Take Part: Improve Sick Day Guidance for Young People

If you're a young person with adrenal insufficiency, including Addison's, or the parent of a young person with the condition, we've got an exciting opportunity for you to get involved and make a real difference!

Edge Hill University, working with the British Society for Paediatric Endocrinology and Diabetes (BSPED), are creating brand new UK-wide resources on sick day and emergency management for children, young people and parents, and they want your help to get it right.

The Addison's Disease Self Help Group is proud to be funding this work, with fellow patient support groups Living with CAH and The Pituitary Foundation.

Why this matters

The research is now at an exciting new stage and the team need advisors with real experience of adrenal insufficiency to help make sure the resources actually work for young people and families like you.

It's all done online, so no travelling required! You'll be helping to shape resources that could support thousands of other young people and families across the UK, both now and for years to come.

Interested? Find out more

Who can take part:

- People who live and receive medical care in the United Kingdom.
- Young people aged 10-18 years old with adrenal insufficiency.
- Parents of children of any age with adrenal insufficiency.

You do not need to have done anything like this before and you can join in from home (just a few hours of your time!)

How to take part:

- Follow the link or the QR code to find out more.
- Healthcare professional? Download the poster and share with your patients.
- Please contact Lucy Bray on [email protected] for more information.

Get involved!

Thank you, Lucy Bray, Dr Jarod Wong and the whole team, for undertaking this work for the benefit of those living with Addison’s and adrenal insufficiency.

Addison's disease and adrenal insufficiency can strike at any age. We provide support and information around the specific issues facing children, teenagers and their families. From managing school to moving out and transitioning to hospital adult services.

Visit our children and young persons page for links to all our resources
Read our booklet 'When a student has Addison's: a guide for schools and parents'
Talk to other families on our online forum
Read Blogs from other young people - such as Adam the AI warrior aged 12, or Kristian aged 25.

Whether you're newly diagnosed or have lived with the condition for years - please join our community and support our cause! You'll receive the latest expert advice, guidance and ADSHG news, whilst being part of our inspiring and supportive community. Become a member today!

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