Get involved Research Research Grants Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important but sometimes overlooked field of endocrine research. Find out more about about our 2020 research awardees. Our research awards are open! Entries must be received before midnight on Addison's Disease Day - 29th May 2022. Read on to find out more. Alfred Potter Memorial Medical Research Award The ADSHG Alfred Potter memorial medical research award is an annual award of up to £10,000 to support medical research projects that will advance good clinical practice in the management of Addison’s disease. Applicants are required to submit a maximum of 2 pages of A4 detailing their proposed research including “Background”, “Details of the research proposed”, “How will the award will be spent?”, “Start date of the proposed work?”, “Are there any constraints other than funding before progressing (eg. regulatory approvals)?” and “How will the award benefit people with Addison’s disease?” The awards are open for entries before midnight on Addison's Disease Day - 29th May 2022. For further details, contact [email protected]. Sue Chambers Memorial Medical Research Award In 2019, our charity launched a new medical research award focused on clinicians in the early stages of their careers. We want to encourage the next generation of medical researchers to develop their interests in Addison's Disease. The award is named after Sue Chambers, a much-loved and sadly missed member who passed away in 2018. We hope that Sue's spirited and passionate advocacy for people affected by Addison's will live on through this annual award. The ADSHG Sue Chambers Memorial medical research award is an annual award of up to £5,000 to support early-career medical/nursing researchers (less than 5 years post Ph.D.), wishing to pursue a project with relevance to Addison’s disease or steroid-dependency. Applicants are required to submit a 2-page CV, along with a maximum of 2 pages of A4 detailing their proposed research including “Background”, “Details of the research proposed”, “How will the award will be spent?”, “Start date of the proposed work?”, “Are there any constraints other than funding before progressing (eg. regulatory approvals)?” and “How will the award benefit people with Addison’s disease?” The awards are open for entries before midnight on Addison's Disease Day - 29th May 2022. For further details, contact [email protected]. Professor John Wass Emergency Medical Research Award In 2019, our charity launched a further medical research award named after long-time collaborator, Chair of our Clinical Advisory Panel and good friend of the charity, John Wass. This award will focus on stimulating innovations and best practice in emergency medicine concerning adrenal insufficiency and adrenal crisis. It is awarded in collaboration with the Royal College of Emergency Medicine. The 2021 award is open for entries before midnight on Addison's Disease Day - 29th May 2021. For further details, contact [email protected]. Annette Louise Seal Memorial Award This award was launched in 2010, for a nurse-led research project that advances steroid awareness and patient safety. Abstracts may cover any aspect of adrenal crisis prevention and treatment, the management and monitoring of steroid replacement therapy or associated patient education. The award is made in memory of Annette Seal, an active volunteer for the charity, who assisted with our presence at medical conferences prior to her sad, early passing. The winner receives a £500 award at the Society for Endocrinology BES conference for the abstract submitted which best advances the clinical management of steroid replacement therapy or adrenal insufficiency, and where the first author is a nurse. Entries are assessed by the Society's judging panel at the conference. The judges may award a runner-up prize of £250 where there is more than one outstanding entry. Helen receiving the Annette Louise Seal Memorial Award from the Addison’s Disease Self-Help Group at SfE BES 2019, alongside (far left) Dr Helen Turner (Consultant Endocrinologist, Oxford Centre for Diabetes, Endocrinology and Metabolism), Alison (ADSHG volunteer), Helen Loo, Deana (ADSHG Founder & Patron). Phillip Yeoh, with his 2017 Annette Louise Seal Memorial Award winning research. Phillip works in collaboration with endocrinologists Bernard Khoo and Paul Carrol on continuous subcutaneous hydrocortisone infusion (CSHI), a novel treatment for adrenal insufficiency. Award-wining abstracts from previous years' events include: Sherwin Criseno - The 4E (Engage, Educate, Equip and Empower): A framework for supporting the approach in the prevention, early recognition and effective management of adrenal crisis in adults. Endocrine Abstracts (2021) 77 P17 | DOI: 10.1530/endoabs.77.P17 Lisa Shepherd - Development of interventions to prevent adrenal crisis – How can application of behaviour change theory and intervention frameworks inform practice? Endocrine Abstracts (2021) 77 P133 | DOI: 10.1530/endoabs.77.P133 Helen Loo, Anne Marland, Zara Shoosmith & Helen Turner - Cortisol alert dog: Improving patient outcomes, Endocrine Abstracts (2019) 65 P338 | DOI: 10.1530/endoabs.65.P338 Chona Feliciano - Hypothalamic-Pituitary Adrenal axis recovery rate of patients with Glucocorticoid-Induced AdrenalInsufficiency (GC-induced AI) Endocrine Abstracts (2018) 59 OC4.5 | DOI: 10.1530/endoabs.59.OC4.5 Phillip Yeoh, Bernard Khoo & Paul Carroll - UK experience with continuous subcutaneous hydrocortisone infusion in patients with adrenal insufficiency, Endocrine Abstracts (2017) 50 P314 | DOI:10.1530/endoabs.50.P314 Kieffer V - Steroid replacement education: are we getting it right?, Endocrine Abstracts (2016) 44 P172 DOI:10.1530/endoabs.44.P172 Papadopoulou D - The use of 8-h serum prednisolone concentrations to guide prednisolone dosing in replacement therapy, Endocrine Abstracts (2016) 44 P89 DOI:10.1530/endoabs.44.P89 Munday J - Steroid group education: developing a curriculum ensures good nursing practice is maintained, BES 2014, Endocrine Abstracts (2014) 34 P192 DOI:10.1530/endoabs.34.P192 Andrew J - Adequacy of documented evidence of education in glucocorticoid deficient patients and subsequent nurse-led initiatives, Endocrine Abstracts (2012)28 P158 Stewart S - Steroid replacement: an unusual alternative to oral therapy via 24-h s.c. infusion device, Endocrine Abstracts (2010) 21 P340 Munday J - Group education improves patient confidence in managing steroid sick day rules, Endocrine Abstracts (2010) 21 P331 Note: An Addison's disease specific quality of life questionnaire has been developed called AddiQoL. This is used as an assessment tool in many research studies and by some Endocrinologists. You can read more about AddiQoL here.
The winner receives a £500 award at the Society for Endocrinology BES conference for the abstract submitted which best advances the clinical management of steroid replacement therapy or adrenal insufficiency, and where the first author is a nurse. Entries are assessed by the Society's judging panel at the conference. The judges may award a runner-up prize of £250 where there is more than one outstanding entry. Helen receiving the Annette Louise Seal Memorial Award from the Addison’s Disease Self-Help Group at SfE BES 2019, alongside (far left) Dr Helen Turner (Consultant Endocrinologist, Oxford Centre for Diabetes, Endocrinology and Metabolism), Alison (ADSHG volunteer), Helen Loo, Deana (ADSHG Founder & Patron). Phillip Yeoh, with his 2017 Annette Louise Seal Memorial Award winning research. Phillip works in collaboration with endocrinologists Bernard Khoo and Paul Carrol on continuous subcutaneous hydrocortisone infusion (CSHI), a novel treatment for adrenal insufficiency. Award-wining abstracts from previous years' events include: Sherwin Criseno - The 4E (Engage, Educate, Equip and Empower): A framework for supporting the approach in the prevention, early recognition and effective management of adrenal crisis in adults. Endocrine Abstracts (2021) 77 P17 | DOI: 10.1530/endoabs.77.P17 Lisa Shepherd - Development of interventions to prevent adrenal crisis – How can application of behaviour change theory and intervention frameworks inform practice? Endocrine Abstracts (2021) 77 P133 | DOI: 10.1530/endoabs.77.P133 Helen Loo, Anne Marland, Zara Shoosmith & Helen Turner - Cortisol alert dog: Improving patient outcomes, Endocrine Abstracts (2019) 65 P338 | DOI: 10.1530/endoabs.65.P338 Chona Feliciano - Hypothalamic-Pituitary Adrenal axis recovery rate of patients with Glucocorticoid-Induced AdrenalInsufficiency (GC-induced AI) Endocrine Abstracts (2018) 59 OC4.5 | DOI: 10.1530/endoabs.59.OC4.5 Phillip Yeoh, Bernard Khoo & Paul Carroll - UK experience with continuous subcutaneous hydrocortisone infusion in patients with adrenal insufficiency, Endocrine Abstracts (2017) 50 P314 | DOI:10.1530/endoabs.50.P314 Kieffer V - Steroid replacement education: are we getting it right?, Endocrine Abstracts (2016) 44 P172 DOI:10.1530/endoabs.44.P172 Papadopoulou D - The use of 8-h serum prednisolone concentrations to guide prednisolone dosing in replacement therapy, Endocrine Abstracts (2016) 44 P89 DOI:10.1530/endoabs.44.P89 Munday J - Steroid group education: developing a curriculum ensures good nursing practice is maintained, BES 2014, Endocrine Abstracts (2014) 34 P192 DOI:10.1530/endoabs.34.P192 Andrew J - Adequacy of documented evidence of education in glucocorticoid deficient patients and subsequent nurse-led initiatives, Endocrine Abstracts (2012)28 P158 Stewart S - Steroid replacement: an unusual alternative to oral therapy via 24-h s.c. infusion device, Endocrine Abstracts (2010) 21 P340 Munday J - Group education improves patient confidence in managing steroid sick day rules, Endocrine Abstracts (2010) 21 P331 Note: An Addison's disease specific quality of life questionnaire has been developed called AddiQoL. This is used as an assessment tool in many research studies and by some Endocrinologists. You can read more about AddiQoL here.