On 24 June 2023, we attended the Scottish Paediatric Endocrine Group (SPEG) event at the Royal Hospital for Children and Young People, Edinburgh.

The event was specifically for families and children affected by adrenal insufficiency. At the event, we learned about the latest paediatric steroid guidance and research within the adrenal insufficiency community. We also had the opportunity to take part in emergency hydrocortisone injection training and practice administering injections.

Later in the day, we heard presentations from patients who shared their stories about their diagnoses and also how they manage their conditions as young adults. An expert medic Q&A session was also held, allowing families to ask more specific questions about their child's condition.

Families were also given the opportunity to ask questions and discuss their experiences in an informal 'heart to heart' session with other families and patients affected by adrenal insufficiency.  While the parents were conversing the children were taken to another area and entertained with games, arts and crafts and other fun activities.

This event was an excellent opportunity for families affected by adrenal insufficiency to share their experiences, connect with other families and learn from each other. 

Thank you to SPEG for arranging this incredible event!

Author: Chloe

ADSHG Operations Support Assistant

Thank you Chloe for representing the ADSHG at the Scottish Paediatric Endocrine Group event! 

Addison's disease can strike at any age - we're here to support you.

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