I'm raising money for the Addison's Disease Self-Help Group so that they can continue to support people with Addison's and adrenal insufficiency.  Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life-threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.

I’m raising money in memory of my Father Trevor Coles, who passed away in 2021, although he passed peacefully from hospital acquired pneumonia, Addison's disease was a huge contributor. Dad suffered from Addison's disease for over 30 years, when he was first diagnosed he truly believed he was one of very few who suffered from this. He had very little support or knowledge of this disease back then and had to learn to live with it the best he could.

Dad had many adrenal crises in his time, in which were extremely scary for him and the rest of his family, he was very unwell. If only dad had known about this charity a long time ago, maybe he would have been a bit more knowledgeable and understood it better.

The Addison's Disease Self-help group charity helps work to improve the lives of people with Addison’s disease and promoting better medical understanding. I am aiming to raise as much money as I can and I’m hoping you can help support me, any donation would be gratefully received.

Addison's disease and the Addison's Disease Self-Help Group (ADSHG)

Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life-threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.

Life-long treatment with replacement steroid hormones is required. Medication is usually taken several times daily at carefully timed intervals and individuals must also know how to administer an emergency hydrocortisone injection to prevent a potentially fatal adrenal crisis.

At the ADSHG, we are here to support the Addison’s and adrenal insufficiency community and their healthcare providers to promote better medical understanding of this rare condition, campaign for and support everyone affected by adrenal failure, and fund vital research.

Do grab a cuppa and have a read about what the condition is, what we do, and how you can support people you know who have the condition if they become unwell.

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Another big thank you Jennifer from everyone at the ADSHG.

Jennifer Moloney