care to compile accurate information to reflect the current state of knowledge, we cannot guarantee its correctness and completeness. The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.

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