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Dr Sofia Llahana, recipient of the ADSHG's Alfred Potter Memorial Medical Research Award, is leading an important study exploring self-management, patient education and care services for people with adrenal insufficiency. Her research aims to identify barriers and opportunities that can improve patient support, reduce the risk of adrenal crisis and shape future standards of care.
29 July 2021
To mark Addison’s Disease Day, Professor John Wass shares his expertise on Addison’s disease, endocrinology and improving patient care. Discover his work with the ADSHG, adrenal crisis education and efforts to raise awareness and standards of care across the NHS.
29 May 2021
Read Adam’s inspiring story of living with Addison’s disease and how he created The AI Warrior to raise awareness of rare conditions. Discover how his love of Fortnite, creativity and determination are helping him connect with the Addison’s community.
27 May 2021
Why do people with Addison's disease and adrenal insufficiency often crave salty, sour and acidic foods? Professor Simon Pearce explains the important role of aldosterone, fludrocortisone and salt balance, and why listening to your body's salt cravings can help you manage symptoms more effectively.
27 May 2021
Discover how the Brazilian Addison's patient organisation ABA worked with international partners to make emergency hydrocortisone injection kits available across Brazil, and why their #HidrocortisonaJÁ campaign is vital for people living with adrenal insufficiency.
22 April 2021
Learn about the research behind a new patient leaflet on fasting during Ramadan for people living with adrenal insufficiency. Discover expert guidance, practical safety advice and insights from endocrinology specialist Dr Shazia Hussain on reducing the risks of fasting.
6 April 2021
1 March 2021
Diagnosed with Addison's disease at just 16, Kristian shares how he learned to adapt, build confidence and embrace life with a long-term condition. His story is one of resilience, self-acceptance and determination to make a difference.
23 February 2021
Each year, the ADSHG funds promising research designed to improve diagnosis, treatment and quality of life for people affected by Addison's disease and adrenal insufficiency. The 2020 Research Grant Awards celebrated two projects addressing critical unmet needs: accelerating the diagnosis of rare diseases through innovative technology and creating a more accessible emergency injection device for people at risk of adrenal crisis.
19 February 2021
The UK Rare Diseases Framework sets out a shared vision for improving the lives of people living with rare conditions, including Addison's disease and adrenal insufficiency. Discover the framework's key priorities and what they could mean for diagnosis, treatment, awareness and access to specialist care across the UK.
14 January 2021