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  1. Membership latest

A-Z of Addison's Resources

We've put together an A-Z of the really useful information and resources available on our website. Have a browse!

-A-

Addison's Disease

What is Addison’s Disease?

Managing your Addison’s (Leaflet)

Ambulance

Ambulance service (local) - registering with "red flagged"

Ambulance Guidance - JRCALC Guidance 2017 update (news)

Ambulance Training - virtual CPD sessions

Ambulance Experience (personal story)

 

-B-

Books

Living With Addison’s Book

Sue's Celebrity Cookbook for Addison's 

Brexit

Preparing for Brexit when you have Addison's or Adrenal Insufficiency

-C-

Carers

Twitter chat for Families and Carers

Children

Children and Young Adults

Circadian Rhythm (Timing of Doses to suit)

Of mice & men - the importance of Diurnal rhythm - Professor Simon Pearce (Members only magazine article)

 A patient's experience with circadian dosing by Trustee, Amanda Colman (Members only magazine article)

Clinical Panel

The Addison's Clinical Advisory Panel (CAP)

Coronavirus (COVID-19)

Coronavirus (COVID-19)

COVID-19 Vaccination Information

COVID-19 Vaccination Personal Stories

Crisis (See Emergencies)

-D-

Dentist (see also Surgery > Surgical guidelines)

Advice for Dentists about Addison's Disease

Dexamethasone

Use in Covid-19 treatment

Doctor (see GPs)

Dogs

Living with an alert dog: Rhea and Jan’s story

Diurnal rhythm (Ses Circadian Rhythm)

Drugs

Medication management and COVID-19

Pill Pocket

Drug Shortages

Drug Shortage Causes and Coping Strategies for people with Addison's Disease

 

-E-

Emergencies (See also Injection)

What you need to know in an emergency

ADSHG Crisis Guidelines

Personal Emergency Plan (Leaflet)

How to avoid precipitating an acute adrenal crisis (Article by Professor Wass)

ADSHG SOS - Sanctuary of Support

Emergency admission (personal experience)

Emergency kit

Prepare your own Emergency Kit

Buy an ADSHG Emergency Kit

Using an Emergency Kit

Emergency Injection Instruction Leaflets

Emergency Injection Kit blog - #ShareYourKit

Employment (see Work)

Endocrinologists and Endocrine Nurses

You and Your Endocrinologist

Starting a continuous hydrocortisone infusion pump service in my clinic (Members only magazine article)

Information for Healthcare professionals

Nurses produce Injection Video (blog)

Exercise

How to keep on top of Exercise

Twitter chat: What about Sport and Exercise?

European Journal of Endocrinology

EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19

 

-F-

Family

Children and Young Adults

So just how do you tell your family and friends?

Welcoming baby Raphael

Twitter chat for Families and Children

Fasting (faith)

Fludrocortisone (See steroids)

Flu Jabs

Getting a Flu Vaccination

Fundraise

 -G-

Glossary - (See Medical terminology explained)

GPs

Diagnosing Addison’s: A Guide For GPs (Leaflet)

Caring for the UK Addison’s patient with Addison’s Disease for GPs (Leaflet)

Caring for the ROI Addison’s patient with Addison’s Disease for GPs (Leaflet)

Coping with...your GP Practice

Information for clinicians

Information for Healthcare professionals

Newly Diagnosed – work with your doctor

Medical Summary

 

-H-

Hospital (See also Surgery, Nursing, and GPs)

Member story – Emergency Hospital Admission

ADSHG SOS - Sanctuary of Support

Preparing for Hospital Admission

Hydrocortisone Infusion Pump

Starting a continuous hydrocortisone infusion pump service in my London clinic (members only magazine article - pg.6)

Patient's experience with the hydrocortisone pump (members only magazine article - pg.7)

A Norwegian experience with Continuous Subcutaneous Hydrocortisone Infusion (CSHI) - Professor Kristian Løvås & Dr. Marianne Øksnes (members only magazine article - pg.12)

ADSHG Research Grant award winner (2017 Annette Louise Seal Memorial Award) "UK experience with continuous subcutaneous hydrocortisone infusion in patients with adrenal insufficiency"

Participation in the Bristol ULTRADIAN study (members only magazine article - pg.9)

Continuous subcutaneous hydrocortisone infusion (CSHI) pump therapy (Peter Hindmarsh, Professor of Paediatric Endocrinology). Members only magazine article - pg.10-11.

Crono-P pump (subcutaneous pulsatile glucocorticoid replacement therapy) and Medtronic pump (CSHI) experiences and conversation on our online forum.

Hydrocortisone (See Steroids)

History

Our History - Deana Kenward (Founder & Patron)

-I-

Injection (See also Emergency Kit)

Emergency Injection (including videos)

Emergency Injection Instruction Leaflets

Influenza (see flu)

International Addison's Day

International Addison's Day 2020: Catch up on the highlights

International Addison's Day 2020: Access to 'Advanced Practice in Endocrinology Nursing' book

-M- 

Magazine

Medical terminology explained

Medication

Medication management and COVID-19

Medical Alert Jewellery

Medical Alert Jewellery or ID

Medics4RareDisease

RD101 Education Platform (news)

Membership

Renew your membership

Join the ADSHG for the first time (or it's been 18 months since you were last a member)

Membership enquiries

Mental Health (see Stress)

-N-

Nursing (See also Endocrinologists and Endocrine Nurses)

Nursing the Addison’s Patient (Leaflet)

Information for Healthcare professionals

Nurses produce Injection Video (blog)

Newly diagnosed

Newly diagnosed? We are here to help

ADSHG SOS - Sanctuary of Support

 

-P-

Pandemics (See Coronavirus)

Paramedics (see Ambulance)

Personal Stories

Pregnancy

How adrenal insufficiency affected my pregnancy

Pump (See Hydrocortisone Infusion Pump)

-R-

Ramadan

Rare Disease Policy

New Rare Diseases Framework Released (News)

Research:

ADSHG Research Grants

Research Applications

Research related blog posts

Research related news stories

-S-

#ShareYourKit

School and Students

When A Student Has Addison’s (Leaflet)

Shortages (See Drug Shortages)

Sickness

Sick Day Rules

Sport (see Exercise)

Steroids

Medication management and COVID-19

Medical terminology explained

Steroid card, NHS download

New Steroid Card Introduced

Stomach bug

Stomach bug causes adrenal crisis

Stress

Coping with...psychological stress

Reducing the stress of a long-term condition

ADSHG SOS - Sanctuary of Support

Surgery

Surgical Guidelines (Leaflet)

Drug Chart Steroid Alert Stickers

 

-T-

Travel

Adrenal crisis letters in a range of languages

Travel Tips

Member’s Travel Tips

Travelling

Making the most of holidays

Teenagers

Children and Young Adults

Terminology, medical (See Medical terminology explained)

Twitter Chats

Being Prepared for Emergencies (Twitter Chat)

Families & Carers (Twitter Chat)

Sport & Exercise (Twitter Chat)

Work & School (Twitter Chat)

-U-

Useful links to other organisations

Participation in the Bristol ULTRADIAN study (members only magazine article - pg.9)

-V-

Vaccinations

Vaccines & adrenal insufficiency

Vaccination Personal Stories

See Flu Jab

Virus (See Coronavirus)

Volunteer

-Y-

Young People

Children and Young Adults

YouTube

Injection Videos

ADSHG picks from the web

-W-

Wills

Leave a legacy

Words

Words for feeling better – or worse

Work

When an Employee Has Addison’s (Leaflet)

Information for Employers

Worldwide support

Useful links to other organisations 

Is anything missing?

Please send us your website suggestions and feedback

Published: 12th August, 2019

Updated: 9th April, 2021

Author: Vick Smith

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Published: 22nd February, 2019

Updated: 19th February, 2021

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Copyright © Addison's Disease Self-Help Group Registered as Charity number 1179825

The information contained within this website is not intended to provide clinical diagnosis and/or personalised medical advice. It should not be treated as such. Always seek the advice of your doctor or a health care professional before starting any new treatment for your underlying condition. While we have taken every care to compile accurate information to reflect the current state of knowledge, we cannot guarantee its correctness and completeness. The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.