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  • ADSHG Member News

ADSHG Member News

Catch up on all the ADSHG Member news. Gathered from our email news alerts, social media feeds, website and more, it's your bitesize update on all the recent Addison's and ADSHG news.

If you aren't yet a member but are interested in receiving Addison's Disease related news and events, exclusive access to our forum and more benefits, join the ADSHG today  and give our charity a stronger voice!

Visit our ADSHG News Page (members only - opens in a new window)

Published: 19th November, 2019

Updated: 23rd December, 2020

Author: Vick Smith

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Latest

  • Rare Disease Day 2021

    Rare Disease Day 2021

    Rare Disease Day is on Sunday 28th February 2021! Find out how you join the whole rare disease community to raise awareness and share the #RareReality of your life with Addison's and adrenal insufficiency.

  • Kristian’s Story: Adapting to Addison’s

    Kristian’s Story: Adapting to Addison’s

    Kristian was diagnosed when he was 16 years old. Now 25, he shares with us how he's adapted to life with Addison's and how this determination has influenced his career in the creative arts.

  • Novel Coronavirus (COVID-19) - 22/02/2021

    Novel Coronavirus (COVID-19) - 22/02/2021

    Our medics have been keeping an eye on the emerging situation. This page is up to date but we will continue updating it regularly as we find out more information from the government.

  • ADSHG sponsor CoMICs members for #eECE 2022 – supporting the next generation of Endocrinologists

    ADSHG sponsor CoMICs members for #eECE 2022 – supporting the next generation of Endocrinologists

    Addison’s Disease Self-Help Group (ADSHG) are delighted to announce their sponsorship of 3 CoMICs team members to the European Society of Endocrinology (ESE) Conference in 2022.

Most read

  • Updated NHS Steroid Card Released

    Updated NHS Steroid Card Released

    Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!

  • New Video: Managing medication and COVID-19 - 29/03/2020

    New Video: Managing medication and COVID-19 - 29/03/2020

    In our latest video, ADSHG Trustee and Professor of Endocrinology explains how to manage your medication should you get ill in the coming weeks.

  • Behind the News: Hydrocortisone as a Covid-19 Treatment - 09/12/2020

    Behind the News: Hydrocortisone as a Covid-19 Treatment - 09/12/2020

    In recent days, UK news networks have been sharing a story about new studies hailing Hydrocortisone as a Covid-19 treatment. We asked our medics to review the research and the emerging stories so that we can give you a balanced perspective while also updating you on any impacts to the drug supplies we depend on.

  • New UK Rare Diseases Framework launched

    New UK Rare Diseases Framework launched

    On 9 January 2021, the Department of Health and Social Care published the UK Rare Diseases Framework. But what does this policy mean for those with Addison’s disease, adrenal insufficiency and the rare disease community as a whole?

  • Receiving the COVID-19 Vaccine - Personal Stories

    Receiving the COVID-19 Vaccine - Personal Stories

    The COVID-19 vaccination campaign has kicked off - but what does it feel like to receive the COVID-19 vaccine? People with Addison's and adrenal insufficiency share their experiences of receiving the vaccine.

  • Research Update - Professor Arlt's Perspective - 17/03/2020

    Research Update - Professor Arlt's Perspective - 17/03/2020

    In 2017, Weibke Arlt, a member of our Clinical Advisory Panel, published research about Addison's and natural killer cells. In recent weeks, it's gone viral in light of the COVID-19 outbreak. We asked her to give her perspectives on what that means for us. She kindly tweeted her responses yesterday.

  • Novel Coronavirus (COVID-19) - 22/02/2021

    Novel Coronavirus (COVID-19) - 22/02/2021

    Our medics have been keeping an eye on the emerging situation. This page is up to date but we will continue updating it regularly as we find out more information from the government.

  • Vaccines and Adrenal Insufficiency

    Vaccines and Adrenal Insufficiency

    Vaccines and Adrenal Insufficiency - if you have Addison's Disease or another form of adrenal insufficiency, which vaccines should you have? Is it safe to be vaccinated? What do you need to know before you go for a jab?

  • Easing lockdown: How are you feeling? - 10/5/2020

    Easing lockdown: How are you feeling? - 10/5/2020

    It's important to remember you're not alone in experiencing a range of emotions after adapting to lockdown life.

  • [Superceded] EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19 - 21/04/2020

    [Superceded] EJE Guidance: Managing Adrenal Insufficiency in the time of COVID-19 - 21/04/2020

    the European Journal of Endocrinology (EJE) editoral board has commissioned a new guidance series for the management of endocrine conditions during COVID-19. Included within this is clinical guidance for the management of Addison's disease and adrenal insufficiency. Here we take a look at this vital new guidance, so you can get a clearer view of what this means for you or your loved ones.

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Research Grants

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more

Published: 22nd February, 2019

Updated: 19th February, 2021

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Related topics:
  • Research

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The information contained within this website is not intended to provide clinical diagnosis and/or personalised medical advice. It should not be treated as such. Always seek the advice of your doctor or a health care professional before starting any new treatment for your underlying condition. While we have taken every care to compile accurate information to reflect the current state of knowledge, we cannot guarantee its correctness and completeness. The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.