On 22 July 2023, Zoe is hosting another fundraising party to celebrate her Addison's diagnosis anniversary. 

Zoe was very lucky to receive a diagnosis for her condition and that was both thanks to an amazing Paediatric Consultant and the work that the ADSHG does with regards to promoting awareness amongst medical practitioners. This disease is rare and even more so amongst children therefore we feel very luck whilst others have been less fortunate.

As Zoe is so young we are very interested in advancing medication and technology to support the disease in the hope that Zoe and others will be able to live comfortably with Addison's disease and that she does not have to live in fear of adrenal crisis.

Zoe is keen to celebrate the anniversary of her diagnosis as a turning point in her life and to give something back for the amazing support we have had from all of our family, friends, hospital staff and not least the ADSHG.

Addison's disease and the Addison's Disease Self-Help Group (ADSHG)

Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life-threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.

Life-long treatment with replacement steroid hormones is required. Medication is usually taken several times daily at carefully timed intervals and individuals must also know how to administer an emergency hydrocortisone injection to prevent a potentially fatal adrenal crisis.

At the ADSHG, we are here to support the Addison’s and adrenal insufficiency community and their healthcare providers to promote better medical understanding of this rare condition, campaign for and support everyone affected by adrenal failure, and fund vital research.

Do grab a cuppa and have a read about what the condition is, what we do, and how you can support people you know who have the condition if they become unwell.

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Another big thank you from everyone at the ADSHG.

Chris Allgood