ADSHG @ The Conference: Endocrinology

Explore our updates on the latest research, guidance and support offerings to help you continue to deliver marvellous care for people with Addison's disease and adrenal insufficiency. Please also check out our latest News and Blog updates.

NHS Steroid Emergency Card

Have you issued a steroid emergency card to your adrenal insufficiency patients yet?

It could save a life!

Order yours and read about the new NHS card

Does your patient wear medical ID? Read about our resources to help them be prepared

Our Emergency Kits

See inside our emergency kits and explore their life saving contents.

An essential for your patients to self manage a crisis wherever they are and to buy vital time if there is a delay to their admission to A&E.

Emergency injection kits and why your patients need them

Learn more about our #ShareYourKit campaign

COVID-19 Care

The latest guidance to ensure your patients are prepared for COVID-19 - from vaccine information and support, to sick day dosing for COVID-19 infections.

COVID-19 guidance

How patients can prepare if admitted to hospital

Sick Day Rules explained

SfE Clinical Guidance for Endocrinology Consultations

The ADSHG has worked with the SfE, Sofia Llahana and Professor John Wass on this new consultation guide for endocrinologists and endocrine nurses to support patients with AD at diagnosis, their follow up reviews, treatment monitoring and shared-decision making.

Learn more about the Consultation Guide

Download or order our leaflets and publications

Explore and download our leaflets and publications from our website including Managing Your Addisons, Surgical Guidelines and Fasting with Adrenal Insufficiency.

Browse our publications

Order paper copies of our most popular leaflets using our online leaflet request form.

Order our publications

Research Grants & Get Involved - ways to support our work

We are so grateful to all our medic volunteers and there are always plenty of ways you can get involved to support our work and continue your professional development at the same time.

Meet the The Addison's Clinical Advisory Panel (CAP), led by Professor John Wass

Endocrine healthcare professionals: How you can support our work

Apply for our research grants

Addison's Disease Day awareness stand

What's new in Endocrinology care?

Read more about the current hot topics!

	The 4E: Engage, Educate, Equip & Empower Sherwin Criseno explains 'The 4E’ initiative, used to support people with Addison’s, adrenal insufficiency and clinicians, and the positive impact this has on those who live with rare diseases quality of life. Read more.
	Digital steroid coding system Endocrine Nurse Specialist, Becci Watling, speaks about the implementation of their digital steroid coding system, improving safety and experience for people admitted to hospital with adrenal insufficiency. Read more.
	The PULSES trial - Pulsatile Cortisol Infusion Pump Dr Georgina Russell updates us on The PULSES trial, looking at the effect of pulsatile cortisol pump therapy on quality of life, mood, sleep, behavioural and cognitive processing and metabolism. Read more.
	Fasting with adrenal insufficiency during Ramadan Shazia Hussain shares more about the research behind this vital patient resource. The leaflet is for those thinking of fasting for Ramadan, giving tips on reducing the risks of becoming ill if they decide to fast, when it's advisable not to fast and offers alternatives to those who are considered too high risk for fasting. Read more.
	Make a stand! Addison's awareness in hospital Endocrine Nurse Specialist, Joanne Brown shares how she organised an Addison's awareness stand for Addison’s Disease Day (29 May) and the impact of educating her colleagues on the needs of steroid-dependent patients. Read more.
	A name change for Solu-Cortef The previously branded ‘Solu Cortef’ hydrocortisone injection will now be known as ‘Hydrocortisone 100mg Powder for Solution for Injection or Infusion’ as it changes to the generic version. Read on for resources to support your patients for prescription changes.

Ask us a question

Our conference volunteers are here to help so do take a moment to contact us if you have anything you'd like to ask.

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Latest

Jennifer's fundraising for Addison's disease

I'm raising money for the Addison's Disease Self Help Group so that they can continue to support people with Addison's and adrenal insufficiency. Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.
Behind the Research: U-RHYTHM

Dr Thomas Upton updates us on the development of U-RHYTHM, a wearable device to measure hormones, including cortisol levels, in the body over the full 24 hours, following the release of their clinical trial study,
Behind the Research: The PULSES trial - Pulsatile Cortisol Infusion Pump

Dr Georgina Russell updates us on The PULSES trial, looking at the effect of pulsatile cortisol pump therapy on quality of life, mood, sleep, behavioural and cognitive processing and metabolism.
Getting the Flu Jab

Say No to Flu! Book your flu jab today. There is no need to miss out, as it is free to people who are steroid-dependent (everyone with Addison's disease and adrenal insufficiency). Dr Prete, Consultant Endocrinologist, explains more about the importance of getting your flu jab when you are steroid-dependent.

Sick Day Rules

Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.
What is Addison's Disease?

Find out more about Addison's disease and adrenal insufficiency and and how they are treated.
Adrenal Crisis Can Kill
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Novel Coronavirus (COVID-19) - 02/10/2023

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Addison's & Adrenal Insufficiency: Advice for Dentists

The ADSHG guidelines offer illustrative guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more