The Patient's Voice at the European Society of Endocrinology Conference

Hear about our Patient's Voice session at the European Society of Endocrinology Conference, ECE 2024, the largest endocrine event in Europe. Read more

Society for Endocrinology Clinical Update & Endocrine Nurse Update 2024

The Society for Endocrinology invited the ADSHG to their annual Clinical and Endocrine Nurse Update, to help raise awareness of adrenal insufficiency amongst endocrine teams. Read more

Coronavirus (COVID-19)

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government. Read more

Happy Addison's Disease Day 2023!

Happy Addison’s Disease Day! Read on to find out how you can raise awareness and celebrate the incredible Addison’s disease and adrenal insufficiency community. Read more

Sensor development - Bionics+ want your lived experiences

Development of a prototype sensor to detect cortisol levels is underway. We let you know how you can contribute to the next stage of this research and hear from the Bionics+ team on their project known as a closed loop platform for endocrine system management. Read more

Research Opportunity: Adrenal Crisis Experience

Do you have adrenal insufficiency & have experienced an adrenal crisis in the past 3 years? You're invited to take part in this research led by Aldons Chua, to improve adrenal insufficiency & adrenal crisis management. Read more

Research Survey: Self-management in Adrenal Insufficiency

Do you have adrenal insufficiency? Please consider completing this survey as part of the next stage of research led by Dr Sofia Llahana looking at what helps you better manage your condition and treatment, as well as the barriers. Read more

Research Opportunity: Closed Loop Platform for Endocrine System Management

Can you take part? Researchers are at the beginning of a project to develop a prototype sensor that can be worn on the skin to detect the levels of the hormone cortisol. Read more

ADSHG community shares tributes to former chair Katherine White

Earlier this week members of the Addison’s community were dismayed to learn of the passing of Katherine White the indefatigable chair of the Addison's Disease Self Help Group for many years. Read more

Sign this petition to help bring down generic drug prices

Sign this petition to help prevent the unethical practice of price gouging. We speak with Professor Karim Meeran, Endocrinologist at Imperial College London to learn more about this vital petition. Read more

Research Opportunity: Self-management for people with adrenal insufficiency

Do you have adrenal insufficiency? Please consider taking part in this research study led by Dr Sofia Llahana looking at what helps you better manage your condition and treatment, as well as the barriers. Read more

Addison's disease officially added to UK JCVI COVID-19 vaccine priority group

Healthcare professionals in the UK refer to the JCVI's 'Green Book' when adding patients into priority groups for vaccinations. In the July 2021 update to the dedicated chapter on Covid-19, Addison's Disease has been added to a risk group that should receive COVID-19 immunisation. Read more

Exclusive Access to 'Advanced Practice in Endocrinology Nursing' textbook

This Addison's Disease Day, publishers Springer are generously giving you exclusive access to the 'Advanced Practice in Endocrinology Nursing' and two of their chapters on adrenal insufficiency, by Sofia Llahana, Irene Mitchelhill, Phillip Yeoh and Marcus Quinkler. Read more

Research Questionnaire: Adrenal Insufficiency & Motion Sickness

Do you have Addison’s or adrenal insufficiency? Please consider completing this new research questionnaire looking at motion sickness, led by Abigail Lee at the University of Leicester. Read more

New UK Rare Diseases Framework launched

On 9 January 2021, the Department of Health and Social Care published the UK Rare Diseases Framework. But what does this policy mean for those with Addison’s disease, adrenal insufficiency and the rare disease community as a whole? Read more

Preparing for Brexit when you have Addison's or Adrenal Insufficency - 08/12/2020

A deal has just been announced regarding the European Union. it's worth being prepared for the possible outcomes when you have Addison's or Adrenal Insufficiency. Read more

Behind the News: Hydrocortisone as a Covid-19 Treatment - 09/12/2020

In recent days, UK news networks have been sharing a story about new studies hailing Hydrocortisone as a Covid-19 treatment. We asked our medics to review the research and the emerging stories so that we can give you a balanced perspective while also updating you on any impacts to the drug supplies we depend on. Read more

Adrenal Causes Together COVID-19 Survey

Complete the Adrenal Causes Together (ACT) survey to help determine the impact of COVID-19 on people with all forms of adrenal insufficiency from around the world. Read more

Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams! Read more