Emily is a content creator who shares her journey with Addison’s online, alongside her countryside living in the Lake District. For her advocacy is more than awareness, it’s about making our “invisible” health condition seen and understood. Read more
Lottie, a paramedic living with Addison's herself, shares her tried-and-tested tips for ensuring healthcare professionals know your diagnosis when it matters most. Read on, take note, and let this be your prompt to take action! Read more
Meet Liv, a yoga teacher living with Addison's disease, who shares her journey from a life-threatening adrenal crisis at 17 to discovering a passion and career in yoga. Read more
Crystal's journey with fitness took an unexpected turn five and a half years ago when she was diagnosed with Addison's. As a personal trainer, she’s learned to adapt, listen to her body, and find strength in vulnerability. Here, she shares her story. Read more
We keep you updated with inspiring stories on our ADSHG blog.
Tilly reflects on the “double life” of living with Addison's, celebrating major life moments while simultaneously calculating cortisol doses, managing symptoms and dealing with emergencies. She explains how her book launch became another balancing act, resulting in her being admitted to hospital in adrenal crisis just 48 hours later. Read more
Aldons Chua, Endocrine Clinical Nurse Specialist, updates us on his published research looking at the factors influencing the self-management of adrenal crisis in patients with adrenal insufficiency. Read more
Ruth shares her diagnosis of tertiary adrenal insufficiency (TAI) as well as the scientific evidence for TAI, which she hopes will help others who have the same diagnosis understand their condition. Read more
Meet Joyce and Ruth, sisters living with Addison's disease who perform together as Sephira – The Irish Rock Violinists. They share their journey of touring the world, all while managing Addison’s, offering insights on recognising when to updose or follow the Sick Day Rules. Read more
Hilary Hodge is a mother, author, advocate and lives with adrenal insufficiency. Ahead of her "The Art of Parenting While Sick" webinar with the ADSHG on Thursday 27 March, she shares what support groups have meant to her through her journey with adrenal insufficiency. Read more
After 20 years as a patient, Tilly who has adrenal insufficiency, made the decision to share her patient journey on Instagram, inspiring her first memoir. 'Be Patient' shines a bright hospital strip light onto the entire patient experience. Read more
Dr Alessandro Prete provides a research update on Efmody®, a modified-release hydrocortisone capsule. Read more
Siblings Eddie and Grace found themselves in an unusual situation when Eddie started displaying signs of Addison’s disease whilst Grace was studying Addison’s at medical school. This kickstarted a journey that brought them closer together and completely changed how Grace works as a doctor. Read more
Following multiple life-threatening adrenal crises as a new Mum, Jenn was determined to find a way forward. Jenn's research led her to Medical Detection Dogs and now Joy is her cortisol alert dog. Here Jenn shares her journey, the impact Joy has had on her life and her work as the co-founder of Maternal Read more
In 2023, Mauve was diagnosed with Addison's aged 29. As a painter, Mauve uses painting to story tell and encapsulate memories onto canvas. Mauve cares deeply for the Addison’s community and shares her story to advocate and push for better medical treatment and management of Addison's. Read more
Are you affected by adrenal insufficiency? Watch back the first Adrenal Patient Forum hosted by the European Society of Endocrinology. The webinar ‘Adrenal Insufficiency: daily living and adrenal crisis prevention’ brings together clinical experts and patients from across the world. Read more
Watch back the London Addison's Roadshow! Available on our online forum, videos include medic Q&A's, group sessions on emergency injections, and expert talks. Read more
Meet Rachel, a newly qualified resident doctor, who also has Addison's. Known as the Friendly Shark due to her love of open water swimming, Rachel has begun sharing her journey online. Read more
Starting on 1 September 2024, ADSHG Trustee Robert and his friend Mark will embark on an extensive cycling challenge from Verona to Venice. Covering a demanding 450 kilometres over 5 days, this ride aims to raise funds for our charity. Read more
Hear the latest update from SOLUtion Medical on their research to develop an auto-injector for adrenal crisis management for those with adrenal insufficiency. Read more
Meet Ingrid who has recently taken up a new hobby, going to the gym. Here Ingrid hopes to inspire others to get exercising this New Year while also reminding us of the importance of managing your Addison’s too. Read more
Congratulations Louise Breen on receiving the Annette Louise Seal Memorial Award! Louise shares more about her work as an Advanced Endocrine Nurse Practitioner & first Chair Elect of the Society for Endocrinology Nurse Committee Read more
Dr Thomas Upton updates us on the development of the U-RHYTHM system, a wearable device to extract hormones, and provide readings on their levels, in the body over a full 24 hour period, following the release of their clinical trial study, Read more
Dr Georgina Russell updates us on The PULSES trial, looking at the effect of pulsatile cortisol pump therapy on quality of life, mood, sleep, behavioural and cognitive processing and metabolism. Read more
Hannah shares with us her diagnosis story, how she manages her Addison's while living abroad and embracing her diagnosis with an Addison's tattoo. Read more
To raise awareness around hydrocortisone emergency injection kits, we ask you to #ShareYourKit! Hear how Dan stores and carries his kit as well as his top tips for managing Addison's. Read more
Associate Professor Ian Ross of the University of Cape Town is on a quest to alert healthcare professionals to signs of adrenal insufficiency following years working with people with HIV in Africa since the 1990’s. He’s seen many ways the condition and related treatments can impair adrenal function. Vick Smith from the ADSHG caught up with Professor Ross to explore his findings since our charity provided funding towards his research in 2017 Read more
Actor Dan Stewart is passionate about raising awareness of Addison's since his own diagnosis. He shares with us his recent emergency hospital admission experience & his advice on how to be prepared for emergency situations. Read more
The benefits of care coordination are clear, yet it is difficult to access. Here Sherwin Criseno explains 'The 4E’ care coordination initiative, used to support people with Addison’s, adrenal insufficiency and clinicians, and the positive impact this has on quality of life. Read more
To help raise awareness around hydrocortisone emergency injection kits, we ask you to #ShareYourKit. At the ADSHG we like to feature members of our amazing community, as they show us how they store and carry their kit, to help encourage us to keep our kits with us at all times and normalise this potentially scary situation. Read more
Author Carol McKay is passionate about raising awareness of Addison's through her stories. In her latest novel 'White Spirit', the police detective at the heart of the tale also has Addison's disease. Read how Carol became inspired to include Addison's in her writing since her own diagnosis in 2010. Read more
To raise awareness around hydrocortisone emergency injection kits, we ask you to #ShareYourKit! Hear how Hannah stores and carries her kit as well as her top tips for managing Addison's. Read more
Dr Gary Hammer was awarded first place for his adrenal gland image in the Endocrine Society’s inaugural Images Art Competition, celebrating the beauty of endocrinology. Here Dr Hammer shares more about 'Stress Deconvoluted', his career and the importance of advocacy and communication to him. Read more
Whether it's a concert, festival, club night or comedy gig - we all love getting out and about! However some venues have prevented people with Addison’s or adrenal insufficiency from taking their injection kits into venues with them. So what should you do to help avoid any issues? Read more
We catch up with Endocrine Nurse Specialist, Joanne Brown at Stockport NHS Hospital, on the Addison's awareness stand she set-up for Addison’s Disease Day. Read more
British showjumper Anna Power is a star of the European show jumping circuit. She was diagnosed with Addison's disease in April 2011. Since diagnosis she continues to compete internationally and in November 2022 was part of the British showjumping team for the Nation's Cup in Vilamoura, Portugal. Read more
Giulia Bould is best known to the public as a sports presenter on BBC Radio Merseyside. Diagnosed in 2016, she now lives a full life with Addison’s. So what is her secret? Read more
Diagnosed with Addison’s aged 24, in the height of COVID-19, Sarah shares with us how she went from her darkest times to living her dream of performing sign language with singer Jo O'Meara (previously of pop group S Club 7) on stage. Read more
Ali is the author of: “Spinning through Fog (High Salt Content): Addison’s Disease and Hormonal Treatment”, one of 30 personal essays included in the book “So Hormonal”. Ali tells us more about his brilliant essay as well as his route to diagnosis and what he's learnt along the way. Read more