Drug shortage alert: injectable hydrocortisone

Advanz Pharma, the supplier of hydrocortisone sodium phosphate, has confirmed that due to manufacturing issues, they are currently unable to supply the liquid hydrocortisone and expect to resume supply by Q1 2023. Read more

ADSHG community shares tributes to former chair Katherine White

Earlier this week members of the Addison’s community were dismayed to learn of the passing of Katherine White the indefatigable chair of the Addison's Disease Self Help Group for many years. Read more

Novel Coronavirus (COVID-19) - 24/02/2021

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government. Read more

Sign this petition to help bring down generic drug prices

Sign this petition to help prevent the unethical practice of price gouging. We speak with Professor Karim Meeran, Endocrinologist at Imperial College London to learn more about this vital petition. Read more

Research Opportunity: Self-management for people with adrenal insufficiency

Do you have adrenal insufficiency? Please consider taking part in this research study led by Dr Sofia Llahana looking at what helps you better manage your condition and treatment, as well as the barriers. Read more

Addison's disease officially added to UK JCVI COVID-19 vaccine priority group

Healthcare professionals in the UK refer to the JCVI's 'Green Book' when adding patients into priority groups for vaccinations. In the July 2021 update to the dedicated chapter on Covid-19, Addison's Disease has been added to a risk group that should receive COVID-19 immunisation. Read more

Exclusive Access to 'Advanced Practice in Endocrinology Nursing' textbook

This Addison's Disease Day, publishers Springer are generously giving you exclusive access to the 'Advanced Practice in Endocrinology Nursing' and two of their chapters on adrenal insufficiency, by Sofia Llahana, Irene Mitchelhill, Phillip Yeoh and Marcus Quinkler. Read more

Research Questionnaire: Adrenal Insufficiency & Motion Sickness

Do you have Addison’s or adrenal insufficiency? Please consider completing this new research questionnaire looking at motion sickness, led by Abigail Lee at the University of Leicester. Read more

New UK Rare Diseases Framework launched

On 9 January 2021, the Department of Health and Social Care published the UK Rare Diseases Framework. But what does this policy mean for those with Addison’s disease, adrenal insufficiency and the rare disease community as a whole? Read more

Preparing for Brexit when you have Addison's or Adrenal Insufficency - 08/12/2020

A deal has just been announced regarding the European Union. it's worth being prepared for the possible outcomes when you have Addison's or Adrenal Insufficiency. Read more

Behind the News: Hydrocortisone as a Covid-19 Treatment - 09/12/2020

In recent days, UK news networks have been sharing a story about new studies hailing Hydrocortisone as a Covid-19 treatment. We asked our medics to review the research and the emerging stories so that we can give you a balanced perspective while also updating you on any impacts to the drug supplies we depend on. Read more

Adrenal Causes Together COVID-19 Survey

Complete the Adrenal Causes Together (ACT) survey to help determine the impact of COVID-19 on people with all forms of adrenal insufficiency from around the world. Read more

Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams! Read more

New Video: Managing medication and COVID-19 - 29/03/2020

In our latest video, ADSHG Trustee and Professor of Endocrinology explains how to manage your medication should you get ill in the coming weeks. Read more

Addison's wins Commended in the 2019 BMA Patient Information Awards. - 25/09/2019

We’re delighted to announce "Living with Addison's Disease – A Guide For People With Addison's, Supporters and Professionals", has been commended by the 2019 BMA Patient Information Awards. Read more

An update on our websites - 13/08/2019

We launched our new website, addisonsdisease.org.uk earlier this year. Since then you’ve been sharing your thoughts and ideas about how we can improve it. Read more

2019 Paramedic Training for Adrenal Crisis Management Project

Our aim with this project was to reach as many paramedics and ambulance crews as possible, all over the country, with a seminar focusing on adrenal crisis and emergency management of Addison’s. Read more

Facing Addison's - 17/03/2019

As part of our drive to raise awareness of Addison’s Disease, we’ve started a project which will culminate with an exhibition and book - Facing Addison’s. Our collaborator is award-winning photographer Lucy Sewill, best known for her perceptive portraits of major British celebrities. Read more

Post-Brexit Medicines Supply : No Need To Panic - 24/01/2019

Over recent weeks, people have become increasingly alarmed about media stories of Brexit-related shortages of medicines. Read more

A Successful SfE Conference for ADSHG - 19/11/2018

The Society for Endocrinology invited the Addison's Disease Self-Help Group to their annual meeting Glasgow on 19th-21st November 2018 to help raise awareness of adrenal insufficiency amongst clinicians. Read more

Raising Awareness of Addison's At BSPED - 12/11/2018

Our aim in attending was to raise awareness of Addison's Disease amongst the medical fraternity and to participate in related symposium discussions. Read more

New ambulance guidelines on adrenal crisis

The updated JRCALC 2017 Clinical Practice Guidelines incorporate new ambulance guidelines on adrenal crisis, following input from the ADSHG and The Pituitary Foundation, steered by the Chair of the ADSHG’s clinical advisory panel, Prof John Wass. Read more