ADSHG @ The Conference: Endocrinology

Scroll down here to explore our updates on NHS guidance, the latest research, articles and support offerings to help you continue to deliver marvellous care for people with Adrenal Insufficiency.

New NHS Steroid Card

Have you issued this card to your Adrenal Insufficiency patients yet?

It could save a life!

Order yours and read about the new card

Our Emergency Kits

See inside our Emergency kits and explore their life saving contents.

An essential for your patients to self manage a crisis wherever they are and to buy vital time if there is a delay to their admission to A&E.

Emergency injection kits and why your patients need them

COVID-19 Care

The latest guidance from the Society for Endocrinology on ensuring your patients are prepared for COVID-19 related crisis and receive the right care if they are admitted into hospital for emergency care.

View the latest SfE Guidance

Our Marvellous Care Poll

Match your approach to the latest guidance from the Society for Endocrinology along with the medics and academics in our Clinical Advisory Panel.

10 Steps to Marvellous Care

Download or order our leaflets and Publications

Explore and download our leaflets and publications from our website including Managing Your Addisons, Caring for the Addison's Patient, and Diagnosing Addison's. Order paper copies of our most popular leaflets using our online leaflet request form.

View our publications

Get Involved - Ways to support our work

We are so grateful to all our medic volunteers and there are always plenty of ways you can get involved to support our work and continue your professional development at the same time. Here are some of our current opportunities including our Research Grants.

Endocrine healthcare professionals: How you can support our work

Ask us a question

Our conference volunteers are here to help so do take a moment to contact us if you have anything you'd like to ask.

Latest

Preparing your own Emergency Kit for Addison's or Adrenal Insufficiency - 16/04/2021

Preparing an emergency kit is something every person with Addison's or Adrenal Insufficiency should do once they have a diagnosis. Kits are sometimes provided ready-made by medics and can also be purchased online. Here we help you create your own emergency kit in seven steps.
Useful links to other organisations

This section provides electronic links to the websites of other organisations in the UK and around the world that provide support and information to people with Addison's and adrenal insufficiency. As many people with Addison's also live with other autoimmune conditions too, we have included some links to relevant patient groups for these conditions.
Novel Coronavirus (COVID-19) - 16/04/2021

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
Becca’s positive pants 10 mile walk

To show how far I’ve come since my diagnosis nearly 3 years ago... from not being able to stand in the shower let alone walk 10 miles.

Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
New Video: Managing medication and COVID-19 - 29/03/2020

In our latest video, ADSHG Trustee and Professor of Endocrinology explains how to manage your medication should you get ill in the coming weeks.
Behind the News: Hydrocortisone as a Covid-19 Treatment - 09/12/2020

In recent days, UK news networks have been sharing a story about new studies hailing Hydrocortisone as a Covid-19 treatment. We asked our medics to review the research and the emerging stories so that we can give you a balanced perspective while also updating you on any impacts to the drug supplies we depend on.
ADSHG in The Guardian - Rare Diseases edition!

We are delighted that our article "Think Addison's disease - save a life", is featured in today's Guardian newspaper Rare Diseases supplement!
Receiving the COVID-19 Vaccine - Personal Stories

The COVID-19 vaccination campaign has kicked off - but what does it feel like to receive the COVID-19 vaccine? People with Addison's and adrenal insufficiency share their experiences of receiving the vaccine.
New UK Rare Diseases Framework launched

On 9 January 2021, the Department of Health and Social Care published the UK Rare Diseases Framework. But what does this policy mean for those with Addison’s disease, adrenal insufficiency and the rare disease community as a whole?
Research Update - Professor Arlt's Perspective - 17/03/2020

In 2017, Weibke Arlt, a member of our Clinical Advisory Panel, published research about Addison's and natural killer cells. In recent weeks, it's gone viral in light of the COVID-19 outbreak. We asked her to give her perspectives on what that means for us. She kindly tweeted her responses yesterday.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
Easing lockdown: How are you feeling? - 10/5/2020

It's important to remember you're not alone in experiencing a range of emotions after adapting to lockdown life.
[Superceded] EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19 - 21/04/2020

the European Journal of Endocrinology (EJE) editoral board has commissioned a new guidance series for the management of endocrine conditions during COVID-19. Included within this is clinical guidance for the management of Addison's disease and adrenal insufficiency. Here we take a look at this vital new guidance, so you can get a clearer view of what this means for you or your loved ones.

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more