Events | Addison's Disease Self-Help Group

Events

All our events are currently online to protect the safety of members and volunteers. Our member socials are still taking place using online tools like Zoom and Teams. We are always looking for more members to become social meeting hosts especially in Wales, Northern Ireland areas of the UK outside the south east.

Ask about your nearest regional social meeting or about hosting you own meeting (members-only)

ADSHG June 2020 Online AGM and Health Professional Q&A - Available to watch on demand

We're taking our 2020 AGM online whilst large gatherings are not taking place at the moment. This members-only event includes a Q&A with Dr Helen Simpson and GP Stephen Kell where they will answer member questions sent in advance. Read more

RAREfest20 - Saturday 28th November 2020

Addison's Disease Self Help Group are proud to be media partners for #RAREfest20 on Sat 28 Nov, putting Rare Diseases firmly into the spotlight. This virtual festival allows festival-goers to enjoy a feast of science, tech, the arts and stories from the comfort of their sofa! Will you join us at #RAREfest20? Get your free tickets now! Read more

Latest

Novel Coronavirus (COVID-19) - 23/11/2020

Our medics have been keeping an eye on the emerging situation. This page is up to date but we will continue updating it regularly as we find out more information from the government.

RAREfest20 - Saturday 28th November 2020

Magazine - Winter 2020

Welcome to our latest members' magazine - available for download now! It's 28 pages packed with news, views and advice from the Addison's community - to the Addison's community.

Christmas Card design competition: the results are in...

After the success of last year's Christmas card competition, we brought back our popular charity competition this year! Thank you to everyone who entered! We put the cards to our ADSHG members to vote for their favourites and the results are in (and on sale now!)

Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!

New Video: Managing medication and COVID-19 - 29/03/2020

In our latest video, ADSHG Trustee and Professor of Endocrinology explains how to manage your medication should you get ill in the coming weeks.

Behind the News: Hydrocortisone as a Covid-19 Treatment - 03/09/2020

In recent days, UK news networks have been sharing a story about new studies hailing Hydrocortisone as a Covid-19 treatment. We asked our medics to review the research and the emerging stories so that we can give you a balanced perspective while also updating you on any impacts to the drug supplies we depend on.

Research Update - Professor Arlt's Perspective - 17/03/2020

In 2017, Weibke Arlt, a member of our Clinical Advisory Panel, published research about Addison's and natural killer cells. In recent weeks, it's gone viral in light of the COVID-19 outbreak. We asked her to give her perspectives on what that means for us. She kindly tweeted her responses yesterday.

Easing lockdown: How are you feeling? - 10/5/2020

It's important to remember you're not alone in experiencing a range of emotions after adapting to lockdown life.

EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19 - 21/04/2020

In response to the unprecedented COVID-19 pandemic, the European Journal of Endocrinology (EJE) editoral board has commissioned a new guidance series for the management of endocrine conditions during COVID-19. Included within this is clinical guidance for the management of Addison's disease and adrenal insufficiency. Here we take a look at this vital new guidance, so you can get a clearer view of what this means for you or your loved ones.

ADSHG Socials: Hosts share personal stories and injection practise in weekend watch party 17/05/2020

ADSHG Socials: Hosts share personal stories and injection practise in weekend watch party

Novel Coronavirus (COVID-19) - 23/11/2020

Our medics have been keeping an eye on the emerging situation. This page is up to date but we will continue updating it regularly as we find out more information from the government.

COVID-19: Clinical Management guidance: Adrenal Insufficiency

For Healthcare Professionals: Suggested management and hydrocortisone stress dose cover in patients with Adrenal insufficiency and suspected or confirmed COVID-19 infection.

Getting a flu vaccination this winter

Getting flu is a thoroughly miserable experience. However, if you are steroid-dependent, the consequences can be very serious, with around a quarter of adrenal crises requiring hospital admission resulting from flu-like illnesses (ADSHG member survey 2013). Fortunately, flu can be prevented – and surely, prevention is better than cure?