Membership latest A-Z of Addison's Resources We've put together an A-Z of the really useful information and resources available on our website. Have a browse! -A- Addison's Disease What is Addison’s Disease? Managing your Addison’s (Leaflet) Ambulance Ambulance service (local) - registering with "red flagged" Ambulance Guidance - JRCALC Guidance 2017 update (news) Ambulance Training - virtual CPD sessions Ambulance Experience (personal story) -B- Books Living With Addison’s Book Sue's Celebrity Cookbook for Addison's Brexit Preparing for Brexit when you have Addison's or Adrenal Insufficiency -C- Carers Twitter chat for Families and Carers Children Children and Young Adults Circadian Rhythm (Timing of Doses to suit) Of mice & men - the importance of Diurnal rhythm - Professor Simon Pearce (Members only magazine article) A patient's experience with circadian dosing by Trustee, Amanda Colman (Members only magazine article) Clinical Panel The Addison's Clinical Advisory Panel (CAP) Coronavirus (COVID-19) Coronavirus (COVID-19) COVID-19 Vaccination Information COVID-19 Vaccination Personal Stories Crisis (See Emergencies) -D- Dentist (see also Surgery > Surgical guidelines) Advice for Dentists about Addison's Disease Dexamethasone Use in Covid-19 treatment Doctor (see GPs) Dogs Living with an alert dog: Rhea and Jan’s story Diurnal rhythm (Ses Circadian Rhythm) Drugs Medication management and COVID-19 Pill Pocket Drug Shortages Drug Shortage Causes and Coping Strategies for people with Addison's Disease -E- Emergencies (See also Injection) What you need to know in an emergency ADSHG Crisis Guidelines Personal Emergency Plan (Leaflet) How to avoid precipitating an acute adrenal crisis (Article by Professor Wass) ADSHG SOS - Sanctuary of Support Emergency admission (personal experience) Emergency kit Prepare your own Emergency Kit Buy an ADSHG Emergency Kit Using an Emergency Kit Emergency Injection Instruction Leaflets Emergency Injection Kit blog - #ShareYourKit Employment (see Work) Endocrinologists and Endocrine Nurses You and Your Endocrinologist Starting a continuous hydrocortisone infusion pump service in my clinic (Members only magazine article) Information for Healthcare professionals Nurses produce Injection Video (blog) Exercise How to keep on top of Exercise Twitter chat: What about Sport and Exercise? European Journal of Endocrinology EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19 -F- Family Children and Young Adults So just how do you tell your family and friends? Welcoming baby Raphael Twitter chat for Families and Children Fasting (faith) Fludrocortisone (See steroids) Flu Jabs Getting a Flu Vaccination Fundraise -G- Glossary - (See Medical terminology explained) GPs Diagnosing Addison’s: A Guide For GPs (Leaflet) Caring for the UK Addison’s patient with Addison’s Disease for GPs (Leaflet) Caring for the ROI Addison’s patient with Addison’s Disease for GPs (Leaflet) Coping with...your GP Practice Information for clinicians Information for Healthcare professionals Newly Diagnosed – work with your doctor Medical Summary -H- Hospital (See also Surgery, Nursing, and GPs) Member story – Emergency Hospital Admission ADSHG SOS - Sanctuary of Support Preparing for Hospital Admission Hydrocortisone Infusion Pump Starting a continuous hydrocortisone infusion pump service in my London clinic (members only magazine article - pg.6) Patient's experience with the hydrocortisone pump (members only magazine article - pg.7) A Norwegian experience with Continuous Subcutaneous Hydrocortisone Infusion (CSHI) - Professor Kristian Løvås & Dr. Marianne Øksnes (members only magazine article - pg.12) ADSHG Research Grant award winner (2017 Annette Louise Seal Memorial Award) "UK experience with continuous subcutaneous hydrocortisone infusion in patients with adrenal insufficiency" Participation in the Bristol ULTRADIAN study (members only magazine article - pg.9) Continuous subcutaneous hydrocortisone infusion (CSHI) pump therapy (Peter Hindmarsh, Professor of Paediatric Endocrinology). Members only magazine article - pg.10-11. Crono-P pump (subcutaneous pulsatile glucocorticoid replacement therapy) and Medtronic pump (CSHI) experiences and conversation on our online forum. Hydrocortisone (See Steroids) History Our History - Deana Kenward (Founder & Patron) -I- Injection (See also Emergency Kit) Emergency Injection (including videos) Emergency Injection Instruction Leaflets Influenza (see flu) International Addison's Day International Addison's Day 2020: Catch up on the highlights International Addison's Day 2020: Access to 'Advanced Practice in Endocrinology Nursing' book -M- Magazine Medical terminology explained Medication Medication management and COVID-19 Medical Alert Jewellery Medical Alert Jewellery or ID Medics4RareDisease RD101 Education Platform (news) Membership Renew your membership Join the ADSHG for the first time (or it's been 18 months since you were last a member) Membership enquiries Mental Health (see Stress) -N- Nursing (See also Endocrinologists and Endocrine Nurses) Nursing the Addison’s Patient (Leaflet) Information for Healthcare professionals Nurses produce Injection Video (blog) Newly diagnosed Newly diagnosed? We are here to help ADSHG SOS - Sanctuary of Support -P- Pandemics (See Coronavirus) Paramedics (see Ambulance) Personal Stories Pregnancy How adrenal insufficiency affected my pregnancy Pump (See Hydrocortisone Infusion Pump) -R- Ramadan Rare Disease Policy New Rare Diseases Framework Released (News) Research: ADSHG Research Grants Research Applications Research related blog posts Research related news stories -S- #ShareYourKit School and Students When A Student Has Addison’s (Leaflet) Shortages (See Drug Shortages) Sickness Sick Day Rules Sport (see Exercise) Steroids Medication management and COVID-19 Medical terminology explained Steroid card, NHS download New Steroid Card Introduced Stomach bug Stomach bug causes adrenal crisis Stress Coping with...psychological stress Reducing the stress of a long-term condition ADSHG SOS - Sanctuary of Support Surgery Surgical Guidelines (Leaflet) Drug Chart Steroid Alert Stickers -T- Travel Adrenal crisis letters in a range of languages Travel Tips Member’s Travel Tips Travelling Making the most of holidays Teenagers Children and Young Adults Terminology, medical (See Medical terminology explained) Twitter Chats Being Prepared for Emergencies (Twitter Chat) Families & Carers (Twitter Chat) Sport & Exercise (Twitter Chat) Work & School (Twitter Chat) -U- Useful links to other organisations Participation in the Bristol ULTRADIAN study (members only magazine article - pg.9) -V- Vaccinations Vaccines & adrenal insufficiency Vaccination Personal Stories See Flu Jab Virus (See Coronavirus) Volunteer -Y- Young People Children and Young Adults YouTube Injection Videos ADSHG picks from the web -W- Wills Leave a legacy Words Words for feeling better – or worse Work When an Employee Has Addison’s (Leaflet) Information for Employers Worldwide support Useful links to other organisations Is anything missing? 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