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  • publications
  1. Home
  2. Publications

Publications

What is Addison's Leaflet?

What is Addison's Leaflet?

Our leaflet, 'What is Addison's', was developed for use in education settings by the ADSHG with support of our Clinical Advisory Panel (CAP), led by Professor John Wass. It provides an introduction to the condition, it's history, treatment and some of the people who've lived full and active lives while managing Addison's Disease. Read more

Published: 16th August, 2021

Author: Vick Smith

Steroid Emergency Cards

Steroid Emergency Cards

People who take steroid medications every day of their life will need to carry a steroid card which identifies to healthcare professionals that their medication cannot be stopped. Find out more about the cards available. Read more

Published: 9th May, 2021

Updated: 30th September, 2021

Author: Pippa Sharman

Diagnosis Infographics.

Diagnosis Infographics. "Think Addison's disease - save a life"

Download the CoMICs diagnosis of Addison's disease infographics and accompanying article "Think Addison's disease - save a life", as featured in the Guardian newspaper. Read more

Published: 9th May, 2021

Author: Pippa Sharman

Fasting with Adrenal Insufficiency

Fasting with Adrenal Insufficiency

A patient leaflet for people living with adrenal insufficiency who are thinking about fasting for Ramadan. It gives tips on reducing the risks of becoming ill if you decide to fast, when it's advisable not to fast and offers alternatives to those who are considered too high risk for fasting. Read more

Published: 6th April, 2021

Updated: 13th January, 2022

Author: Vick Smith

How to give an emergency injection - leaflets for your kit

How to give an emergency injection - leaflets for your kit

Having the instructions for your injection kit helps you, or anyone coming to your aid, to inject you. We have a selection of guides your can print, fold and add to your kit. Be careful to choose instructions that match the type of medication that you have available. Read more

Published: 13th October, 2020

Updated: 19th April, 2021

Author: Vick Smith

Printable Hospital Stickers

Printable Hospital Stickers

The ADSHG drugs chart steroid alert stickers are intended for people with Addison's to take with them for day case and inpatient surgical procedures to alert nursing and medical staff to their steroid-dependence and their time-critical need for steroid medication when unwell. Read more

Published: 25th September, 2020

Updated: 13th December, 2021

Author: Vick Smith

Diagnosing Addison's Disease : A Guide For GPs

Diagnosing Addison's Disease : A Guide For GPs

Our leaflet, 'Diagnosing Addison's: a guide for GPs', has been developed for the ADSHG by our Clinical Advisory Panel (CAP), led by Professor John Wass. It outlines the role of the GP in the early detection of Addison's. Read more

Published: 16th July, 2020

Updated: 10th January, 2022

Author: Anonymised User

Personal Emergency Plan

Personal Emergency Plan

This Personal Medical Emergency Plan template is a useful way of summarising your personal medical needs in the event of an emergency, for friends, family or work colleagues. Read more

Published: 16th July, 2020

Author: Anonymised User

Posters for Health Professionals: Emergency Kits Available Here

Posters for Health Professionals: Emergency Kits Available Here

Posters for Health Professionals: Emergency Kits Available Here Read more

Published: 27th May, 2020

Author: Vick Smith

About the Addison's Disease Self Help Group

About the Addison's Disease Self Help Group

This leaflet, About the Addisons Disease Self Help Group outlines the scope of the Addison's Disease Self Help Group. This leaflet is designed to help people with Addison's, their carers, medics and other interested parties to undertand our work and how we can support those with Addison's and Adrenal Insufficiency. Read more

Published: 28th January, 2020

Author: Vick Smith

ADSHG adrenal crisis guidelines

ADSHG adrenal crisis guidelines

The ADSHG adrenal crisis guidelines give emergency medical treatment guidance for ambulance or hospital staff in the event of a person with Addison's experiencing an adrenal crisis. These guidelines should be signed by your GP or specialist, to verify your condition. Read more

Published: 16th September, 2019

Updated: 22nd June, 2022

Author: Vick Smith

Caring for the Irish patient: Information for GPs

Caring for the Irish patient: Information for GPs

The leaflet, 'Caring for the Irish patient with Addison's: information for GPs', has been developed for the ADSHG by the Addison's Ireland Clinical Advisory Panel (AICAP), led by Professor Christopher Thompson. It outlines the role of the GP in managing Addison’s disease at each stage in the patient lifecycle from diagnosis to old age, taking into account the health system in the Republic of Ireland.. Read more

Published: 16th September, 2019

Updated: 17th March, 2022

Author: Vick Smith

Nursing The Addison's Patient

Nursing The Addison's Patient

'Nursing the Addison's patient: notes for nurses' was written with hospital ward nursing staff in mind, for those times when anyone with Addison's becomes an inpatient. This might be for elective surgery or during the recovery from an adrenal crisis. Read more

Published: 19th March, 2019

Updated: 21st May, 2020

Author: Anonymised User

Surgical Guidelines

Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel. Read more

Published: 19th March, 2019

Updated: 7th February, 2022

Author: Anonymised User

Caring for the Addison's Patient

Caring for the Addison's Patient

This guide outlines the role of the GP in managing Addison’s disease at each stage in the UK patient life cycle from diagnosis to old age. Read more

Published: 19th March, 2019

Updated: 2nd March, 2021

Author: Anonymised User

Medical Summary

Medical Summary

The new medical summary form is an easy way to record the medications you are currently taking. Read more

Published: 19th March, 2019

Updated: 17th September, 2019

Author: Anonymised User

When An Employee Has Addison's

When An Employee Has Addison's

'When an employee has Addison's' leaflet was written to help those newly diagnosed – or changing jobs – to explain their condition to an employer. Read more

Published: 19th March, 2019

Updated: 25th January, 2022

Author: Anonymised User

Managing Your Addison's

Managing Your Addison's

This leaflet, Managing Addison's disease, has been developed by our Clinical Advisory Panel. It provides a summary of the key points everyone with Addison's needs to know to manage their health. NEW: Printer-friendly version. Read more

Published: 19th March, 2019

Updated: 28th January, 2020

Author: Anonymised User

When A Student Has Addison's : A Guide For Schools & Parents

When A Student Has Addison's : A Guide For Schools & Parents

Our booklet "When a student has Addison's: a guide for schools and parents" was written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment. Read more

Published: 19th March, 2019

Updated: 17th September, 2019

Author: Anonymised User

'Living With Addison's Disease' - the book!

'Living With Addison's Disease' - the book!

Our ground-breaking, best-selling book marries evidence-based clinical best practice with the practical day-to-day hints & tips for living well with Addison's Disease. Winner of "Commended" at the 2019 British Medical Association (BMA) Patient Information Awards - the book is available from Amazon so it can be delivered worldwide! Read more

Published: 18th March, 2019

Updated: 25th February, 2022

Author:

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Latest

  • Our Team

    Our charity is governed by a team of volunteer trustees and run day-to-day by our Operations Manager, supported by our wonderful community of volunteers.

  • ADSHG Event Welcome

    ADSHG Event Welcome

    Welcome to our ADSHG event. Here we share some of our most visited resources and services so that you can make the most of what the ADSHG has to offer.

  • Drug shortage alert: injectable hydrocortisone

    Drug shortage alert: injectable hydrocortisone

    Advanz Pharma, the supplier of hydrocortisone sodium phosphate, has confirmed that due to manufacturing issues, they are currently unable to supply the liquid hydrocortisone and expect to resume supply by Q1 2023.

  • Magazine - Summer 2022

    Magazine - Summer 2022

    Welcome to our latest members' magazine - available for download now! 36 pages packed with news, views and advice from the Addison's community - to the Addison's community.

Most read

  • Sick Day Rules

    Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.

  • Coronavirus Vaccines and Adrenal Insufficiency

    Coronavirus Vaccines and Adrenal Insufficiency

    Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.

  • The Emergency Injection for the treatment of Adrenal Crisis

    The Emergency Injection for the treatment of Adrenal Crisis

    Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.

  • Novel Coronavirus (COVID-19) - 24/02/2021

    Novel Coronavirus (COVID-19) - 24/02/2021

    Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.

  • What is Addison's Disease?

    What is Addison's Disease?

    Find out more about Addison's disease and adrenal insufficiency and and how they are treated.

  • Adrenal Crisis Can Kill

    Adrenal Crisis Can Kill

  • Why Salt?

    Why Salt?

    Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.

  • Updated NHS Steroid Card Released

    Updated NHS Steroid Card Released

    Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!

  • Receiving the COVID-19 Vaccine - Personal Stories

    Receiving the COVID-19 Vaccine - Personal Stories

    The COVID-19 vaccination campaign has kicked off - but what does it feel like to receive the COVID-19 vaccine? People with Addison's and adrenal insufficiency share their experiences of receiving the vaccine.

  • Surgical Guidelines

    Surgical Guidelines

    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

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Research Grants

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more

Published: 22nd February, 2019

Updated: 30th June, 2022

Author:

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The information contained within this website is not intended to provide clinical diagnosis and/or personalised medical advice. It should not be treated as such. Always seek the advice of your doctor or a health care professional before starting any new treatment for your underlying condition. While we have taken every care to compile accurate information to reflect the current state of knowledge, we cannot guarantee its correctness and completeness. The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.

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