Membership latest A-Z of Addison's Resources We've put together an A-Z of the really useful information and resources available on our website. Have a browse! -A- Addison's Disease What is Addison’s Disease? Managing your Addison’s (Leaflet) Medical terminology explained YouTube videos - explaining Addison's Addison's Disease Day 2023: Happy Addison's Disease Day! 2023: Instagram Highlights 2022: Make a stand! Addison's awareness in hospital 2022: Instagram Highlights Adrenal Crisis (see emergencies) Appointments Consultation Reference Guide for your appointments Making the most of your appointments Ambulance Registering with your local ambulance service ("red flagged") Standalone Ambulance Guidelines on Steroid Dependency added to JRCALC (news) Ambulance Training - virtual CPD sessions Ambulance Experience (personal story) Behind the Research: Ambulance Alert System Autoimmune Polyglandular Syndrome Adrenal Insufficiency due to Autoimmune Polyglandular Syndrome (APS) type I and type II -B- Books Living With Addison’s Book Sue's Celebrity Cookbook for Addison's White Spirit: Carol McKay's Book Featuring Addison's Ali's Story: Spinning through Fog (High Salt Content) Brexit Preparing for Brexit when you have Addison's or Adrenal Insufficiency -C- Carers Twitter chat for Families and Carers Children Children and Young Adults Adam's Story: The AI Warrior Christmas Addison's Advent Round-Up ADSHG Medical Awareness Christmas Cards Circadian Rhythm (timing of doses to suit) Of mice & men - the importance of Diurnal rhythm - Professor Simon Pearce (Members only magazine article) A patient's experience with circadian dosing (Members only magazine article) Behind the Research: U-RHYTHM Clinical Panel The Addison's Clinical Advisory Panel (CAP) Awareness and Endocrinology with Professor John Wass Contraception "Contraception with Addison's disease" - pg.12 Winter 2020 Magazine 'Living with Addison's' book: "Oestrogens, Contraception and Menopause" - pg.50-51 Contraception experiences and conversation on our online forum. Coronavirus (COVID-19) Coronavirus (COVID-19) COVID-19 Vaccinations & Boosters Cortisol sensor Behind the Research - U-RHYTHM Crisis (see Emergencies) -D- Dehydroepiandrosterone (DHEA) Dentist (see also Surgery > Surgical guidelines) Advice for Dentists about Addison's Disease Dexamethasone Use in Covid-19 treatment Doctor (see GPs) Diagnosis Newly Diagnosed Diagnosing Addison’s: A Guide For GPs (Leaflet) Diagnosing Addison's - infographic & article Giulia's Story: Broadcasting Far and Wide YouTube videos - explaining Addison's Diurnal rhythm (see Circadian Rhythm) Drugs (see Medication) Drug Shortages Drug Shortage Causes and Coping Strategies for people with Addison's Disease -E- Emergencies (see also Injection) What you need to know in an emergency Adrenal Crisis Guidelines YouTube video - Adrenal crisis: when to give an emergency injection SOS - Sanctuary of Support Steroid Emergency Cards Philippa's Story: stomach bug causes adrenal crisis Dan's Story: my adrenal crisis & hospital admission How to avoid precipitating an acute adrenal crisis (medical article by Professor Wass) Emergency Injection kit Prepare your own Emergency Kit Buy an ADSHG Emergency Kit Using an Emergency Kit Emergency Injection Instruction Leaflets Emergency Injection Kit blog - #ShareYourKit Sharps Into Venues YouTube demonstration videos Employment (see Work) Endocrinologists and Endocrine Nurses You and Your Endocrinologist Consultation Reference Guide for your appointments Information for Healthcare professionals Nurses produce Injection Video (blog) Digital steroid coding system for patients (blog) Make a stand! Addison's awareness in hospital (blog) The 4E: Engage, Educate, Equip & Empower (blog) 'Stress Deconvoluted' - Dr Gary Hammer & the adrenal gland (blog) Exercise How to keep on top of Exercise Twitter chat: What about Sport and Exercise? Adam's Story: Becoming FitterFasterStronger with Addison's disease Becca's Story: Positive Pants 10 Mile Walk Stuart's #ShareYourKit (racing driver) Anna's Story: Jumping Around (British Showjumper) European Journal of Endocrinology EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19 Events Events calendar Members' Social Meetings AGM London Meeting 2023: Instagram Highlight -F- Family Children and Young Adults So just how do you tell your family and friends? Twitter chat for Families and Children Attending the Scottish Paediatric Endocrine Group Event 2023 Fasting (faith) Fasting with Adrenal Insufficiency leaflet Behind the Research with Dr Shazia Hussain Famous Lives Flu 2023: Getting the flu jab Fludrocortisone (see steroids) Fludrocortisone - why it is prescribed and different brands "Why Salt?" Food Lynsey's Story: Pickle Addiction Photoshoot Twitter Chat: Sport & Exercise (healthy living advice) Fundraise Fundraise for the ADSHG Charity Dinner and Casino Night Donate While You Shop -G- Glossary (see Medical terminology explained) GPs Caring for the UK Addison’s patient with Addison’s Disease for GPs (leaflet) Caring for the ROI Addison’s patient with Addison’s Disease for GPs (leaflet) Coping with your GP Practice Diagnosing Addison’s: A Guide For GPs (leaflet) Diagnosing Addison's - infographic & article Information for Healthcare professionals Newly Diagnosed – work with your doctor Make the most of your appointments Educating GPs - free RCGP Adrenal Insufficiency course RCGP Poster: Information for your GP -H- HIV HIV: A hidden cause of Adrenal Insufficiency | Addison's Disease Self-Help Group (addisonsdisease.org.uk) Hospital (see also Surgery, Nursing, and GPs) SOS - Sanctuary of Support Preparing for a Hospital Admission Philippa's Story: stomach bug causes adrenal crisis Jennifer's Story: emergency surgery during COVID Dan's Story: my adrenal crisis & hospital admission Hydrocortisone Infusion Pump Behind the Research: The PULSES trial - Pulsatile Cortisol Infusion Pump Crono-P pump (subcutaneous pulsatile glucocorticoid replacement therapy) and Medtronic pump (CSHI) experiences and conversation on our online forum. ADSHG Research Grant winner: "UK experience with continuous subcutaneous hydrocortisone infusion in patients with adrenal insufficiency" Starting a continuous hydrocortisone infusion pump service in my London clinic (members only magazine article - pg.6) Patient's experience with the hydrocortisone pump (members only magazine article - pg.7) Continuous subcutaneous hydrocortisone infusion (CSHI) pump therapy (Peter Hindmarsh, Professor of Paediatric Endocrinology). Members only magazine article - pg.10-11. A Norwegian experience with Continuous Subcutaneous Hydrocortisone Infusion (CSHI) - Professor Kristian Løvås & Dr. Marianne Øksnes (members only magazine article - pg.12) Hydrocortisone (see Steroids) History Our History ADSHG Founder Deana Kenward: From an Unusual Tan to the TV Times and beyond! -I- Injection (see Emergency Injection Kit) Influenza (see flu) International Addison's Day (see Addison's Disease Day) Ireland Addison's Ireland 2022 Ireland Meeting: Instagram Highlight Caring for the ROI Addison’s patient with Addison’s Disease for GPs (Leaflet) -M- Magazine Medical terminology explained Medication Dislike splitting tablets? Smaller doses now available! Fludrocortisone - why it is prescribed and different brands Why Salt? A name change for Solu-Cortef Injectable Hydrocortisone Sodium Phosphate Medication management and COVID-19 Pill Pocket Medical Alert Jewellery Medical Alert Jewellery or ID Be Prepared - resources to help you Medics4RareDisease RD101 Education Platform (news) Meetings (see Events) Membership Renew your membership Join the ADSHG - together we're stronger! Online Forum Membership enquiries Menopause "Managing the Menopause" - pg.13-14 Winter 2020 Magazine "Menopause and Bone Density" pg.15 Winter 2020 Magazine 'Living with Addison's' book: "Oestrogens, Contraception and Menopause" - pg.50-51 Menopause experiences and conversation on our online forum. Mental Health (see Stress) -N- Nursing (see also Endocrinologists and Endocrine Nurses) Nursing the Addison’s Patient (Leaflet) Information for Healthcare professionals Nurses produce Injection Video (blog) Digital steroid coding system for patients (blog) Make a stand! Addison's awareness in hospital (blog) The 4E: Engage, Educate, Equip & Empower Beth's #ShareYourKit - Nurse with Addison's Newly diagnosed Newly diagnosed? We are here to help SOS - Sanctuary of Support Join our charity for more support NHS Steroid Emergency Card -P- Pandemics (see Coronavirus) Paramedics (see Ambulance) Personal Stories (blog) Posters Premenstrual Symptoms (PMS) "Up-dosing for premenstrual symptoms (PMS)" - pg.12 Winter 2020 Magazine PMS experiences and conversation on our online forum. Pregnancy Blog: "How adrenal insufficiency affected my pregnancy" "Pregnancy and Addison's disease" - pg.12-13 Winter 2020 Magazine Pump (see Hydrocortisone Infusion Pump) -R- Ramadan Fasting with Adrenal Insufficiency leaflet Behind the Research with Dr Shazia Hussain Rare Disease Policy New Rare Diseases Framework Released (News) Research ADSHG Research Grants Research Applications Research related blog posts Research related news stories -S- #ShareYourKit School and Students When A Student Has Addison’s (Leaflet) Thanooshan's Story: My law degree or my Addison's Shingles Shingles Vaccination Shortages (see Drug Shortages) Sickness Sick Day Rules Sleep Of mice & men - the importance of Diurnal rhythm - Professor Simon Pearce (Members only magazine article) Sport (see Exercise) Steroids (see also Medication) Medication management and COVID-19 Medical terminology explained Dislike splitting tablets? Smaller doses now available! Fludrocortisone - why it is prescribed and different brands Steroid Cards NHS Steroid Card Released All Steroid Cards Stomach bug Stomach bug causes adrenal crisis Stress Coping with emotional & psychological stress Reducing the stress of a long-term condition SOS - Sanctuary of Support Our Wren Project Partnership - free listening service Surgery Surgical Guidelines (Leaflet) Drug Chart Steroid Alert Stickers Jennifer's Story: emergency surgery during COVID Advice for Dentists -T- Tattoos Hannah's Story: Addison's Abroad & Awareness Tattoo Travel Adrenal crisis letters in a range of languages Travel Tips Member’s Travel Tips Travelling Making the most of holidays Hannah's Story: Addison's Abroad & Awareness Tattoo Teenagers Children and Young Adults Kristian's Story: Adapting to Addison's Katy & Sophie's Story: 'My Rare Disease' Podcast Blog: Experiences from Young People Twitter Chats Being Prepared for Emergencies (Twitter Chat) Families & Carers (Twitter Chat) Sport & Exercise (Twitter Chat) Work & School (Twitter Chat) -U- Useful links to other organisations Participation in the Bristol ULTRADIAN study Behind the Research - U-RHYTHM -V- Vaccinations Vaccines & adrenal insufficiency Vaccination Personal Stories See Flu Jab Virus (see Coronavirus) Volunteer -Y- Young People Children and Young Adults Blog: Experiences from Young People YouTube Injection Videos ADSHG picks from the web -W- Wills Leave a legacy Words Words for feeling better – or worse Work When an Employee Has Addison’s (Leaflet) Information for Employers Hannah's #ShareYourKit (managing her job in the Police) Giulia's Story: Broadcasting Far and Wide Worldwide support Useful links to other organisations Is anything missing? 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