Do you have adrenal insufficiency and have experienced an adrenal crisis in the past 3 years? Aldons Chua, Endocrine Clinical Nurse Specialist, is leading research into improving adrenal insufficiency and adrenal crisis management, and is inviting you to take part.

The aim of the study is to explore the experiences of people with adrenal insufficiency in managing adrenal crisis - to identify any unmet needs, inequalities, barriers, and facilitators in using the current hydrocortisone injection. They want to identify what helps or interferes with your ability in using the injection to manage an adrenal crisis.

The study has been endorsed and part funded by the Society for Endocrinology.

 Who can take part:

• People aged 18 years or older.
• People with adrenal insufficiency, who are currently taking cortisol (steroid) replacement as treatment for adrenal insufficiency.
• Have had an adrenal crisis episode in the last 3 years during which:
  • have received parenteral hydrocortisone (either self-injected or administered by a family member/ friend or by a healthcare professional), or
  • have unsuccessfully attempted to self-administer the parenteral hydrocortisone injection.
• People who live and receive medical care in the United Kingdom.

 

What is involved:

• You will be asked to complete a 3-minute online questionnaire.
• You will be invited for an hour interview for you to share your experience.

Participants will receive a £20 high street voucher as a token of appreciation for their time and help. Participants can also nominate one family member if they feel the need for support to recollect the events during adrenal crisis.

 

How to take part:

	Click to take part or scan the QR code to find out more about the study.   Please take time to read the Patient Information Sheet (PIS) and discuss with others if you wish.
	Download the research study poster
	Contact Aldons Chua on e-mail: [email protected]

FAQ: What is parenteral hydrocortisone?

Parenteral hydrocortisone is an intramuscular injection of 100mg hydrocortisone. It can be administered using, either a 3ml syringe with 22-gauge blue needle, or a 3ml safety syringe. The hydrocortisone medication also comes in different forms, either the powder form that needs to be mixed with water for injection or the liquid form. The provision of these depends per clinician / endocrine centre.

Click to take part 

Thank you Aldons Chua for researching further into this rare area of endocrine research for the benefit of those living with adrenal insufficiency and to improve adrenal crisis care.

The ADSHG receives regular approaches from researchers who are seeking our assistance with recruiting participants for their scientific projects. These approaches range from requests to publicise online questionnaires, to requests to assist with long-term clinical trials. Click here to more read more about our research application process

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