You & Your General Practitioner

As Addison’s is a rare condition, your GP may never have treated a patient with this before. This means that often you will know more about your condition than your GP does and you will need to work together on your medical care.

Download and print out copies of our two information leaflets aimed at GPs – ‘Diagnosing Addison’s: a guide for GPs’ and ‘Caring for the UK Addison’s patient: information for GPs’ (we also have a separate version of this leaflet for those who live in Ireland). Take these leaflets with you to your appointment to give them to your GP to read.

Your GP can be a great ally in helping you to manage your Addison’s and it’s important that you work together to achieve this.

You & Your Endocrininologist

When you are diagnosed with Addison’s, within the UK and Ireland it is expected that your GP will refer you to the care of an endocrinologist (a doctor who looks after people with hormone-related conditions).

You are likely to have lots of questions about your condition that your endocrinologist will do their best to answer, and it’s important that you try to learn as much as possible about how to manage your condition day to day. However, during consultations, it can sometimes be difficult to remember all the things you want to ask. Some people find it useful to write a list of questions to take with them while others like to have a friend or family member accompany them to ask questions.

Many endocrine units have endocrine specialist nurses who can be an excellent source of information and support. Find out if your hospital has an endocrine specialist nurse and if you can be put in touch with them. You may wish to ask your GP to arrange for you to be referred to one of the endocrine centres in your region that can offer specialist endocrine nurse support.