Happy Addison's Disease Day! A day for everyone who is affected by Addison's disease and adrenal insufficiency, to come together to raise awareness and celebrate this amazing community.

It's hard to believe it has been 40 incredible years since the ADSHG charity began. To mark this milestone, our theme this year is #StrongerTogether, showing what we can achieve when we unite and work together, demonstrating the power of people and their support for one another. 

Together we have educated medical professionals around the world, influenced NHS decision-making and funded breakthrough research - all whilst supporting everyone affected by Addison's and adrenal insufficiency. Whilst we may be rare, by working together our impact is impossible to ignore. Read on to find out more!

Join our #StrongerTogether community at our Addison's Roadshow events! Meet others affected by Addison’s and adrenal insufficiency, hear from expert Endocrine Professors and Consultants, and practise the hydrocortisone emergency injection with Endocrine Nurses.

The Roadshow is part of our 40th anniversary celebrations and everyone is welcome! So bring someone close to you to help them gain confidence in administering the emergency injection, or come alone and make new friends! Whatever you choose, we hope you can join us this July and August in Glasgow, London, Cardiff and Newry!

Find out more & RSVP

Breakthrough Research

Being able to fund and volunteer as participants for breakthrough research motivates us every day, getting us closer to the desperately needed improved care for our under-recognised, life-threatening condition. By working with healthcare professionals and thanks to your incredible fundraising and donations, this vital research support is made possible. 

At our Addison’s Roadshow events you’ll be able to hear from two of the researchers currently working to improve our daily lives. Julia Anthony from SOLUtion Medical will be in London to talk about the development of the one-step emergency injector for adrenal crisis. Professor Stafford Lightman will be in Cardiff to update us on wearable technology for steroid dependency, such as cortisol sampling devices and infusion pumps.

If you can't make the events, remember to read our Magazine and Blog where we update you on all research projects and let you know about volunteer opportunities for research studies.

Awareness Stands in your Hospital

Right now across the UK and Ireland, Endocrine Nurses and healthcare professionals are hosting awareness stands to tackle the lack of knowledge and education about steroid dependency.

By using our Awareness Day and working with the Society of Endocrinology Nurses, we can make some noise, grab peoples' attention and importantly provide resources to educate others on this rare condition and the needs of a steroid dependent person. Our end goal; to improve patient care and safety. Keep an eye on our social media and members' magazine for updates on today's stands and the influence they have on their local Hospital Trust.

Information for Healthcare Professionals

Keep joining us in our #ShareYourKit campaign! It's important to talk about injection kits and educate those close to us. We're asking you to share pictures of your hydrocortisone emergency injection kit to educate, remind and encourage people to keep their kits with them at all times.

So snap a photo and post on your social media using the hashtag #ShareYourKit (making sure to tag the ADSHG charity social media accounts too!) If you'd like to feature on our website like Dan, Sue and Shona - send us your #ShareYourKit!

#ShareYourKit

This May we asked you to host an Addison's Afternoon Tea to connect and bring our community together, no matter where you live in the world! Whether it's having tea and biscuits with your besties, to chat through the reality of living with a rare condition, or hosting scones in the sunshine for those with Addison's and adrenal insufficiency local to you - when it comes to Addison's Afternoon Tea, you can have your cake and eat it too! 

Thank you to everyone who got in touch so we could support your Tea. Don't forget to send us your photos and let us know how your Tea went so we can thank you and feature you in our Addison's Afternoon Tea round-up! Would you like to volunteer to host a social local to you in the future?

Learn more about Members' Socials

We can't make Addison's Disease Day a success without you. So spread the word! Share our social media posts, start a fundraising challenge, raise awareness with our resources - we are #StrongerTogether.

So from all of us at the ADSHG, thank you for your support. Our work simply wouldn't be possible without you. Together we will help improve the lives of those with Addison's disease and adrenal insufficiency.

Happy Addison's Disease Day!     #AddisonsDiseaseDay

p.s. Why 29 May? It's the birthday of John F Kennedy, the US President managed his Addison's disease and other autoimmune conditions in secret. His complicated medical history was only revealed to the public years after his death. As arguably the most well-known public figure with Addison's, John F Kennedy’s birthday is a fitting date for us to raise awareness. Read more in our Famous Lives article. 

Whether you're newly diagnosed or have lived with the condition for years - please join our community and support our cause! You'll receive the latest expert advice, guidance and ADSHG news, whilst being part of our inspiring and supportive community. Become a member today! 

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