ADSHG Member News

Catch up on all the ADSHG Member news. Gathered from our email news alerts, social media feeds, website and more, it's your bitesize update on all the recent Addison's and ADSHG news.

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Latest

Twitter Chat - Don’t Wait, Educate

Join our latest #AddisonsQA Twitter Chat on Addison's Disease Day for this year's theme 'Don’t wait, educate'. Our medical experts and others living with Addison's and adrenal insufficiency are ready to share their tips and answer questions.
Addison's Disease Day 2022

Join us on Sunday 29th May for Addison's Disease Day 2022! We're asking everyone around the world who is affected by Addison’s disease and adrenal insufficiency to join us in a day of raising awareness.
My fundraiser for the Addison's Disease Self Help Group

I'm raising money for the Addison's Disease Self Help Group so that they can continue to support people with Addison's and adrenal insufficiency. Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.
ADSHG community shares tributes to former chair Katherine White

Earlier this week members of the Addison’s community were dismayed to learn of the passing of Katherine White the indefatigable chair of the Addison's Disease Self Help Group for many years.

Sick Day Rules

Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
Novel Coronavirus (COVID-19) - 24/02/2021

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
Adrenal Crisis Can Kill
What is Addison's Disease?

Find out more about Addison's disease and adrenal insufficiency and and how they are treated.
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Receiving the COVID-19 Vaccine - Personal Stories

The COVID-19 vaccination campaign has kicked off - but what does it feel like to receive the COVID-19 vaccine? People with Addison's and adrenal insufficiency share their experiences of receiving the vaccine.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more