Research Survey: Fatigue & Quality of Life

Update: January 2026 - this survey is now closed. Thank you to everyone who took part!

Help shape research into fatigue in adrenal insufficiency by taking part in this online research survey, led by Professor Simon Pearce (Newcastle University) in collaboration with the Addison's Disease Self-Help Group (ADSHG).

This 10-minute online survey aims to investigate fatigue and related symptoms. By sharing your experience, you’ll help improve understanding of fatigue in adrenal insufficiency, an important step towards better care and treatment.

Professor Simon Pearce explains below why your participation can make a difference.

At the recent Newcastle ADSHG meeting, we were struck by the many different symptoms people were discussing. While there are several studies looking at overall quality of life in people with Addison’s disease and steroid dependency, this questionnaire specifically aims to explore fatigue and some of the other common symptoms in more detail.

By using information from a large number of steroid-dependent people, we aim to find out whether certain steroid replacement regimens are associated with different symptoms.

Eligibility

Adults (over 18 years of age)
You have been diagnosed with any type of adrenal insufficiency (primary/ Addison's, secondary or tertiary)
You take daily steroid medication
Live in the UK and receive NHS care

How to take part

Complete the survey

Any information you provide will be handled in confidence, according to Newcastle University's data protection policy,
The survey is open until Monday 5 January 2026. Please only complete the survey once.
The results will be made available via the ADSHG during 2026.

Thank you for supporting this valuable research and helping advance understanding of how adrenal insufficiency affects our community!

Research Lead: Professor Simon Pearce

Professor of Endocrinology, Newcastle University,

Honorary Consultant Physician at the Royal Victoria Infirmary, Newcastle, and

ADSHG Clinical Advisory Panel (CAP) member.

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