About us Useful links to other organisations UK groups for associated autoimmune conditions and other causes of steroid-dependence Achalasia Research UK Alopecia UK ALD Life (Adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN)) AMEND - Association for Multiple Endocrine Neoplasia Disorders) Asthma UK British Sjogren's Syndrome Association British Thyroid Foundation Coeliac UK Crohn's and Colitis UK Diabetes UK Parathyroid UK Living with CAH (Congenital adrenal hyperplasia) National Rheumatoid Arthritis Society Pernicious Anaemia Society The Pituitary Foundation The Vitiligo Society National Professional bodies in the field of Endocrinology Society for Endocrinology British Association of Endocrine and Thyroid Surgeons National and international umbrella support groups United KingdomADSHG is a member of the following umbrella/sector charities National Council of Voluntary Organisations (NCVO) Genetic Alliance (UK) National Voices (UK) Rare Diseases UK Belgium Rare Disorders Belgium (RDB) Croatia Croatian Human Resources (HSRB) Ireland Rare Diseases Ireland (previously GORDI) India Organisation for Rare Diseases India (ORDI) United States of America US National Organisation for Rare Diseases (NORD) US National Institute of Diabetes, Digestive and Kidney diseases information on Adrenal Insufficiency Affiliations The Society for Endocrinology supports a number of endocrine-related charities, many of which are listed above. The ADSHG is grateful for the coordination and assistance it provides. It also maintains a public information website, You and your hormones, which has a range of educational materials and a specific page on Addisons/Adrenal insufficiency. European umbrella organisations Endo-ERN - Endo-ERN’s mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine conditions in Europe through facilitating knowledge sharing and related healthcare and research. AdrenalNET- An initiative of the Dutch Adrenal Network that seeks to unite information about adrenal insufficiency across Europe in a central repository and improve patient care. Overseas Addison's support groups Many of the national support groups websites listed below are in languages other than English. Online translators can offer you a rough and ready English language version of these screen-based texts. The most readily available is Google Translate and there are others. Australia Australian Addison's Disease Association Brazil Brazilian Addisonian Association Canada Canadian Addison Society Czech Republic Czech Addison's group (Addisonova Choruba) Denmark Danish Addison's Association Danish Pituitary Network (Hypofyse Netvaerket) Finland APECED & Addison's Society (APECED.org) France Adrenal Association (Association Surrenales) Germany German Network for Pituitary & Addison's Disease (Glandula) Iceland Iceland Addison's Samtökin Ireland Addison's Ireland Italy Italian Addison's Patients Association Netherlands Dutch Adrenal & Cushings Patient Society (NVACP) Dutch Pituitary Foundation (Hypofyse Stichtung) Norway Norwegian Addison's Society South Africa South African Addison’s Group Support (SAAGS) Contact: Tessa Email; [email protected] or write to; 36, 3rd Avenue, Newton Park. Port Elizabeth 6045.South Africa Spain Spanish Addison's Group (Adisen) Sweden Swedish Addison Association Turkey Turkish Addison’s Association United States of America US National Adrenal Diseases Foundation (NADF)