Events

All our events are currently online to protect the safety of members and volunteers. Our member socials are still taking place using online tools like Zoom and Teams. We are always looking for more members to become social meeting hosts especially in Wales, Northern Ireland areas of the UK outside the south east.

Ask about your nearest regional social meeting or about hosting you own meeting (members-only)

ADSHG Annual General Meeting 2022 - Members only

Our Members-only ADSHG AGM 2022 will be held on Saturday 16th July 2022 from 11am. We'll be welcoming members to gather together to share experiences and friendship, mark our achievements over the past year, vote on charity matters and listen to a range of talks from experts in the field of adrenal insufficiency. Read more

Virtual TCS London Marathon October 2022

Run anywhere and complete the Virtual TCS London Marathon 2022 within 24 hours, raising much-needed funds and awareness for Addison’s Disease Self-Help Group. Read more

Great South Run 2022

The Great South Run returns on 16 October 2022 in Portsmouth! Whether this is your first running event, or you're a seasoned pro, put on your trainers for our charity, join #TeamAddisons and help make a difference to people's lives. Read more

Virtual TCS London Marathon April 2023

Run anywhere and complete the Virtual TCS London Marathon 2023 within 24 hours, raising much-needed funds and awareness for Addison’s Disease Self-Help Group. Read more

Latest

Our Team

Our charity is governed by a team of volunteer trustees and run day-to-day by our Operations Manager, supported by our wonderful community of volunteers.
ADSHG Event Welcome

Welcome to our ADSHG event. Here we share some of our most visited resources and services so that you can make the most of what the ADSHG has to offer.
Drug shortage alert: injectable hydrocortisone

Advanz Pharma, the supplier of hydrocortisone sodium phosphate, has confirmed that due to manufacturing issues, they are currently unable to supply the liquid hydrocortisone and expect to resume supply by Q1 2023.
Magazine - Summer 2022

Welcome to our latest members' magazine - available for download now! 36 pages packed with news, views and advice from the Addison's community - to the Addison's community.

Sick Day Rules

Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
Novel Coronavirus (COVID-19) - 24/02/2021

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
What is Addison's Disease?

Find out more about Addison's disease and adrenal insufficiency and and how they are treated.
Adrenal Crisis Can Kill
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Receiving the COVID-19 Vaccine - Personal Stories

The COVID-19 vaccination campaign has kicked off - but what does it feel like to receive the COVID-19 vaccine? People with Addison's and adrenal insufficiency share their experiences of receiving the vaccine.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more