Addison's SOS - Sanctuary of Support for people with Adrenal Insufficiency and Addison's Disease

Here when you feel lost, concerned, puzzled or poorly.

Choose the section that suits the way you are feeling today and find out the support we have on offer for you.

Feeling very unwell

Call 999 for help and follow the instructions on our emergency page if have any of these symptoms

Extreme weakness, feeling terrible, vomiting, headache, light-headedness or dizziness on sitting up or standing up, feeling very cold, uncontrollable shaking, back, limb or abdominal pain, confusion, drowsiness, loss of consciousness.

The Emergency Injection for the treatment of Adrenal Crisis

Sick Day rules for general illnesses

COVID-19 Guidance

Preparing for a hospital admission

Visit Mind's Urgent Help Page if you feel unsafe or need urgent support with your mental health.

Currently in Hospital

Visit our hospital admission page and ask for a friend or relative to support you by:

- Explaining you are steroid-dependent, show your Steroid Emergency wallet card, surgical guidelines or other relevant ADSHG publications

- Bring in a hospital folder, containing info inc your current medication list and ADSHG publications.

- Bringing in salty snacks or other items that help you feel comfortable.

- Visit our online forum for support and to talk things through.

Take some time out to read the many personal stories from people with adrenal insufficiency in our Blog or have a read of our latest Magazine.

Coping with difficult feelings or emotions

Visit Mind's Urgent Help Page if you feel unsafe or need urgent support with your mental health.

Read about your wellbeing and adrenal insufficiency

Coping with emotional stress

Reducing the stress of a long-term condition

So just how do you tell your family & friends

Words for feeling better or worse

Read advice from Mind about how to manage loneliness

Read personal stories from others on our Blog or chat direct on our online forum.

Awaiting a diagnosis?

If you believe you might have adrenal insufficiency, talk through your symptoms with your GP. Take our Diagnosing Addison's Disease: A Guide For GPs with you to help shape the conversation.

Unsure which type of adrenal insufficiency you have? Want to know more? Read our introduction to Addison's disease and adrenal insufficiency.

Try browsing our A-Z which is packed with all sorts of useful information about adrenal insufficiency, or type a word into the search box in our menu to find related topics.

View and download for free all the ADSHG publications

The Patient Advice and Liaison Service (PALS service) offers confidential advice, support and information on NHS and health-related matters. 

Wanting to improve the care you receive from healthcare professionals?

Coping with your GP practice

Share and discuss our ADSHG resources at your next appointment 

Information for Healthcare Professionals

Need help with:

Concerns or problems when you're using the NHS? How to get more involved in your own healthcare? Information about the NHS? Understanding the NHS complaints procedure, including how to get independent help if you want to make a complaint? Finding support groups?

The Patient Advice and Liaison Service (PALS service) offers confidential advice, support and information on health-related matters. 

Newly diagnosed?

Many of our members can relate to some of the feelings you are experiencing right now and had similar questions to ask. We're here to help!

We've put together some useful information to get you started in our guide for the newly diagnosed.

Be Prepared! Learn about steroid cards, medical alert ID and see #ShareYourKit examples from others.

Visit our Blog to read personal experience stories

Watch our YouTube videos on managing adrenal insufficiency and adrenal crisis

Try browsing our A-Z which is packed with all sorts of useful information about adrenal insufficiency, or type a word into the search box in our menu to find related topics.

Chat to others on our online forum.

Contact us if you're unable to find the help you are looking for.

Balancing adrenal insufficiency with other conditions?

Organisations the support people with other autoimmune conditions

Chat to other people with adrenal insufficiency along with other conditions on our online forum.

Visit our Blog to read personal experience stories from others living with adrenal insufficiency.

Contact us if you're unable to find the help you are looking for.

Coping with adrenal insufficiency as a young person or carer of a young person?

Visit our Children and Young Adults support pages.

Watch our CoMIC YouTube videos on managing adrenal insufficiency and adrenal crisis - all under 2 minutes!

Chat to other parents and young adults with adrenal insufficiency on our online forum.

Facing work or financial difficulties?

Advice about the impacts of COVID-19 on employment and your money

When An Employee Has Addison's

Information for employers

We offer support for those facing hardship who would like to join the ADSHG. Read about our different types of membership.

Caring for someone?

Charities that support carers

Having trouble accessing help?

Accessibility Guide for our ADSHG website

Many of our printed / online publications  are available in plain text versions and transcripts of our videos can be sent on request.

Finding things on our website:

Try browsing our A-Z which is packed with all sorts of useful information about adrenal insufficiency, or type a word into the search box in our menu to find related topics.

Unable to get out and about?

Chat to other people with Adrenal Insufficiency in our online forum. Contact us if you're unable to find the help you are looking for.

Live abroad?

Find your nearest adrenal insufficiency support organisation