An update on our websites - 13/08/2019

Here’s the latest on our ADSHG websites and how they are evolving.

We launched our new website, addisonsdisease.org.uk earlier this year. Since then you’ve been sharing your thoughts and ideas about how we can improve it. You also told us about pages and information from the old website that you’d like us to make available on the new site.

So, this month we’ll be making some changes to the menus on the site so that you can locate important information and services more easily. We’ll also gradually move some of the contents from the old site to the new one once they have been brought right up to date.

Some of things you visit most often have moved. Here are some quick links to them:

Member’s Forum

Member’s magazine

Living Well Articles

Managing your Forum and Magazine account access

Tell us what you think:

As the new website work takes place, we’d like to hear from you. What do you like? What could be better? Do you have any ideas for us?

Please get in touch

Thank you for your patience while we make these changes.

ADSHG Trustees and Operations Team.

Latest

Sponsor a Member this September

Could you sponsor a member this September? This September we hope to raise £640 to fund 20 Sponsored Memberships. Can you help us?
Research Survey: families & young people with adrenal insufficiency

Calling families and young people with adrenal insufficiency! Please consider completing this survey to help develop national education standards and resources for sick day and emergency management with BSPED.
Karen's Dance-a-Thon

I'm raising money for the Addison's Disease Self-Help Group so that they can continue to support people with Addison's and adrenal insufficiency.
NICE releases new guidance for adrenal insufficiency

NICE has published its first-ever national guidance for the identification and management of adrenal insufficiency.

Sick Day Rules

Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.
Adrenal Crisis - Emergency Help

Adrenal crisis is a time-critical, life-threatening emergency and must be treated immediately. Read the guidance on treating a steroid-dependent patient in adrenal crisis.
What is Addison's Disease?

Find out more about Addison's disease and adrenal insufficiency and and how they are treated.
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
Coronavirus (COVID-19)

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Addison's & Adrenal Insufficiency: Advice for Dentists

The ADSHG guidelines offer illustrative guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more