4th June 2020

During International Addison's Day people with Addison's or Adrenal Insufficiency around the world shared pictures of their kits as part of our #ShareYourKit campaign. 

It's important to talk about kits, educate your families and carers and emergencies, and prepare your own kit

It was reassuring to see so many people had been prescribed the injectable hydrocortisone, needles, syringes, vial snaps, water vials and printed instructions they need to self-manage an adrenal crisis if they have to wait a long time for an ambulance or are not able to quickly reach an A&E department to promptly provide them the extra hydrocortisone and other care they need to recover. 

Getting started

Find out how to prepare your own emergency kit

We estimate that at least 1700 people in the UK are without a kit, many explaining on Twitter and Facebook on International Addison's Day that their GP or Endocrinologist has said they didn't need one as they lived close to a hospital. We know from our members that this assumption has lead to delayed treatment and worse consequences for people with Adrenal Insufficiency. The Society of Endocrinology recently included the provision of emergency kits in its guidance to clinicians on preventing and treating adrenal crisis during the time of COVID-19. Share these resources with your health professionals and bring the subject up again, even if they've said no before.

Getting it all together

From tupperware boxes to purpose made bags, wallets and cleverly arranged elastic bands we saw lots of great examples of storage solutions to suit all and there's still time to share yours using the #ShareYourKit hashtag on social media. Depending on your budget or how creative you are, there are so many options.

Have a browse and get some inspiration

We've brought together a range of kits our followers share on social media. Have a look at how others have tackled the challenge, and how kits can very depending on your needs. A big thank you to everyone whose brilliant kit post is featured below: