Magazine - Spring 2019

Welcome to our latest members' magazine - available for download now! It's 24 pages packed with news, views and advice from the Addison's community - to the Addison's community.

Our cover is by Elizabeth F, who has Addison’s Disease. Her experience of several adrenal crises inspires her artwork. (You can read more about Elizabeth’s story on page 14.)

The latest magazine is available for members and can be downloaded here :

Download : Magazine - Spring 2019

Contents

Page 2 : Introduction to two of our team

A note from the editors

Page 3 : ADSHG - The community you belong to...

Analysis of our recent members' survey

Save the date - our AGM is an UNconference

Page 4 : Update from the CEO

Launch of legal helpline

Page 5 : Announcing Addison's Friends

Message from the Chair

Page 6 : View from our treasurer

Meet the Trustees - Stuart Pinkerton

Page 7 : Calling an ambulance on the Isle of Wight - Julie Watson reports

Page 8 : Our paramedic training project

Page 9 : Shipments & ports

How will Brexit affect our meds?

Our new campaign - Meds for Life - get involved!

Page 10 : Research matters from Editor, Sally Humphreys

Page 12 : Of mice & men - the importance of Diurnal rhythm - Professor Simon Pearce

Page 13 : A patient's experience with circadian dosing by Trustee, Amanda Colman

Page 14 : Addison's Ireland update

Stories from the Addison's community - unexpected consequences

Page 15 : Memberships & subscriptions

Meet our new membership team!

Revised membership prices from 1st June

Our new registered address

Our new accountancy services providers : FMCS

Our new independent examiners (auditors) : CA Plus

Page 16 : Events and socials updates

Report on Medic-in-a-pub (Newcastle, February)

Report on socials in Glasgow, Nottingham, North East

Details of upcoming socials across the country

Page 18 : Donations & fundraising

Read all about Archie's (aged 8 years) and Molly's stories

Page 19 : London Landmarks Half-Marathon

Dublin Marathon - places available!

Great North Run - places available!

Great Scottish 10k - places available!

Social media - Fundraising Fridays

Page 20 : Social media roundup

Page 21 : #BeanieHatChallenge

Page 22 : Facing Addison's - telling our stories

Page 23 : How to contact us, who is who, stay in touch

Latest

The Patient's Voice at ECE 2024

Join our The Patient's Voice session: ”The Clinical Importance of the Prepared Patient & Healthcare Professional” at ECE 2024, the largest endocrine event in Europe.
40th Anniversary Addison's Roadshow

Please join our Addison's Roadshow to celebrate 40 years of the ADSHG! Anyone affected by Addison's disease or adrenal insufficiency, and those that support them, can come along.
Ingrid's Story: Exercising with Addison's

Meet Ingrid who has recently taken up a new hobby, going to the gym. Here Ingrid hopes to inspire others to get exercising this New Year while also reminding us of the importance of managing your Addison’s too.
Shona’s Addison's Afternoon Tea Fundraiser

I'm raising money for the Addison's Disease Self-Help Group so that they can continue to support people with Addison's and adrenal insufficiency. Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.

Sick Day Rules

Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.
Adrenal Crisis - Emergency Help

Adrenal crisis is a time-critical, life-threatening emergency and must be treated immediately. Read the guidance on treating a steroid-dependent patient in adrenal crisis.
What is Addison's Disease?

Find out more about Addison's disease and adrenal insufficiency and and how they are treated.
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
Novel Coronavirus (COVID-19) - 02/10/2023

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Addison's & Adrenal Insufficiency: Advice for Dentists

The ADSHG guidelines offer illustrative guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more