Endocrine healthcare professionals: How you can support our work

We are so grateful to all our medic volunteers and there are always plenty of ways you can get involved to support our work and continue your professional development at the same time. Here are some of our current opportunities:

1. Set up a Hospital Meeting

For you a Hospital Meeting's a chance to:

Get to know your patients with Adrenal Insufficiency a little better
Check the management of their condition and readiness for emergencies in a less formal setting
Get feedback to help you make your care even more marvellous!
Invite your team to meet people with Adrenal Insufficiency if they haven’t before
Invite your students along to learn from real cases and personal stories

For your patients it's an opportunity to

Share their experiences of AD with others
Practise the Emergency Injection
Talk to a professional about concerns that might not come to light in clinic and that might just help others

2. Involve adrenal insufficiency patients as educators

Invite volunteers with adrenal insufficiency to student exams and other learning sessions to provide them the chance learn about diagnosis and ongoing care from real cases and personal stories. Contact us and we can always contact our members to ask for volunteers as required to help you either online or in person where COVID-19 restrictions allow.

3. Help us connect with your local paramedic unit so we can deliver our online Paramedic Training to more regions

If you have contacts at your local ambulance trust please ask them if they’d be interested in our online training sessions - find out more about our CPD sessions.

Download our poster to share with your Ambulance Trust

4. Lead or conduct research into adrenal insufficiency with the help of our research grants.

5. Share our materials

Download our leaflets and our hospital poster to put up in your waiting rooms and provide to patients in clinic – especially the newly diagnosed. You can also request paper copies of our most popular leaflets using our online leaflet request form.

6. Share your story or perspective with our members

Write an article for our blog or magazine if you have an interesting perspective to share with our members or research you'd like to share with our community. Previous articles include:

7. Attend one of our events

From Medic in a pub to social meetings and larger events like our AGM, usually held in London. We are likely to be holding online events more often in the coming months. Contact us if you'd like to find out more about events you can attend.

Follow us on Twitter, Instagram or Facebook - share our posts and materials with colleagues and your network.

Latest

40th Anniversary Addison's Roadshow

Please join our Addison's Roadshow to celebrate 40 years of the ADSHG! Anyone affected by Addison's disease or adrenal insufficiency, and those that support them, can come along.
Ingrid's Story: Exercising with Addison's

Meet Ingrid who has recently taken up a new hobby, going to the gym. Here Ingrid hopes to inspire others to get exercising this New Year while also reminding us of the importance of managing your Addison’s too.
Shona’s Addison's Afternoon Tea Fundraiser

I'm raising money for the Addison's Disease Self-Help Group so that they can continue to support people with Addison's and adrenal insufficiency. Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.
Behind the Research: Implementation of perioperative guidelines & steroid emergency card

Congratulations Louise Breen on receiving the Annette Louise Seal Memorial Award! Louise shares more about her work as an Advanced Endocrine Nurse Practitioner & first Chair Elect of the Society for Endocrinology Nurse Committee

Sick Day Rules

Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.
Adrenal Crisis - Emergency Help

Adrenal crisis is a time-critical, life-threatening emergency and must be treated immediately. Read the guidance on treating a steroid-dependent patient in adrenal crisis.
What is Addison's Disease?

Find out more about Addison's disease and adrenal insufficiency and and how they are treated.
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
Novel Coronavirus (COVID-19) - 02/10/2023

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Addison's & Adrenal Insufficiency: Advice for Dentists

The ADSHG guidelines offer illustrative guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more